testing

testing

why can't anything with results be posted? I'm so confused. please help me.

I have results and when I post anything, it doesn't go anywhere.

Hi Lostlymie!
It's possible that you aren't able to post your results because you need to have a 3rd party photo sharing site to share them from like tiny pic, photo bucket or similar.

What was the reference range for your equivocal Borrelia? Generally speaking, equivocal results mean you have been exposed, but your immune function isn't high enough to register a full positive result.

Bands 18 & 41 (whether in IgM or IgG) are indicative of the tail of the bacteria, which can cross react with other Spirochetal bacteria such as Relapsing Fever, Pintas and Yaws, and Syphilis.

Band 45 shows up when the person has Ehrlichia, which is an infection that can accompany Lyme, or can be picked up on it's own. Many of the symptoms are very similar to Lyme - but this doesn't mean you don't have Lyme as well.

If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more. And this is another good list of possible detoxing routines: www.tiredoflyme.com/detox-methods.html Detoxing for us is an incredibly important part of our healing.

Do you have a really good Lyme literate doctor that can help you heal yet? If not, we can likely be of help.
For information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.


​You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state (or province) and area that you would like to find a LLMD in and I will be happy to share the names I have.​


You can email the Tick-Borne Disease Alliance at [email protected]​ for LLMD referrals and you can go to ​tbdalliance.org​​ to learn more about these infections.


You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​​


ILADS has their own referral system as well:
ilads.org/ilads_media/physician-referral/

And a new resourcewww.LymeDoc.org


​ You will want to find a well trained doctor, not one that has self proclaimed themselves as a LLMD or an ID Doc (Infectious Disease Doctor), as ID docs believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:
www.lymenet.org/BurrGuide200810.pdf

attempting again, in short spurts. I don't think it likes long posts, at least for me.

My borrelia was 40, I thought I put that up there? Was there something else to look at with that number? That's all it had, 40, which means equivocal.

Lets try and see if this updated posted.

I actually don't have energy for anything other than just being calm... too excited exerts too much and rage is too tough to handle, so I just remain neutral. you wouldn't know I have lyme looking at me... I stay happy and optimistic at work, drag ass when I'm home.

Thank you for your kindness and feedback, you're wonderful. I think my posts are too long.

my range from Igenix says: <40 negative 40 equivocal = or >80 is positive

I saw an ND, wouldn't say he's a LLMD, don't see LLMD until mid September. I've tons of research.

I've never hear anything on the elichiea, can you help me to understand how to combat that? what's different? Or, how do they treat that? different antibiotics?

And this is the thing, I don't remember being bitten or having a bulls eye rash- EVER. Maybe I got this from my husband?

I haven't had him tested yet. How or what do people recommend on her about intercourse after infection? I am so lost, don't know what to do. I told my husband if he's positive, I want him tested, and treated before we have intercourse again?

My ND thinks I have anaplasmosis.... but I think both might fit? I've had low grade fevers since 2009... and they've worsened over time. I also had breast implants in- in 2009 and those are being removed next month. I haven't had any of the complications your mention above... besides some headaches and low grade fevers.. never go over 100, but my head feels hot. Biggest things are fatigue, low grade fever, headaches, creeky neck, joints suck, muscle aches and sort of achy all over... and lower back pain (not kidneys, lower than that). I've started on doxy and flagyll, no idea if it will work.

My diet is higher in fat, low carb, little to no sugar and I try to get at least 8 hours, possibly 9 hours of sleep.

Again, researched a bunch of stuff, including some new drink/mixture via Chinese herbs last night. I talk a lot of stuff right now... and I welcome any other advice on herbs that might help.

What are thoughts here on rife machines and the UVB blood irradiation? I will probably start buhner method, but want to first talk to my LLMD before I buy a rife machine.

Lostlymie so sorry you are going through this. Just wrapping your head around this can be a chore. Anyway, with reference to UVBI, I did that along with MAH IV ozone. I found it to be very helpful. I did 15 sessions and was doing very well, though I found that I could not tolerate more than 2 sessions a week. But I was doing other things as well. I will be doing the ozone treatments again shortly. Probably only once a week though.

You can use the search feature to search for "rife and Lyme" and "ozone and Lyme" if you want to immediately see what others have discussed about these subjects on the forum.

I would also like to add that I have had EBV for a few years, but recently did another panel back in May of last year. I found out I have HHV-6 and CMV as well. Not uncommon with lymies I hear. They are igg positive, but igm negative.

I want to get home and put down on paper all the research I've found and really just need help on where to start first.

I know I need to see my LLMD first too, but any recommendations on where I might start with some herbs? I have soverign silver, anise star, cordyceps and am working on getting the collidoial silver, should be here by next Monday or Tuesday.

I'm overwhelmed with all the information and the different protocols. It bothers me a lot that I don't know when I was exposed.... I feel like I'm fighting something that I don't really even knew I had, like just all of a sudden giving birth when you just found out you were pregnant 1 week before that.

It's like - ***?

Argh, frustrated and overwhelmed. ARe there others on here that have tried to do FMLA of sorts? I thought I posted that somewhere? Curious how to do that when docs don't believe you have lyme??? IF I need time off from work, how does that work? Do I just tell my doc I have chronic fatigue?

Thanks. I don't want to lie either, but I've already been to my employee health nurse - letting her know I have lyme. I need to go back and reverse that. Just tell her my info was inconclusive.

I really can't do anything or ask for time off until I hit the one year mark - which is in mid-November. I work to pay for my supplements and herbs and protocols, etc. I

What detox would you recommend traveler?

thanks Krimpet.