Depressed and in pain

Denikeef I have not experienced any joint pain I have neurolyme and I have asked myself the same question. "Will I ever see relief"

I have always thought neurolyme had to be the worst but I see everyone has issues that are really hard for them. I do believe you will get better, and if you are not seeing results to look further at other options you are your own advocate. What I do when I feel like I can't go on. Is on the days where I get a little relief or feel able to stand it, I try to hold that memory into hoping it will stay like that and just get better.

Denise,

Don't worry about venting. We all need to do it and this is a good place to do it. Everyone here knows what you are going through. Me more more than most (for the venting).

Pain is really though. I was on hydrocodone for about 12 years until my doctor retired and his practice kicked out all the pain patients. I have switched to LDN which I find really works well for me.

The thing with pain is that you need to stay ahead of it. I went through a long time of only taking it when the pain got bad, but by then its too late. My doc would tell me if you know based on how you feel now that in an hour your pain is going to jump a number of levels why wait to take the hydrocodone? We are all told its bad and you shouldn't take it.

But with chronic pain, it catches hold and the longer you wait the harder it is to bring it down to a reasonable level. So just like you take other meds on a schedule, if you have chronic pain the pain meds are more effective if you take them on a schedule.

This is something that you'll need to discuss with your doctor because he/she will need to be on board with it. That's tough now because docs are being scrutinized over every script. My doc wrote for it but I had to make sure I never went out of bounds of the prescribed dosage.

When I first came on the forum I asked about pain meds and the herbs but no one had heard of any problems. If you are taking Buhner's herbs, do you have his second addition book? He gives lots of detail about problems with contraindications. I don't recall anything in there mentioning issues with hydrocodone. There are definitely suggestions for pain in general and joint pain specifically.

Something not suggested yet is detoxing. If you are on the protocol but not detoxing, your body will react with increased symptoms. Part of the issue is our body attacking itself so we need to get rid of the dead stuff. If you are not detoxing, check out tiredoflyme.com It has a long list of detox methods. The "New to Lyme?" thread has info about detoxing.

Take it one day at a time. Don't worry about venting. I find that just writing it all out helps me deal with some of it. We understand.

Have a good day,
Kim
**hugs**

Thanks all,

I will do a little research on all these ideas when my brain function is a little better. That is prett y bad right now too. I do feel a little better this morning, with the depression anyway. Lately it just seems to feet really bad at nigt.

Bluelyme, thanks for the reminder aout hydrocoone. It Always stops me up! I had totally forgotten that. I deal with a lot of diverticulitis attacks which mans I have to be very careful of anything that messes with the GI tract.

4321, thanks for your response! I do deal with neurolyme as well and there are times it is really hard to deal with, but since I quit work (thanks a lot lyme!) I am able to avoid some of the embarrassment and frustration of a brain that doesn't function well. Now the pressing issue is having the strength to do anything which I think we are all familiar with and the joint and nerve pain along with the inability to walk. There are a lot of people out there who are mud worth off than I am...young moms and men and women who have to work and deal with the pain of Lyme at the same time. So in that sense I am grateful. The reminder to hold onto those good days is a wise one! I thin I need to think of it in terms of I will get there again rather than I wonder if I will ever get there again? I have a had tome being positive at these moments.

Kim, thank you for the compassion. It is hard to get a Dr. to really hear what we need. I think they are pretty inhibited by a system that doesn't give them the freedom to do what is necessary to help the patient. Here is Iowa they can barely even talk about Lyme. Someone told me yesterday that Llmd's here in Iowa have to sign an agreement not to discuss Lyme with patients and many have had their license to practice taken away. Someone working with the Iowa Dept of Health just recently called my Chiro wanting the second page of my Igenix test...said they had the first and it wasn't even CDC positive! He didn't give it of course. So they are on a witch hunt. Isn't it crazy? Its almost like we are criminals...sorry venting again! lol

Sweetpeas, thanks for the idea about the urine test. I just had my Dr. run a lot of tests and will suggest that one to him next time I see him.

You all are great! Hugs back, Denise K

Hugs back, Peteza,

That is part of my problem, up till the last 5 years I was a mover and shaker, even then I just kept moving through it all...now that I can't I am angry! Compassion does grow, which is a positive out of all this! I catch myself saying to the hubby, maybe she/he has a reason for being grouchy, try to be patient! I will address these issues with my Dr. though I am already on two anti-depressants! I really wish I could get off them, but now s not a good time to do that. It gets so much worse whenever I try.

Denise K

I could have written that post yesterday!! I'm so very sorry that you have had such issues. They really s*ck.

I would encourage you to either get on, or maybe increase whatever you are doing/using for inflammation. Mine comes a goes, although many times there seems to be no pattern, no one knows exactly what's going on in my body from minute to minute most of the time. I increased my anti-inflammatories and called it a bad day and stayed off my feet!

And some have not only Bart, but neuro Lyme, they both attack nerves. There is a product that has been shown to repair the myelin sheath, which is the protective covering all of our nerves have. Once that's damaged, messages get mixed up (registering more pain that it should, muscle spasms/twitches/cramps). Here are a couple of articles on it:
www.ncbi.nlm.nih.gov/pubmed/12675022

www.livestrong.com/article/509385-lions-mane-mushroom-for-nerve-damage/

and there are more resources easily found online.

We can be in misery together at least!! LOL! I hope that your pain levels reduce soon though. I know how miserable it can get for me.

(((((hugs))))

Forgot Tramadol!

That's a non narcotic. I took it once and it worked great for an hour until I had an allergic reaction. But I'm very sensitive to meds as some of us are. It was the only time my pain went completely away. Don't be scared away by my experience. I react badly to many meds and I have to be especially vigilant.

Have a good day.
Kim