Losing hope

Every time we get to a plateau, we slowly forget that the next opportunity is just around the corner. Patience is a rough car to ride in yet it gets us there everytime.

I feel your pain and wish you well

Lots of great advice above

Thanks everyone...I'm now 10 months in...I haven't seen much progress since November which was 4 months in. Something needs to change...I guess I'm scared that the herbs also won't work if I go off of the abx, and then where does that leave me? I definitely don't want to go back to where I was in the fall and start from square one for nothing.

Violets, I too am so glad you didn't go into the lake! I too had times like that - thought of just driving until I ran out of gas, and other things.

We do also need to take a hard look at what we are doing to heal. I know for many of us, it just takes time (and a lot of it!), but sometimes we aren't doing all the things we need to do. The things I try to always watch, and sometimes I do good at taking care of them and sometimes not so good:

Am I doing all I can do to detox, or are there more things that I can work in? Also remember that if you seem to have a really hard time tolerating or getting far with detoxing, have we had the gene mutation testing?

Am I sure that I'm supporting any organs or body systems that may not be functioning well (like the endocrine system)?

Depending on exactly what protocol or combination of protocols we may be using, maybe it's time to 'mix it up' a bit? Some do much better by pulsing, some just need a change in abx or to try a different herbal protocol, give Rife a try, try out some essential oils or other things.

But it's my opinion that we all need somewhere we can go where we can be honest about what's going on, where we are and what's happening - and that's what we try to keep going here. I wish there was more I could do to help, as I know what it's like (and I'm back here again! Ugh!), but we DO have each other, here, on this forum. Let's be sure to continue to support each other!!

project said...
re: violets story.

It seems like with Lyme if you get really sick quickly you tend to recover quicker and more fully.

Not entirely sure why this is but I've seen it over and over. Just watch Under Your Skin part 1 and 2 to see the same pattern. (Spoiler alert) The girl who was in the wheelchair and unable to walk recovers fully and becomes a paramedic but the girl who was organizing concerts before can't get back to full health despite seeing one of the best LLMDs Dr. K.

It's an interesting pattern. Is it because there are multiple bacteria involved, and the more a person's condition resembles an acute infection the more the recovery also resembles one (antibiotics work well and quickly)?

Or is it because they get so sick they are forced to seek treatment immediately? This would prevent the development of tons of biofilm over the years that becomes a major barrier to recovery for many.

It seems like with Lyme you either want to have an immune system that gives up on it immediately resulting in becoming deathly ill, or an immune system that can completely deal with it and prevent any illness.

It's the middle group that are in trouble - where the immune system sortof semi-manages it but not quite. This allows the bacteria to slowly grow and root in over a period of years and these unfortunate souls end up having a B of a time trying to recover.

The girl who manages the concerts also wasn't taking abx, just herbals I thought. Could be mistaken.

I don't disagree with your premise however.

Don't give up.............. one day we will be writing successful posts on this forum to help other people who need motivation to battle their disease while We enjoy life like we did before. Nothing lasts forever neither happiness or suffering.