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For those with Air Hunger

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Posted 5/17/2016 11:49 AM (GMT 0)
My air hunger is constant. Always feel like I need to yawn to breathe deep, but can't sometimes. I also get the chest tightness and burning sensation.

I have been diagnosed with many allergies since contracting Lyme, but don't know if the symptoms are from the Lyme or an allergen.

For those with the air hunger, have you found anything that seems to help (meds or herbs)? I'm getting desperate here!
Posted 5/17/2016 12:27 PM (GMT 0)
Sadly I can't vouch for any herbs or meds, but I understand where you're coming from, before I knew I had lyme, for the longest time was obsessed it was COPD or some other lung condition (used to smoke ages ago), but they were fine. Have you been tested for bart or babs?
Posted 5/17/2016 12:52 PM (GMT 0)
Yes, I tested for both, but was neg. The only tests lately that were abnormal were my Vit D (low) and C Albicans IGA (high)
Posted 5/17/2016 1:10 PM (GMT 0)
Tests for Bart and Babs are notoriously bad. A negative for either doesn't tell you anything. They are both diagnosed by symptoms.

I haven't treated yet, but someone will come along that can give you better advice. I just wanted you to know you can't count on those tests.
Posted 5/17/2016 4:45 PM (GMT 0)
That kind of air hunger/yawning is what I did when I had only Babesia left to treat the first time - waiting to see if it happens again (how I hate that!!). Have you trialed many Babesia protocols yet?
Posted 5/17/2016 5:05 PM (GMT 0)
What Traveler said.

Air hunger is big with Babesia.
Posted 5/17/2016 5:33 PM (GMT 0)
Air hunger can be babesia and/or mycoplasma too. DS has both and has had success with an albuterol PRO hfa inhaler. Otherwise he is to take ativan if he feels like he is suffocating. Not everyone gets a bit of relief from the inhaler according to his LLNP and some have to use ativan regularly. He is not having to yawn constantly like he did before using the inhaler. However he would say he's at 60% if you ask how much oxygen he feels he can get it. It's when it's dropped to 20% that's really scary (why we have ativan available).

I also give him nettles and green tea (decaf) is supposed to be good for babesia. We try to remind him to practice slow deep breathing too for the times when he's really bad.
Posted 5/17/2016 7:20 PM (GMT 0)
Hi Beeperoni,

I have had the air hunger as well, going on 1 year or so but not nearly as bad as you mention. I'm reasonably fit, 34 years old, 155 lbs, never a smoker - and when I started noticing that climbing a flight of 10 stairs or even just reading a book or singing a little song to my daughter at bedtime was causing me to gasp for air I knew something was up. I've only been on abx for about a month and the air hunger is barely noticeable now. I might have noticed myself gasp for air once or twice in the past couple of weeks vs. multiple times a day previously. I have no doubt that the abx helped. I've been on a bunch of supplements and herbs prior to the abx but had no noticeable benefit from those. I'm on doxy, rifibutin, plaquenil, tindamax and naltrexone. For some reason I notice that my best days are when I'm on rifibutin which I cycle 5 days on/ 5 off. I tested negative for Babesia, but now I'm being re-tested and awaiting results as the LLMD felt fairly strongly that I would have it due to the air hunger issues.

Since I've started treatment I've had several really bad bouts of chest tightness where it felt like I couldn't breath (but I still could). The only thing that helps me is to take a muscle relaxer and lay down and do some breathing exercises. I hadn't had these bouts prior to starting the abx, so I'm thinking it's probably stirred something up.

Anyway, I wish you the best.
Posted 5/17/2016 8:04 PM (GMT 0)
my air hunger is pretty much gone,
It's funny how I didn't even
realize it was gone till I read
this.
That's encouraging, so with getting rid of the
infections your air hunger will be gone too.
=]chloe
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