Help with Genetic Testing interpretation

Silly sheep - thank you so much for the great explanation! You made this imformation easy to read and understand - i printed out your posts & even had my husband read them (bc trying to verbally explain wasn't working for me!!)

Georgia hunter - thank you for your input as well! This is just mind boggling!! But I short of feel like saying "challenge accepted" mostly bc I have no choice but To keep fighting for my health!!

So yes, CBS seems to be what I should address first. And this is where I'll start researching more & learning. Being I don't see my LLMD until May 25, and the ND not until July 1- what can I do now to start making small changes? I'm not sure if my LLMD knows much genetics stuff but I plan on bringing my research to him!

Here are my thoughts - everything I've been putting into my body is "bad"... did you know i ate eggs for 3 meals yesterday bc my teeth were sore from dental cleaning?! (No cavities, yay, but having a bad problem with gum recession.. My dentist went on to tell me it's a spirochete responsible for periodontal disease / I also noticed a poster for minocycline in his office- lyme & dental spirochete are very similar & equally hard to eradicate - glad he is my dentist!!) ok back to my point - Apparently.. eggs was a bad choice after reading about sulphur. Not to mention 99% of the veggies I eat - sulfur based... So ways a girl to do?!! Diet is definitely my weak point. My kryptonite!!

So I was thinking, rather than turn my diet upside down without a doctor/nutritionist assistance, change what's "easy".

Stop the tri fortify orange (liposomal glutathione) and after reading Georgia hunters response - I'm even questioning if I should continue the calm g and my tumeric & curcumin. I was JUST about to order a new bottle of tumeric /curcumin - maybe i should hold off... I've been taking it for 40 days or so, habe never actually noticed relief from it.

Do you guys think at least eliminating those 3 items would be helpful to start?? Any other tips? In terms of diet I'm so limited by allergies I'm not sure what I'll do. Im even allergic to ice berg lettuce!! Who is allergic to lettuce, seems so crazy! I'm really glad I'm learning this information and am ready for the new chapter in the fight!!

Edit- just read Epsom salt baths are bad?!!! What do I do?!!! I feel like every minute of the day I do something against the cbs mutation :( aloha lipoid acid? Stop?? Interesting that my health went down hill since doing a toxic metals test (just read heavy metal Chelators should be avoided) --end edit

Does anyone think food allergy scratch testing would be helpful here before I see the ND in July?? I have not been retested in a year and Ive been avoiding all of the allergens A I never had an anaphylactic response- just positive scratch tests last year.

I can't thank you all enough for your help & support. I feel like this might be the beginning of finally being on the right path to heal! Makes me nervous but happy.

Post Edited (eagle0eye0JC) : 5/14/2016 5:41:06 AM (GMT-6)

No problem eagle0eye0 :) Glad it helped!

So firstly let me tell you that the CBS was the first thing I had to sort out too. Yes I found that my diet was all wrong, lol!! So, here's what I discovered for me.

First, the CBS means you have too much sulphur, but and it is a big BUT, it is not necessarily the sulphur that is the main concern. That is because it is the too much ammonia that you have due to the CBS ADDED to the ammonia that is produced when you kill the Lyme that is the real problem to deal with first. So, I started by trying to get that down. That's what the charcoal, yukka and/or L-arganine (or L-ornithine) are for.

So, for me I started by taking 1 x L-arganine tablet once a day (I increased this slowly over the course of ten days to 2 tabs twice a day) and took charcoal at night. This helped enourmously with the brain fog - like it practically disappeared, lol!! For those who can't take L-arganine then L-ornithine is a possible substitute. I have swapped between the two (due to lack of availability of one or other) and found they both worked equally as well.

The sulphur was a secondary consideration, and to be honest working out diet changes where a hull of a lot easier once I had got rid of the brain fog, LOL!! But I did make some simple changes, just by avoiding foods high in sulphur, nothing more complicated than that :) Easy!!

I also continued with the Epson salt baths (and still am :) ). It is an effective way to detox for me and that is just as important as managing the CBS for me.

I would also add that this is where you start to get really in tune with yourself. You have to be adaptable on a daily basis sometimes - like now I don't take such high doses of L-arganine unless I 'feel' I need to. Likewise if something isn't having an effect, do not feel obliged to plow on with it just because it is 'supposed to be working'. You will find the right path quicker if you regocnise what it is that is working and adapting and changing if something is not :)

Thanks Silly Sheep- today is the day I go grocery shopping & cook for myself for the entire week... I don't have it in me YET to make huge changes in my diet. I think I really need help from a doctor... And nutritionist for a concrete plan..

Not sure on supplements - scared!!! I am dealing with a viral load - today is my last day of anti vitals hooray!! I'm hoping my dr retests to see if there was a dent in the viral load.

Literally everything I eat is high in sulfur. It's definitley the ammonia that's a problem!! You are right. I noticed after 1 lymph drainage massage & an Epsom salt bath a TON of ammonia came out in my sweat.

Finding a window for charcoal is hard!! But I'll just need to start setting an alarm at night to take it. - I was taking 560 mgs (2pills) - a few weeks ago I tried 3 pills with no ill effects so I may try to take the higher dosage if I can't do it daily - and stick to 2 pills if I am taking it daily.

Wow hair allergy?!! Your poor sister.. And your aunt! Awe that must be so difficult. Thanks for putting things into perspective for me

Silly sheep - do you think I should have any specific testing done to determine the underlying problem when I see my LLMD or my functional me doc in 2 weeks? - check ammonia levels? Taurine? Sulfates? Are there Blood tests? Urine? I don't know their knowledge of these issues but it's gotta be the ammonia the more I read on it!!

July 1 to see the naturopath seems like a lifetime away/ I know it's not- but knowing there's a cause for the brain symptoms lately I would do anything to try to get them under control sooner!!

Bump! Is alkaseltzer gold still ok to use w CBS mutation? I know I said I wouldn't stress but I'm stressing over everything. I haven't even planned on changing my diet yet and it's SO hard to eat knowing it's all bad for me... The tailspin has begun :(

Not helping that my dr is not retuning my phone calls I'm starting to feel like a psycho ha!!

Thanks for your reply silly sheep! Yes you are right it's all bc of the brain fog!! It's a struggle to get through the days, mentally, lately!!

I will definitely ask for my dr to check liver & kidney function. I also read about something called organic acids test so I'll ask about that too!

I spoke with my MD Tuesday night, he and I discussed small changes to start:

Omit eggs, ALA, Calm G, milk thistle, Epsom salt baths etc.

I am only on ABart now & the rest are supplements - I did the happy dance when I finished the RX Famvir (antiviral) last Sunday. Hopefully this is a good start.

Non carb, non fruit, paleo, non egg, dairy free breakfast- now that's a challenge!! do you think it's important to change any other food or wait a while and see if any inprovemebts with those changes, every week I make myself lunch. & dinner for the week that has garlic and onions in it... Funny enough I increased all of my sulfur foods around New Years trying to fight that Lyme!

I see my LLMD next Wednesday & that MD next Friday, but I figured any changes I can make now will help.

I'm also setting an alarm for charcoal at 3am, 2nd night in a row, not too bad to fall back asleep - so I'll stick to that for a while and hopefully notice some kind of improvement! I'm taking 3 pills 280mg each. I'm also doing peroxide & baking soda baths every other day. My skin feels so silky when I get out!

Thanks for being there for me Silly Sheep! I'll keep you posted. It's nice to talk to someone who has been through all of this before.