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What are YOUR symptoms?

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Posted 6/27/2016 6:26 PM (GMT 0)

ItisLyme said...
Stomach pain, almost like being stabbed.

Hallucinations.

Sudden drop in BP, especially in the heat.

These are just the three that come to mind right off the bat....there's a dozen more

The mind/brain things just absolutely suck!!!
Posted 6/28/2016 12:17 AM (GMT 0)
Extreme fatigue/chronic exhaustion
Rapid, pounding irregular heartbeat
Night sweats
Extreme joint/muscle pain
Pervasive and debilitating "brain fog"
Pain/swelling in groin
Weak knees
Spine pain
Irritability
Bowel/Digestive issues
Chronic, low grade fever
Chronic head pressure/ache
Hair loss

Post Edited (iHadLyme) : 6/27/2016 6:21:07 PM (GMT-6)

Posted 6/28/2016 1:31 AM (GMT 0)
Still curious why one side of the body more than the other?
Does this happen with other infections?
Posted 6/28/2016 6:00 PM (GMT 0)
Hi iHadLyme!-

Welcome to our community! Are you still dealing with Lyme disease? Or are you in remission?

If you are still dealing with Lyme, I hope you stay around. There are a lot of friendly and knowledgeable people here. Feel free to ask any question that you might have. We all try our best to help.
Posted 6/28/2016 6:04 PM (GMT 0)
Can someone clarify?


Are we talking about symptoms we had before we knew that we had Lyme, OR the symptoms that flared up after starting treatment???

Thank You!
Posted 6/28/2016 6:14 PM (GMT 0)

Little Bear (LB) said...
Hi iHadLyme!-

Welcome to our community! Are you still dealing with Lyme disease? Or are you in remission?

If you are still dealing with Lyme, I hope you stay around. There are a lot of friendly and knowledgeable people here. Feel free to ask any question that you might have. We all try our best to help.

Hello. I first noticed the rash on August 8th 2015 after hiking in Maine. It was not a bullseye, but rather a large bruise that extended from mid hip to mid rib cage. I didn't even consider Lyme disease at the time. Doctors didn't seem to know what it was. After being misdiagnosed (Mono), I eventually saw an infectious disease specialist in January 2016 who gave me a one month prescription of doxycycline. I did not feel any better after the antibiotics and became very scared and depressed. Suddenly and without warning I began feeling better about one month ago. So, yes, you can say I am in remission. I like reading and discussing Lyme because it had such a negative effect on my life for several months. I also want people to know that recovery is possible.

Post Edited (iHadLyme) : 6/28/2016 12:23:17 PM (GMT-6)

Posted 6/28/2016 6:23 PM (GMT 0)
IHadLyme, you still likely have lyme, and being symptom free I wouldn't consider "In remission", I would consider it more "Inbetween parties".

I would recommend finding a LLMD. You likely still have an infection happening if you were only on doxycyline for a month, especially if it was more than a month since you were bitten that you started taking it. Were you on 200mg/day or 400mg/day?

I thought the same thing, little did I know what I was doing wrong. Our timelines were similar. Believe me, they came back to me, and they hit much harder the second time around. I would treat longer if you still have symptoms.
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