I'm Still Here - Father On Hospice - My Own Treatment On Hold

Hi Everyone -

I want to put this disclaimer in - life has been an absolute "ride" for about 6 weeks now. Once in a blue moon I have time to read a post or two here, but not usually. So the disclaimer is that I found a moment to say hello, I am still out here, but I have zero time - so likely won't be able to post replies if anyone comments. Just know I do read and am "thanking you" - even if not in a typed format.

My father (actually, stepfather for 35 years, but we don't use "step" in our relationship) has succumbed to Lewy Body. Only 71 yrs old, I have been his primary caretaker since losing my mom suddenly 4 years ago - watched this dreadful disease take away everything. On April 4th, the orthostatic hypotension caused a fall and the BP was never stabilized...and then it took his speech, motor skills...basically everything. He is on hospice now, but there is no "time frame" with this disease. Steady decline each day, but small. Hoping he has peace soon, as it is like being trapped in your own body.

What this means for me (and my husband) is that I never got past a drop of Buhner's lyme/bart/babs protocols. I am busy around the clock, at bedside or dealing with medical professionals - grabbing sleep when/where I can. My body is so sensitive to even a drop of anything that I can't have a few down days and handle all of this at the same time.

I hope it is ok to just stay in a holding pattern of the 1 drop of each herb. I don't want to quit - but again, I can't afford to be on my back or off my game for a few days.

So that is where I am at.

Again, miss chatting with all of you. Someday my health will be at the forefront once more and I will be back. Hope you are all doing ok on your healing journeys......

Sincerely,
Robin

Ursa!!! I've been wondering how you have been!

My deepest sympathies for your Father, you and your husband. My FIL had Lewy body as well and we moved him in with us during his last months to take care of him (he was very afraid of nursing homes). It's a rough road, but you show so much love and compassion for 'sticking it out' with him. I'm sure that his heart would be so full of pride if he really understood how much you are doing for him.

I would encourage you to stay on anything that you can still tolerate - and have your adrenals tested once this is all over with. Remember, this is a great deal of stress for the body to handle. Don't forget to do any detoxing you can tolerate without it interfering with your schedules.

And thank you so very much for checking in with us! I do hope that your life gets back to normal soon so you can concentrate on your own healing, but I understand what that means as well. Just know that you are thought of and we wish you all the best! Please do come here to vent or find support any time you can get a few moments!!

((((((((hugs))))))))

Oh goodness..it was tragedy that spurred the worst of my syptoms..prayers and hugs your way

Ursa, I am so sorry. That must be really tough. I will be sending good thoughts your way that you will not get exhausted.

D.K.

thinking of you... hope you find some peace in such a stressful time in your life.

-p