Posted 5/18/2016 8:34 PM (GMT 0)
This is my first time posting in one of these groups, so please bare with me as it may be a little long..
After struggling for many years with various different health issues and symptoms I was recently diagnosed by a local ND in AB, Canada as having Lyme Disease with various co inf incl Bart and Babesia at age 23, with having likely contracted it anywhere from 14-18 years old.
(This next paragraph is mostly venting so feel free to skip!)
I am feeling so lost. I have started some of the therapies such as supplements, vitamins, complete diet change, detox baths, ozone, etc, but I am feeling worse than ever. Herxes are bad enough it is scaring me away from taking my supplements and such and it's getting harder to get them under control. I feel like though my health has been bad for a long time, I have very steadily declined since Christmas of this year, as I am now completely unable to work, some days unable to walk, some days unable to put sentences together. Two days ago, my partner had to dress me, help me to the bathroom, help feed me, etc. The neuro and nervous system symptoms have also gotten quite scary, with paranoia, hallucinations, vision problems, huge memory gaps (more short term), suicidal thoughts (I am not suicidal, I would like this to be clear; when it is happening it feels like a symptom and I usually cognitively am on some level aware that I am not emotionally connected to the thought on any level), sensory disturbances, vertigo, excessive light sensitivity, anxiety, much slower processing of info, ridiculously bad pain ranging from electric shock pulses through my extremities to numb pain to a layer of pain that sometimes seems to just rest under my skin, stuttering, "gapping out" or just sort of staring off into space for short periods of time (usually less than one min), and parkinson's like symptoms, though I am not listing many others. I won't go on to list all of my other physical symptoms other than to say I feel this disease in every organ and place in my body, with it's primary place of attack seeming to be brain, lungs, stomach, and liver/kidneys. I know it may sound extreme, but I feel like I'm dying.
My biggest issue is this: living in Canada I am having an extremely hard time finding the "right" treatment/doctor/etc. I have spent months researching different doctors, lyme-related medical facilities, etc and I feel like other than having a giant stack in my "no" pile, I am no closer to finding treatment. I am willing to travel, willing to do whatever it takes in case of lifestyle change, I just want to get better.
Any Canadian lymies out there: Were you able to get adequate treatment for your conditions here in Canada or did you have to go out of country? If so, is there a way of contacting me to share your story? (Sorry if this is against rules, not sure.)
Any other lymies out there: Any and all tips, tricks, advice or private messages about your story/your recommended doctors would be HUGELY appreciated!!!! I am also wondering if anyone has been to any of the treatment centers for lyme anywhere globally and what your experience was like.
Thank you in advance to any and all who take the time to read and reply!