LLMD says Lyme is no curable!!!!

Unfortunately your llmd is correct, no cure for now but can be manageable.

LLMD told me Lyme can stay in remission if the immune system is healed.

Gut first and learning how to rid your body of these pathogens in vital.

r

I do believe that the healthier we are the more we can keep it at bay even if it is in remission. There are a lot of people walking around with Lyme who don't even know it because they are symptom free. It seems to be that it rears its ugly head in those who have had their system compromised in some way. I could be wrong but that is my 2 cents from the things I have read on it.

I agree with Traveler that there is so much that we don't know.

That is why regardless of wether it is curable or not we have to fight with every bit of ammunition we can find! That includes gut health and a healthy lifestyle.

I think you should do some searches here on the forum...lots of protocols have been mentioned.

You can even look at people's signatures at the bottom of their posts.
You will want to do more than one antibiotic at a time. You can start with one...and a month later add in a second one.
Some common 'duos' : Doxy and Zithromax, Ceftin and biaxin

There is also Bactrim - but I'm not familiar what it can be paired with...haven't been on it.

For Bart, Rifampin is commonly used. It can be paired with Biaxin, minocycline, doxy, or zithromax.

I know 300mg of rifampin twice a day is what my doc wants me to take and seems to be normal. I also take biaxin with it but I forget how much since I don't have the bottle. Biaxin & rifampin for Bartonella.

I took Rifampin 300 mg twice daily with minocycline 100 mg twice daily.

I started with the mino 100 mg once daily...it can cause dizziness..so my LLND suggested that for a week.
Then did mino 100 mg twice daily for another three weeks, before adding in Rifampin. Started that at 150 mg approx. (I opened up the 300 mg capsule and divided it up and refilled empty capsules) - for one week, then 300 mg once daily for a few weeks. Finally 300 mg twice daily.

Some LLMD's prescribe the Rifampin to be taken 600 mg once daily.

After several months, I switched the minocycline to biaxin - 500 mg twice daily.

The dose of Ceftin I took was 500 mg twice daily.

I'm sorry in advanced if this has been posted already as I have not read all the replies. My take on this is the following: Yes, right now Lyme is not "curable." But like others have said in the past from previous posts, what differs cured from remission? Is it an absence of symptoms and a return to health or is a complete removal of lyme and co-infection pathogens from the body? The test we have today can't detect if every single lyme/co pathogen and bleb is removed and reality there probably will never be a test like this. In terms of being cured or not, most people walk around with nasty, nasty bugs in their bodies. The people who don't have symptoms are those that are healthy and have a strong immune system.

So the goal for us is to of course eliminate the bugs, but equally if not more importantly is to heal the gut, strengthen the immune system, support and strengthen our organs, help create a good state of natural detoxification and maintain that state of health so we can keep the symptoms at bay.

"Remission and relapse" Exactly the terms I used when I first asked my Internist for blood tests. I told him I was sure my pos. test in '92 wasn't a false one and that over the years I would go into remission until I'd have another major encounter with ticks and then I'd relapse again with the same symptoms, or worse. He shot that down with a "No, no, that doesn't happen, either you have it or your cured it doesn't stay in you."

I don't wish this nightmare on anyone, but what we need are more Medical people in the field who have gone through it. Now, what would happen if one would begin advertising for a medical Dr. who's suffered with Lyme? I suppose nothing. I saw that there are a large handful of them on the link here that offers free phone consultation and treatment packages, but there ought to be, statistically, hundreds more.

Yes, remission is the only answer at this time. Until research shows us something else.

yip, I agree with remission, too. Trick is to get your immune system working at its best - after all these yrs., I still haven't ....aaaaaargh.....

LOL got it.

well, you can always just send her a bill when you're done.

On a serious note, I think it's FANTASTIC that she is open to info/suggestions. But there comes a point when you shouldn't be paying her to provide her that... after you develop a relationship with her, perhaps you can explore other ways to compensate her for writing scripts for you. ;)

-p