Does this sound as Lyme Disease? UK members help?

Hey Lana,

It does sound to me like Lyme could be a possibility, but not the cause of all of your symptoms. Particularly your mouth issues. I believe they may be candida related, I'm sure others will correct me soon. They work closesly together. It would explain the sudden yeast infection as well if I'm not mistaken. When

you said " It all started with crazy vertigo ( I was standing still and suddenly felt that I will collapse). I run upstairs to bathroom in order to put some cold water in my face, to get better. However, my heart started to race very fast (almost 180), and my legs felt numb." It gave me memories of my 3 month "flu". It

sounds like your immune system is under attack. You may be dealing with a bit more than Lyme as well, given all the symptoms. The rashes are also a large indicator of infection. Where are you based? I would recommend the "New to Lyme" thread. It is packed with info. Also where are you based out of?

I would recommend the following site if you are looking for a doctor who understand the disease to be able to asses you properly

ilads.org/ilads_media/physician-referral/

It sounds like you could have Lyme & Co. Bartonella came to mind when you mentioned the travelling patches that disappear over the day, mixed with the eye issues.

Post Edited (Asmoline) : 7/1/2016 8:20:26 AM (GMT-6)

Thank you very much for your replies, I really appreciate it. Originally I came from Latvia, but over the last three years I live in the UK. I do not remember being bitten by tick or having bulls eye rash.

Actually some weird things are happening to me over the last three years. However, since all my symptoms are changing quite frequently, everyone around me thinks that it is anxiety related ( I thought as well since last two months). For example , three years ago without any particular reason few lymph nodes in my neck was swollen and enlarged (I was obsessed with them and was checking every single day). Than they disappeared in one day also (just one is in my neck). Than some crazy rash all over my body (It was extremely itchy), also disappeared. Than my body temperature was 36 degrees per Celsius for about half year, than one day again went back to normal. Than pain in legs and arms (like bone pain); Than cray shortness of breath; Than half year temperature 37 . Than crazy acne on my skin. Now new symptoms what i mentioned in above post ( and my skin cleared when these new symptoms started). I do not know if this all is somehow related, but its all is just terrifying, especially because symptoms come and go.

Hi Lana,
Welcome to our community! I'm so glad you found us.

I edited your first post only to add to the title so that our UK members will know that you need help in the UK. You can also use the search function to find posts and members from the UK - just be sure to use the word Lyme as the first word in the search box to help limit your results to the Lyme forum.

​If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more. And this is another good list of possible detoxing routines: www.tiredoflyme.com/detox-methods.html Detoxing for us is an incredibly important part of our healing.

I'm not sure just how much help these organizations and lists will be of help to you, but it's worth a try! And, I have some listings for the UK - if you choose to email me, please be sure to include the country and the area in which you are hoping to find a LLMD.

For information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.


​You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state (or province) and area that you would like to find a LLMD in and I will be happy to share the names I have.​


You can email the Tick-Borne Disease Alliance at [email protected]​ for LLMD referrals and you can go to ​tbdalliance.org​​ to learn more about these infections.


You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​​


ILADS has their own referral system as well:
ilads.org/ilads_media/physician-referral/

And a new resourcewww.LymeDoc.org


​ You will want to find a well trained doctor, not one that has self proclaimed themselves as a LLMD or an ID Doc (Infectious Disease Doctor), as ID docs believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:
www.lymenet.org/BurrGuide200810.pdf