Need help for friend who is desperate!!

Hey all,

I hope everyone is well.  I have a friend here who just joined, her name is Radka but goes by RadkaCZ.  She lives in Czech.  She is in desparate need of help and does not feel like she can go on any longer, she says she is waiting for death.  My heart breaks for her.  She has borrelia, bart, babs, bad mold toxicity, heavy metals, parasites, etc.  She, like most of us, have the full spectrum of Chronic Lyme.  She is bedridden and unable to move around.  She currently has no finances to pay for an LLMD/LLND, herbal protocols and real professional help.  She has tried Truerife for 4 months with not a lot of success.  Currently she is only able to juice.  I believe her biggest issue right now is detoxification, she has a huge load of toxins in her body with no way to escape, which I believe is causing the majority of her symptoms. 

She is out of ideas so I told her to join this forum and I would introduce her.  Is there anything we can do to help?

Thanks for everyones help!

First of all, like you suggested, she needs to concentrate on detoxing. That alone will not heal her, as you know, but it will go a long way in helping her to not feel like she is waiting for death. I've been to that point myself, so my heart goes out to her.

And thank you for suggesting that she join us! Lots of people on here are dealing with mold issues, and that needs to be addressed before she will be able to heal from Lyme and company. From what I understand, the best detox for mold is cholestyramine, but I believe it's by prescription only here in the US, and I have no idea how to get it in Czech.

I would encourage you to talk to those that have had success with treating mold to see what detoxing helped the most, but until you gather that information, I would encourage you to help her get started with things that shouldn't interfere with anything, like detoxing by dry skin brushing, using benadryl and other things. I think Burbur and chlorella are likely good detox routines as well for someone in her position.Soaking only her feet in Epsom Salt and peroxide will likely be of help as well - but only her feet for now, as you don't want her to mobilize too many toxins at once, and only have her keep her feet in the water for 5 minutes to start. She shouldn't feel much difference doing them for only that amount of time, but it will help in the long term, so encourage her to continue.

I would also encourage you to help her get started on milk thistle as it helps detox and protect the liver.

She might find Quercetin helpful as well, as it helps to stabilize the mast cells that create those horrendous herxes, including inflammation. It does some detoxing as well, so she needs to start off on a very low dose and work her dose up slowly.

And I sure hope that she chooses to post here! It would be very helpful if we could talk directly with her.

Hi RadkaCZ!!
I'm so very pleased that you joined and posted!! I posted suggestions just moments before you posted, so I don't know if you saw my post?

Anyway, hang in there! With you being in the US, we will have a better idea of how you can get help. Start with detoxing and rebuilding your body, by supporting the things that are not working well.

Have you had any testing on anything done? Hormone levels or anything?

I post this from time to time to help people understand what it takes to recover from these infections. Hopefully it will have information that will be helpful to you as well:

With the experience that I had personally, and what I've watched others go through, here is what I believe needs to happen for many of us to heal:

a)Detoxing - gene mutations, mold exposure and multiple tick-borne infections can all prevent us from detoxing well, but we must be able to get those toxins out of our bodies. I have not had any of the gene mutation testing done, although I do seem to have the same kind of issues as those that do - so I figured it was best for me to assume that I did and work to get my body to detox much better. It took a lot of diet changes as things with my body changed, I used a foot soak daily, dry skin brushing, making sure my bowels moved at least once a day (sorry if it's TMI!) pushing myself to drink at least 64 ounces of lemon water each and every day, liver/gall bladder flushes (all natural), oil pulling, taking activated charcoal and keeping the amount of stress in my life at a bare minimum. You can find some really good detoxing suggestions in the "New to Lyme?" thread that sits at the top of the forum:
www.healingwell.com/community/default.aspx?f=30&m=1606610

And this is another good list of possible detoxing routines: www.tiredoflyme.com/detox-methods.html


b)Supporting the body functions/systems. We have to have the body working at it's peak performance to heal from something as devastating as these infections. Supporting any gland, organ, body system that is struggling will allow the body to switch it's 'concentration' from just trying to function over to healing.

c) Raise the immune function. Many legitimate Lyme researchers now believe that it's the lowered immune function that determines who gets chronic Lyme and who heals right away. We already know that Lyme lowers the immune function and when a person has Bartonella and/or Babesia, the immune function is further compromised, so to heal we must raise our immune function.

d) Lastly, oddly enough, are anti-infective treatments. Many of us have experienced treatment failures​ or set backs​, so we can see that the treatments aren't the only thing we need to have - there has to be more to the equation, but anti-infective treatments are very important!! Lyme bacteria are one of the most complicated bacteria! ​Although it takes only hours or days for most bacteria to replicate, Lyme bacteria only replicates in the body every few weeks.​

Hello,

If you can.....bone broth for minerals also...cheap and easy to make.

bones (chicken,beef..both)

carrots

celery

parsley

add some garlic,salt,pepper

maybe even small pieces of chicken,beef....even rice and or beans

stew for a few hours

very easy to drink or eat......our body needs minerals

all these little things you do can only help you

Wishing you better days ahead.


r

Note: I will break up my post to see if it helps with your comprehension. Many of the members have started out with poor comprehension and sometimes it helps if the post is broke up more, like what Reminder has done (ever so kindly) for you.

As Reminder said, bone broth would also be an excellent thing for you to drink daily.

I don't know much about sodium ascorbate, but I just read that it's a form of Vitamin C, and I take larger amounts of vitamin C myself, so I would say yes it would be good to start also. Just start on very low doses and work your way up slowly. Give yourself about 3 - 5 days in between raising doses, and don't

raise your dose on anything and start something new in the following 3 - 5 days. You will want to be able to identify what caused a herx or other reaction and be able to take immediate action to lower or stop whatever it was.

Just remember to start every single thing, no matter what it is, slowly and at low doses. We like to say to "go low and slow" here a lot and this is what we mean by that. Even with detoxing.

The foot soak is easy enough. Take a small tub (like for washing dishes in) or any bucket or other thing that you can get both feet into and have enough room for several inches of water (it doesn't need to be above the ankle when your feet are in the water though) and add:

1 cup of Epsom Salt
8 ounces of Hydrogen peroxide. The 'regular' peroxide will work just fine.

Add in about a gallon of water - or whatever it takes to make it deep enough to cover the tops of your feet. To start with, don't make the water hot - only luke warm, about skin temperature.

Only keep your feet in the water for 5 minutes at first. If you tolerate this, then you can work on increasing the amount of time you keep your feet in the water.

I would also highly encourage you to start dry skin brushing. Most people do this once a day, some do it twice a day. You need a soft bristle body brush if your skin will tolerate that - if not, let me know and I'll help you by describing how to build up to it.

Working in small circles, with only very light pressure (you're not trying to leave scratches in the skin), you start with your feet, and work your way up your body, being careful in the more tender areas like around the inner thighs, inner arms, neck and face - but be sure to do those areas as well if you can tolerate it.

Dry skin brushing is really quite effective, but it's not something you will necessarily feel better immediately after doing it. Detoxing has more of a cumulative effect - the more times you do it, the more it helps.

If you have any questions, or can't seem to do some of these things, do NOT give up!! Believe me, there are ways to work up into detoxing regularly and using more and more detoxing routines.

about 9 years ago, when I first started trying to heal, detoxing was not ever considered important, even though we now know that it's vital and can make the difference between someone healing or not. I had tried using abx (antibiotics) for a year without detoxing!! It was literally a wonder I survived it. I

ended up with seizures, severe cognitive dysfunction, no working memory and so, so much more. My skin was on fire daily and I had to start with a wet wash cloth to skin brush, but now I have no issues at all with dry skin brushing and actually enjoy it now.

We are all here to share our experiences and help with suggestions for you! And this is a wonderful community for that! Let us know if you have ANY questions!!!

I'm dealing with a toxic mold issue as well and my doctor told me to buy Alli which is a weight loss supplement. Apparently mycotoxins (the toxins which mold produces) likes to cling to fat. This product prevents some of that fat from being absorbed into your body and it gets passed out of your colon. He said after a week if its working you should notice a difference.

The cost for 120 pills on Amazon is $40 or so might be worth trying or you can find Alli in most drug stores. Note my lyme doctor is $400 a visit but I'm passing you this information for free.

I'm starting it tonight will let you know how it works as I'm full of gliotoxins and need to remove them!

I am back I was like in half coma from drinking green juices for 4 days now because I am soo sick and desperate that I don't know what else to do. My mind went off so I couldn't do absolutely anything.
I read all your posts.
Traveler,
Yes I meant vitamin C. I started to take ascorbic acid and got very very sick so I tried buffered form sodium ascorbate and that works fine. Well doesnt make me sick. I have very bad chemical sensitivity.
Don't tolerate almost any meds and chemicals and yes I ended up like you on antibiotics. My kidneys were failing-swollen feet so they rushed me to ER gave some IV antibiotics and pill antibiotics and pumped me with morphine because they didnt know what to do-of course. My kidneys were failing from toxicity. Because I just lay can barely move for 7 months now and all I can do is take some supplements and sleep on sleeping pills. I know it's bad but I lost all my energy. I used to be very energetic and healthy before this horrible Lyme :( and it took me 3 years to figure out what is going on. I was doing a lot to get better but got only like 90% better with all my crazy holistic ideas-holistic medicine is my background and I still cannot figure this out and it's very challenging. Now even more when I lost my family support because they thought I should just pop a magic pill from MD and be ok. Well I did what they asked me because I lived in their apartment and got destroyed by MDs and called lazy and crazy....
Oh I just found the brush I was using last year,I will try do dry brushing again.
I did Epsom salt soak but need to get peroxide and bigger bucket. Thanks

Post Edited (RadkaCZ) : 6/29/2016 2:55:13 PM (GMT-6)

RadkaCZ

Welcome! I just wanted to mention that diet was a drastic changer for me. Try to look into Bone broths and whatnot. They can have incredible effects on the gut, are cheap to make and feel good to eat! Another good one for the Kidneys is lemon water. That will help flush you out. I'm weird. I make "Lemonade" by slicing half a lemon, putting it in a 500mL glass and stabbing it with a sharp knife to break it up. I then add water and pee every 15 minutes for an hour lol!

Another good one for gut healing is Kefir. We make our own and leave the grains in high fat milk (3.8%) overnight on the counter and drink it throughout the following day. It is a great replacement for milk in cereals. It can be a bit sour, but I've learned to love it.

Finally let me tell you about the kraut. Saurkraut is amazing, easy to make, and works into many different foods easily. It is incredibly good for your gut and these are all amazing sources of probiotics, which may help you immensely.

Garlic is also anti-fungal and may help with any molds, this is a dietary thing that can be medicinal as well!

Post Edited (Asmoline) : 6/29/2016 3:03:50 PM (GMT-6)

Rikky1,
Thank you for suggestion. I got recommended Cholestepure and if it won't work I will try other things. The mold on top of everything sucks :(

Radka the Cholestepure isn't a substitute for Alli. You need to get the mycotoxins out of your system and starve the mold at the same time. If you truly have a high mycotoxin load then you need to get that reduced if you're to have any chance of making progress against lyme and its buddies. Taking a few pills of Alli every other day will give you an idea on how toxic you are by how you feel.

Rikky1
It's all so confusing. My friend recommended to me for mold. Well
it's natural. If its going to work I am not sure. I've heard a lot about Cholestyramine but that's only with prescription. So does Alli work same good?
I know mycotoxins are really bad. We probably have some here in South Florida but nothing like old house 5 years ago. It was bad!!

RadkaCZ said...
Traveler,
I love kefir!! But some diets say no diary,some say kefir is ok. Confused :-/
Oh wow so you are not bedridden anymore?
What did she do?
Our friend is Chinese medicine practitioner but I just get soo brutally sick now from all the herbs that she decided it won't work and we were just doing ionic foot bath with some relief but she said she knows I won't to probably lay in the bath all day.

Kefir is dairy, but it's cultured dairy, so there's a difference. If you like kefir, I would encourage you to use it as it has a something like 23 strains of good bacteria in it: www.culturesforhealth.com/learn/milk-kefir/milk-kefir-grains-composition-bacteria-yeast/

As for what I did, you can read my explanation here: www.healingwell.com/community/default.aspx?f=30&m=2977364

But the first thing we did was to help me detox more and to balance out my body - things that needed to be supported like thyroid and adrenals, liver, and such were supported as well. Acupuncture was a God send in my life as it helped me deal with the pain - I couldn't stand for more than 7 minutes at a time without having my legs collapse under me from the pain. I was using strong pain meds, but they weren't really helping, so I quit them. The acupuncture helped a lot more! But it does take a highly intuitive acupuncture doc to know what needs help and what they need to leave alone. This I can't explain any better unfortunately.

Asmoline,
Ok I will do kefir,sauerkraut and pickles. We usually have some sauerkraut and pickles here.