Feeling really bad. Need hope.

I've gone to ER, LLMD, and PCP all within the past two weeks. Feel that death is near; very scary time for me.

Here's the story:

Lyme diagnosis December 2014; CT showed a mass on my liver possible hemangioma. Symptoms were varicose veins, head pressure, easy bruising, thin skin, dark urine, Bell's Palsy, numbness and weak arms/legs, painful joints, loss of appetite and weight. I started on doxy and switched to mino. Then, I started treating myself with Buehner herbs as I couldn't afford the LLMD.

2015 I got a bit better, but still had issues. Sore throat, thrush, sternum pain and air hunger all points to Candida. Never treated fungal issues. Used Byron white formulas in Aug. 2015 and got rid of most Lyme symptoms by January.

February started vegan diet. High carb low fat and fungal issues persisted. March moved into moldy house and July tried parasite cleanse as I didn't discover the mold yet (sinus issues with blood since moving in; never had a bloody nose or sinus problem in my LIFE).

July and August sucked for me. When I got well from Lyme, I was diligently detoxing. I hadn't been detoxing for a YEAR up until now and I feel like I'm going to die from it.

Didn't make the connection to the house. Developed small lumps on thyroid, back of knee, and back. Very worried, so I got them checked. LLMD and PCP aren't worried, but I pushed for an ultrasound on the liver mass. Inconclusive, but points to a mass (already know), so I'm getting an MRI to confirm if it's a hemangioma- praying it's not cancer.

Moved into a friend's trailer and got night sweats and burning skin (mold). I went to the ER two Sundays ago for red blood in my stool. Took activated charcoal that evening and morning. Next evening the stool was tarry and black. Told my LLMD the next day at my appointment and she said its the charcoal.

LLMD appointment two Tuesdays ago:presented with a fever and 11 pound weight loss. Told me to go on a paleo diet, gave me mycoregen, told me to move out of trailer (I did, to boyfriend's house), told me to up my detoxing.

So far, I implemented sauna, GI detox supplements (clay and activated charcoal), takesumi supreme ginger and dandelion tea, milk thistle, digestive enzymes, and turmeric. Dry skin brushing and sauna. havent done detox bath, but will tonight. Started mycoregen 5 drops on the first day in the am and 5 in pm- BIG MISTAKE. LLMD didn't send me dosing instructions when I asked and I didn't wait. I also added sauerkraut and grass fed meat and eggs right away.


Feeling like this is either toxin overload or cancer- either way liver is shutting down. I have swollen legs, bruising, acid reflux, dark bubbly smelly urine, pale nails, white tongue, left shoulder pain (always had), back and kidney pain, sensitive skin (paper-like; easily cut and torn), head pressure and pain, fevers that come and go, swollen glands and lymph nodes, constipation, and extreme fatigue.

Is this a herx or am I dying of toxic poisoning or cancer? Everyone, please chime in with your stories- especially those who were near death. The ER can do nothing. Two weeks ago, they sent me home. What would they do now? We've all been through this merry go round. I am not mentally tough, so I need someone to tell me I'll make it.

I understand our bodies are resilient, but there's a point of no return. Please tell me that if I still have breath in my body, I have a chance. I am constantly emailing my LLMD. She said to do coffee enemas and that I need to detox and that I will be okay.

Please help me.

There are good fats and bad fats.

Cdavislyme it sounds to me like you need a plan on one step at a time. Trying to do everything at once will not work. Buhner says take your worst symptom and start on it.

I think because you said you have thrush you may have Candida and you might want to start on that first. Get your gut healthy. You can google candida diet.

I am so sorry you are having such a hard time. I have a mass on my liver and more frightening is the mass on my pancreas. I had to get it checked every 6 months but now after it being there for years, I just get it checked every 2 years unless I have any symptoms. My gastroenterologist says that I just like to grow things. LOL!

So not all masses are doom and gloom. Do not invite worry into your life.

I think you should read the first thread - New To Lyme? and on page 2 there is some great information about yeast/fungus.

I hope this is helpful.

It sounds very similar to what I went through with toxin overload when I was trying to use abx. I had to stop everything and allow my body to rest for a bit, then I started detoxing - slowly. You can't mobilize toxins faster than your body can get them out. Try working on detoxing more with the manual methods - dry skin brushing, Epsom salt soaks (I can only use the foot bath version or too many toxins are mobilized), coffee enemas, and such.

I had to do each thing cautiously and carefully each day, evaluating how things were going daily and adjusting to what my body could handle as I was without a doctor during this time (no one would take me on as a patient, and I knew going to the hospital would be a big mistake as they would have put me on steroids to stop/slow the inflammation).

I did use charcoal, but carefully. Funny thing - I used charcoal the other week due to the herx when I started using the biofilm buster. Well, I took too much, as the next day as even though I was constipated, my stool was mostly grainy like the charcoal!! LOL! So we need to use what our body can handle, and it sounds like you just used too high of a dose - so maybe lower the amount you take each time, but continue to use it cautiously???

I would encourage you to not do any "killing" therapies right now, and concentrate on detoxing and finding somewhat stable ground for your body before implementing anything else other than detox and support.

Hi Cdavis -

You sound MISERABLE. I'm so sorry you are struggling like this. But you're in the right place.

Great input has already been shared - agree with every word, particularly PeteZa's suggestion to break this down into a more manageable process. You really are making progress, it's just a nasty experience sometimes. But you are showing some VERY good signs - you are committed, doing the tough things, got out of the moldy environment (not easy), were able to advocate for more testing, and you started with your LLMD. These are NOT the actions of someone who is dying, I promise.

First - BREATHE. you have a lot going on but that is the classic picture of Lyme & co.

Second, what is your worst sx right now? Sounds to me like your kidneys are trying very hard to detox and that is why your LLMD continued to tell you to focus on that. Proper and sufficient detoxing takes considerable time and patience. You need to ge drinking a lot of water to help flush the toxins. Sounds like you've implemented other detox protocols that should also be very helpful!

Just remember to start slowly and don't overdo it, particularly soaks. Incorporate one variable at a time (duration, heat, volume, additives like Epsom salt/sea salt/hydrogen peroxide/essential oils, etc.)

It's also very important to maintain consistency with detoxing - your body will continue to produce toxins as long as you have these infections and yeast/fungal and mold issues and for as long as you're treating them. So detoxing is a critical part of healing.

I would suggest you try to increase the binder to twice/ day and make sure you are drinking as much water as you can and make sure you have good time buffers before/after the binders (1-2 hrs before, 2-3 hrs after). The blackness of BMs is caused by the charcoal itself. Keep using regularly.

Right now, nutrition is critical for your gut - avoid all grains, sugar and dairy for now. Dark green veggies is key. Try soups and broths at least once/day to give your digestion a rest.

Your other priorities probably need to be in this order:

1. Slow detoxing a bit and allow your body time to catch up with the hornet's nest you (successfully) kicked. Our bodies don't detox all that well sometimes and yours seems to be struggling with a backlog. Don't start baths until you feel a little relief.

2. Look into better ways to support your liver and kidneys - milk thistle seed is good but you might need to add burdock root or something else - do a search here. You might also benefit from putting everything on pause and doing a gentle and safe liver/kidney cleanse before moving forward.

3. Mold detoxing and yeast/fungus rebalancing - I think you can do both at same time but you are definitely going to need Rx antifungals and to advance to a cholestyramine binder. Talk with your LLMD about this ASAP so you can have the Rx on hand and ready to start once you have made good progress with detoxing better.

4. I would also investigate high viral loads - you may need to incorporate some antiviral mechanisms so that these loads aren't also overwhelming the immune system.

5. Only once you've made progress with the above is your body ready for Lyme & co tx.

6. Then I'd treat parasites..

Hope this is helpful - stay focused and connected with us...

-p

Post Edited (Pirouette) : 8/13/2016 1:06:58 PM (GMT-6)

Ascaris can block the liver duct ...i too feel close to death...i would up chlorellla as piro says will be good binder ...when is results back from liver absess?... consider rife as people have bounced back from stage 4 ....maybe its just a worm blocking bile ?....

I also have liver pain and developed more of the sore marble lumps in my bottom. Hopefully they are all Lyme nodules and not cancer! The cancer word freaks me out!

I have a cyst on my bum too..i think it is toxo or bart ..but i blame bart for everything

Cdavislyme, I am sooo sorry for your pain and suffering.

The others know a lot more than I do, and I can't address anything except the candida, which I have and have had forever. And I feel sure you have that. My LLMD says to get on an anti yeast, gluten-free diet of meat, fish, vegetables, apples, rice. And drink nothing but water or green tea. He also gives me anti yeast medication and anti fungals.

CDavis~I am so sorry you are agonizing. It sounds like your body went into extreme inflammation overdrive! So perhaps backing down on some of what you are taking. From what you describe it does sound like fungal issues (particularly if you were on abx for awhile) so perhaps a good pharm fungal is needed. Your doc should be able to help you sort this out, but if things truly get too horrid, get your doc on the horn & then do go to the ER.

As for your liver, it sounds like your detox things are good. But are the docs requesting a biopsy? The liver is a strong organ & can regenerate so hopefully yours has just been doing its job filtering out the bad stuff.

I had gone to an acupuncturist a few years ago (Chinese, trained both east & west). She told me the story of a couple that had come to her with just a wee baby who's liver was basically kaput. She described the baby having thin & very fragile skin like a baked potato that could burst & how she had to handle him so very gently. The doctors gave the baby many doses of steroids, & at that point they basically said they had done all they could to help & it was time for the parents to take the baby home & make plans for death. The acupuncturist worked every hour for a few days giving her special herbs & doing her thing....flash forward to now this is a grade school kid thriving & behaving like any healthy child.

Also for you to look back to 2015 when you were feeling better. Was there a certain drug combo that was helpful? And perhaps doing a strong (albeit approach slowly) pharmaceutical anti-fungal? Just remember you were on a positive path before & it can happen again. (((Gentle hugs for you)))

Simon Templar, aka The Saint -Loved the quote: "If it came from a plant, eat it; if it was made in a plant, don't." Our society is programmed re what decayed flesh is best, amount of protein, carbs...Most the virtues coming from the advertisers meat & dairy, yada, groups. And yet the food pyramid changes every few years. So the plant quote, I agree & listening to your body! Also loved your highly technical graph (this blows-haha!).

Cdavis~don't write yourself off yet. Seriously, the liver is an amazing organ--it can regenerate which is outstanding for the human body. My Mom had something in another part of her body that effected her liver. Her skin turned yellow & I was the only one saying, "Mom -your skin is yellow--you need help NOW!" Anyway, turns out her liver was fine, just working overtime for a problem elsewhere in her body I'll spare you from hearing. But the point is, she went on to live for many, many more years.

You, of course, want to analyze everything, but don't keep repeating the c word, as you don't know. I do think you need to back down on whatever the supplements are you are using & stick to mild liver teas (unless, of course, your doctor is monitoring you & sez otherwise!).

You were feeling better before so maybe those meds were of big help. And you have youth on your side. There are times, I know, when it seems so impossibly hellish & dismal, but you are young & smart & you can come out of this. Take some deep breaths, inhale saying, "I am healthy, I am happy." Repeat & keep saying this with deep concentrative breaths. Don't give up, k? You have your whole life ahead of you! x

Post Edited (happyjo) : 8/14/2016 9:42:18 AM (GMT-6)

There are a few things that have been proven to help the liver regenerate- the two that I know about are medical cannabis and turmeric - there's always hope!!

Are the whites of your eyes yellow? This would be a huge indicator that your liver is compromised (as well as the skin turning yellow) - but even this can be reversed, as the whites of my eyes have turned yellow twice now. That's when I stop all "killing" protocols and go to work double timing my detoxing. I literally do very little other than detoxing all day long until the whites of my eyes are back to being all white, plus a couple of weeks after that.

Considering the swelling is 'confined' to your legs, I would encourage you to find out if you have a blood clot (just to be safe) or assume that it's connected to these bacteria running around your body creating a ton of havoc. The inflammation alone is a major concern of many Lyme patients.

If it's cycling, then it is pointing towards Lyme and company - with the mold exposure.
I hope that's what you find out you are battling - that's bad enough!

Cdavislyme,

I watched my Dad die of cancer. I know what it is like for someone who is dying. The dying lose their will to live. You have NOT lost your will to live OR you would not be here. If you had liver cancer, a tumor would likely have encompassed your liver and spread to other body parts. It would not be small and cyst like. This too shall pass! Just keep holding on, keep standing strong. I'm praying for you.

The others are right. You need to detox, detox, detox. Drainers (for me, the Pekana detox and drainage kit) have really helped me with my leg swelling and pain. Also, I took Motrin, which really helped my leg pain. You have too much inflammation from Lyme & Co and very, very likely fungal issues, whether mold or Candida.

I agree with HappyJo about the inflammation. Traveler knows what she is talking about. This is not her first rodeo. :) Pirouette is also our resident fungal expert. She has great advice for you too. We have so many knowledgable people here to help you through this with the help from your LL doc.

You have too many toxins, which are only making you "feel like you're dying." As Krimpet said, you will feel better after you "consistently" detox and stay on top of them.

You are not alone. You are going to make it through this. You just have to keep fighting and keep trying. Don't give up-if one thing does not work, try something else. You will get through this. This too shall pass.

/youtu.be/tvFcTlI5tnc