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Posted 8/1/2016 2:52 PM (GMT 0)
Moved from mold, left everything to live in a friends RV. Felt fine for a night. Guess I cross contaminated because now the air makes me ill. Went to ER yesterday for bloody stool. Very upset, health declining. Blood work came back awful. Low RBC, high inflammation marker, acidic PH, low AST (most likely have liver damage).

Kidney function declined 90 points. I have to be treated for mold. Can't afford it and stopped working at a moments notice. All the horrible symptoms of stage 3 mycotoxicosis. Plus a horrendous candida infestation.

I'm so so so upset and my body is showing signs of necrosis/ death. ER says nothing, family doesn't believe me. Have insane debt and can't get to my llmd till October (though I'm calling today on an urgent basis). Seeing my PCP tomorrow and have an abdominal ultrasound Wednesday.

Please help me out, all! Can anyone survive toxic mold once it starts shutting your body down?

I've read the blog Miss Divinely Toxic, but her body slowly was dying over 18 months and she got well! Mine happened suddenly (or maybe not?). I'm very, very ill and don't have the fight in me.

Last night, I had drenching night sweats and skin burning in my NEW environment! 😡 I do not have the money or the time to move around. I need to heal. Please, tell me what to do someone. I felt like I'd never wake up last night.
Posted 8/1/2016 3:06 PM (GMT 0)
Oh I am so very sorry you are so very ill.

I hope your PCP can help you and give you some answers.

Have you quit eating sugar? And are you on antibiotics? Are you detoxing at all?

It sounds to me like you have so many things going on that you need to stop, re-evaluate and take one step at a time.

I hope someone with more knowledge comes up with better answers than me.

So very sorry I'm not more helpful.
Posted 8/1/2016 3:10 PM (GMT 0)
I feel really bad for you. I am so sorry this has happened. Can you stay there a while? I know you don't want to go back to your parents but perhaps you should. Mold is very serious. What did they do for you in the ER? Did they treat you? In my experience hospitals never look for mold, they look for bacterial infections. One hospital even told me they don't look for it.

All I can say is I am so sorry you feel so bad. I am doing very poorly as well and don't know how much longer I can go on.
Posted 8/1/2016 3:11 PM (GMT 0)
I'm so sorry, Cdavis!
I've lived in travel trailers more than I like to admit to (traveled with hubby for his work), and I can tell you that RV's of any type are not mold free. As a matter of fact, I had more trouble with mold in trailers than in any home I've lived in. It's possible that you are being exposed to mold yet again. You should try to find a mold free place for those that are chemically sensitive. If you aren't sure where to turn, please email me as I do have one small resource, but it might lead you to others.

Can you get one of your doctors to prescribe cholestyramine? It's often prescribed for mold issues.

Have you checked into the Shoemaker protocol for molds? I know of a few people that are using or have used it to heal from mold issues.

And remember, everything comes back to detoxing and supporting the body.

Please do let us know what your LLMD has to say (good idea to call them on an urgent basis!), and let us know what your PCP have to say as well.

Hang in there!!
Posted 8/1/2016 3:35 PM (GMT 0)
If you want to email me as well I am around all day to tAlk. Sometimes just having someone to tAlk to helps. You are not alone.
Posted 8/1/2016 4:17 PM (GMT 0)
Just got an appointment with my llmd for tomorrow. Will see pcp next week so that he will have the results of my ultrasound hopefully
Posted 8/1/2016 4:32 PM (GMT 0)
I've looked at the shoemaker protocol. Haven't detoxed because I left everything behind. So weak and upset. about to be fired from work and don't have a savings. Parents are so upset but I can't go home because it's so bad in there.

Please, if anyone can help me find strength. Maybe some survivor stories? My blood tests and my body in general really gets to me. Makes me know that I'm dying at a cellular level.
Posted 8/1/2016 5:17 PM (GMT 0)
Try reading this thread - our success story thread:
www.healingwell.com/community/default.aspx?f=30&m=3562412

I would really encourage you to find some detoxing routines that you can start. Oil pulling, dry skin brushing, lymph massages, or anything else you might be able to do - just add them in slowly.
Posted 8/1/2016 5:21 PM (GMT 0)
Omg my Lyme doctor is so great! She told me exactly what to do right now and we are devising a game plan tomorrow
Posted 8/1/2016 5:24 PM (GMT 0)
Wonderful!! If you wish to share it with us, we'd love to hear it!
Posted 8/1/2016 5:26 PM (GMT 0)
I will definitely. I heard she's successful and I have complete faith in her. Thank you all! She said its urgent though because my body is sick
Posted 8/2/2016 9:07 PM (GMT 0)
Hi Cdavislyme,

I hope you're appointment went well! I'm very sorry you're not doing well.

Binders, binders, binders are crucial for mold treatment. Pure Cholestyramine is one of the best per Shoemaker. Chlorella is great too. Binders can be just as important in mold treatment as the antifungals. Detox as much as your body will allow.

Molybdendum is fantastic for Candida.

Let us know how you're doing.
Posted 8/3/2016 12:32 AM (GMT 0)
My appointment went well! My LLMD said Cholestyramine isn't good for Lyme patients, in her experience. So we are going the herbal route! She also wants me to switch my high fruit/carb vegan diet to a paleo diet.

She said the mold in my home and all that sugar is a perfect storm!
Posted 8/3/2016 12:50 AM (GMT 0)
EXCELLENT - I am so glad your LLMD is on board and responsive. Stay in touch with her as best as you can and post what you're doing here so we can also keep up with you.

The diet sounds good and is KEY to making progress. I am also glad you are going the herbal route - for many reasons (but many other lyme specialists will disagree that cholestyramine isn't good for lymees - it was a game-changer for me) but you're in good hands and there are other binders to take.

Let us know how things are going!

-p
Posted 8/3/2016 1:18 AM (GMT 0)
whew - yeah - support came!
Posted 8/3/2016 1:25 AM (GMT 0)
The top priority (and hardest part) is getting out of the mold! The RV does have mold and I'm stressed. My boyfriend's house is fairly new, but their dog pees on the downstairs carpet, which worries me. His mother always cleans it up right away, and his dad always keeps up with house work- no water damage anywhere! The only thing is- they haven't said yes to me living with them for 8 weeks. :/

The other option is moving in with a friend! She's amazing and her house is new and just got a mold check since her parents just bought it! However, they haven't said yes either. :/ I just really hope someone accepts me!

I had faith that my doctor would help me; now I have to have faith in finding a place to stay! I also will be back at work! My doctor said that mold is probably not an issue at work because my manager is there all the time- has been for 11 years and is very healthy- no allergies and never gets sick! That's a relief! ☺️
Posted 8/3/2016 2:00 AM (GMT 0)
Good attitude Cdavislyme! Having faith that things will work out will keep you calm and less stressed. I hope you find a good place to live soon.
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