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Posted 5/5/2016 7:16 PM (GMT 0)
I guess fatigue is part of everyones day, but how bad is it? Me, well most days better than others. I can work, but since the beginning of the year, ive missed at least one day of work per week. And the last 2 weeks, it seems all I want to do is sleep. I dont understand it.

I figure im probably swinging hypothyroid again. Or at least im hoping. If this is Lyme or co symptoms getting worse, im not going to like this disease very much :( I left work this morning after 2 hours with GI distress, seemed like every joint in my body ached, and I was just completely wiped out. Its 3:15. I got home at 8:30 am. I just woke up. And im still tired!!
Posted 5/5/2016 7:22 PM (GMT 0)
Extreme fatigue was one of my worse symptoms from the beginning and remains one of my last lingering issues. When I started treatment I managed to get a reduced work week so I had one day off every week to do Dr appointments, labs, errands, or chores. Taking a 20% pay cut was tough but I returned full time about 18 months later when I started to turn the corner.

maybe your employer will understand.

good luck
Posted 5/5/2016 7:33 PM (GMT 0)
Thanks. Im union, and made a deal with HR a year ago due to my Hashimotos. At the time, I was laid off in previous months and didnt qualify for FMLA. HR pretty much knew I was covered under ADA, and were really nice, excusing any day I took off for thyroid related issues. Now that I have enough hours in last year, I signed up for intermittent FMLA. So, even though im missing pay(I already used my vacation) I wont be fired for missing days. It allows 12 weeks(480hrs) per year. Still tough making bills though. I believe I sold everything worth anything so far to keep my head above water.

I never realized this could make you sleep so much. Feel tired even when you had plenty of sleep. I did know id physically tire easily though. Stamina is definitely an issue for sure.
Posted 5/5/2016 8:44 PM (GMT 0)
Are you taking any vitamin supplements? Have you had your adrenals checked (since you mention thyroid)? How is your blood sugar? Lyme sure does take the body for a wild ride.
Posted 5/5/2016 9:03 PM (GMT 0)
Yep treatment exacerbated the fatigue and pain...

Ive got hypothyroidism, on 25mg liothyronine. Blood sugar problems as well as adrenals. Super low estrogen due to bein menopausal but cannot do bioidenticals due to ovarian cysts. I do take maca root by femmenessence.

I take a B-complex by 'Metabolic maintenence', which has helped ALOT!!!

I actually cant sleep ALL NIGHT due to menopausal hot flashes so I HAVE TO sleep in often as late as 11am-noon! I cannot work-NO WAY!

IT amazes me when I hear about people w/This dabilitating illness who still work and I think, "they must not have high viral loads"! The viral load is the worse of all the infections as they cannot be treated with antibiotics. Antivirals only lessen the severity of outbreaks.

Anyhoo. So 'fatigue'??? Oh yeah!!!
Posted 5/5/2016 9:27 PM (GMT 0)
I hear you sweetpeaisme. There are so many things that can contribute to fatigue. I'm hypo too and just tested my adrenals again. Interesting that my adrenals have been fine thus far...but not so sure this time since my symptoms really hit home over the last 2 months. And I just feel like my adrenals may need some support. I was just recently diagnosed after running around with a generic cfs dx since last May. I found out that I have 2 co-infections that also contribute to the fatigue. Mine is rolling fatigue though. I can be great for 3-4 days and then "bam." I'm up to my eyeballs in vitamins as well. One of my doctors had the audacity to tell me I didn't need to continue with the B vitamins. Ok.....not like I was going to listen to that. Oh well...hopefully we will all get to ultimate health once again!
Posted 5/6/2016 12:48 AM (GMT 0)
Trader I know how you feel, The way I found out to even search for something that was wrong with me was my fatigue. For me it feels like my body is being pulled down like I could fall asleep instantly. I would wake up at 7am go to my LVN class get home at 2pm sleep till 6 pm then sleep again through the night at 9. It was horrible. My fatigue is definitely still there but I will tell you its a lot better. This has been going back since about 3-4 years ago, just found a lyme doctor 6months back. I did have 3 days of not being tired at all it was unbelievable so I know where you are coming from. This type of tired you feel is not easily explained to people not feeling it.
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