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31 kDa epitope test - positive (IGG)

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Posted 6/23/2016 12:04 PM (GMT 0)
So, with all my symptoms and positive 41++ & 39 IND on my IGG WB, would a positive on the 31 Kda epitope test clinch a Lyme diagnosis? I've been on meds for 3 months and have not seen much difference. First month was Amoxy, second month was Amoxy & Biaxin, now this past month Amoxy and Flagyl. Not seeing much change and it's frightening that maybe it's not lyme!
Posted 6/23/2016 1:35 PM (GMT 0)
From what I understand, it would prove that you've been exposed to the Lyme bacteria at some point in your life, not prove an active infection.

These antibodies stick around for a long time in your body, even after the disease has gone into remission. So their presence just proves that you had the bacteria at some point (and may still have it, if you have symptoms).
Posted 6/23/2016 2:42 PM (GMT 0)
What was your IgM? I like the whole enchilada. lol

It did not take much for me to be convinced that I had lyme. I was sick and nothing else fit. My piece of paper was not enough for a positive for Igenex, CDC and my llmd said "how about we test again in 6 weeks?" Being who I am, I thought for sure he was in cahoots with the testing company and got a kick back. LOL! I have more knowledge under my belt now. He just wanted a definite positive to cover his rear end with my insurance company.

And for this and many other reasons, I so dislike tests!!
Posted 6/23/2016 2:47 PM (GMT 0)
My IGM was 41++.
My IGG was 31+, 39 IND & 4++

The IGG 31 epitope came back positive.
Posted 6/23/2016 3:01 PM (GMT 0)
And with those test results and your symptoms, what else could it be?

That is what I thought with my test results. I did the antibiotics for 6 weeks and felt nothing change. Well except that the antibiotics were making me sick to my stomach and then I did not know if I threw up the pills or were they still in me? I was not going to CSI the contents!

I had to get my heart in order first. It was a main concern before anything else. Hawthorn and motherwort. Then the next worse item on my list of symptoms was the head pain. I could not function with a headache/pain any longer. Narcotics did not even touch it. Japanese Knotweed started showing me improvement, not gone, but there were finally moments of no pain. Red Root was the kicker and my tinnitus and head pain went away even more. I stuck in Astragalus too. Now was it the combo of all those? Or was there one that was the icing on the cake or tincture in the glass?

Hang in there. You have only been treating for a month. This is going to take some time and dedication. Make sure you have a journal because without my journal I could not tell you in what order I took my meds or when did the head pain lessen. You will be glad you did this journal a year from now. You will look back and say "gosh I am glad that symptom is gone."
Posted 6/23/2016 3:17 PM (GMT 0)
My worst symptoms are headaches, nausea, air hunger and GI issues (very irritable). Sometimes I just wonder if it could be a different bacterial infection, instead of Lyme. I'm also on BP meds, so there are many supplements I cant take. Also, with the Flagyl, I can't take any supplement tinctures that contain alcohol.
Posted 6/23/2016 3:42 PM (GMT 0)
Your list sure sounds like lyme symptoms.

I made my list and started with the worse symptom and worked down the list tackling one at time. When I finally got to lyme then my body was ready to fight.

I could not fight with the headaches. All I could do was barely function and even when I did that, there was a certain point where the head pain was unbearable and I was crying. Just putting dirty clothes into the washer was a huge endeavor and took its toll.

Your GI and nausea sound bad and without a good gut I do not believe you can distribute meds to the rest of the body efficiently. I would start there.

www.thecandidadiet.com/

Our wonderful mod, Pirouette is so knowledgeable on fungal/yeast problems. Search her posts or email her. She really knows her stuff when it comes to that issue so much more than I do.
Posted 6/23/2016 3:53 PM (GMT 0)
PeteZa, good info on the Red Root, I'm going to have to look into that for similar symptoms. Any brand recommendations? As a quick aside, did you do anything else for the headaches? I too suffer from them pretty badly.

Beep, with you symptoms and positive test, there's no doubt you should seek treatment immediately (edit: just re-read you're already on drugs, my bad).

If your LLMD said to test again in 6 weeks and isn't treating you (again, re-read that you are treating, so the following advice won't be as helpful), well, here's a bucket of cold water:

Find a new LLMD. Now.

Honestly I can't even imagine a true LLMD saying to re-test after a positive test. It doesn't make sense. Heck, most LLMD's are treating regardless of whether the test comes back positive or negative.

Also, remember that air hunger and headaches are very often associated with Babesia, so keep that in mind.

I know you said you're on BP medication?
What's your diet like?
Any chance you take a run at something like the Wahl's Diet?

It would really kick the healing process into gear, and maybe even get you off BP medication.
You could then start a bunch of herbs, if you choose to go that route.
Not to mention you'd be re-fueling your cells with all the nutrients they need to function properly.

Post Edited (Mustard Seed) : 6/23/2016 9:56:58 AM (GMT-6)

Posted 6/23/2016 3:58 PM (GMT 0)
the epitope test confirmed you have been exposed to borellia. This is backing up your presenting symptoms.

What are the rest of your symptoms? The air hunger could possibly be Babesia co-infection.

I agree - that GI issues, nausea - may be Candida.
Posted 6/23/2016 4:06 PM (GMT 0)
Hi Beeps--

Agree with a lot of what's already been shared. Although, full disclosure--I think most people have Bb microbe in their bodies. The difference in us is that some of us are symptomatic because the infection isn't under control.

But anyway... I agree that the 31 clinches it.

Also - your GI issues do sound very familiar for yeast/fungal overgrowth. And it is SO important to get gut overgrowth under control--70% of our immune system IS our gut, untreated y/f can do a lot of damage to the gut which can interfere with nutrition and meds and supps absorption and immune function.

Here is more info - please let me know if you have questions or email me!

www.healingwell.com/community/default.aspx?f=30&m=1606610&g=3644275#m3644275

-p
Posted 6/23/2016 4:14 PM (GMT 0)
Most of my other symptoms have lessened, but I still get the headaches, lightheaded, nausea, burning in chest and arms, sore throat, excessive saliva, severe GI issues, and motion sickness.

My current Lyme meds don't seem to be touching the current symptoms. I have pretty much eliminated gluten, dairy and sugar, and have also been taking probiotics and fiber supplements. Not sure what else to do. I can't gain weight if I tried (110 lbs - down from 150) and constantly get mushy type stools.

My bowels are so irritated, you can see them pushing and protruding up through my stomach muscles. It's horrid, but none of my Dr's want to order a O&P test. They did H Pylori and Guardia, but both those were neg. I'm wondering if maybe Babesia is the culprit, even though test was neg.
Posted 6/23/2016 4:21 PM (GMT 0)
I think we've had this conversation before... but my lamelymebrain isn't totally reliable!

But I STRONGLY encourage you to pursue a very likely y/f overgrowth. Four of us here on the same thread are suspecting it because the symptoms are pretty classic.

Although your protocol is AWESOME (food elimination, probiotics, fiber)... it is not at all effective against an existing yeast/fungal overgrowth. If this is what you have you definitely need Rx antifungals. Natural antifungals are likely not going to be effective at this point and you run the risk of developing resistance if you use them at this point--they are best implemented for prevention and maintenance.

Check out the y/f info I provided and then ask any questions that might not have been covered that could be more specific to your situation.

-p
Posted 6/23/2016 4:36 PM (GMT 0)
I'm currently taking liquid Nystatin, but maybe it's not potent enough? Is there something else that I can recommend from my Dr.
Posted 6/23/2016 4:39 PM (GMT 0)
Excellent advice in this thread.
Here's another tip:

Start drinking a powdered mixture of ground cloves powder, olive leaf powder, and black walnut powder.
Its great for intestinal parasites.
Check this out:

realfoodrebel.com/brendas-herbal-dewormer/
Posted 6/23/2016 4:52 PM (GMT 0)
I actually ordered the Dr Clark parasite cleanse, but haven't started it yet because I'm nervous. The tincture contains alcohol and it says that people allergic to ragweed should not use wormwood! So now I'm scared to take it.
Posted 6/23/2016 5:53 PM (GMT 0)

Beeperoni said...
I'm currently taking liquid Nystatin, but maybe it's not potent enough? Is there something else that I can recommend from my Dr.

Please read through the tread I posted.
www.healingwell.com/community/default.aspx?f=30&m=1606610&g=3644275#m3644275

It has critical information for you that you need to act on ASAP... Please ask any questions you have.

That thread explains why the liquid Nystatin is not at all effective and that you need to be taking PURE Nystatin powder and it explains what to ask your MD for and how to fill the Rx.

Also, you probably need to be on a systemic anti fungal and that thread explains why...

Once you've read through the info (sorry, I know it's a lot of info but will be very helpful for you) please let me know if you still have questions or concerns and we can help you take the next steps!

-p
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