Hi livingwithlyme!-
I am so sorry to hear that you are still suffering. (((Hugs!)))
I have issues with blackouts. I had seizures, but only twice. I don't get them as often as you do. This has to be so scary.
Are you just treating Lyme?
Have you been tested or treated for co-infections? Example: Bartonella and/or Babesia.
Have you considered testing or treating for: Mold, Metals, Candida? Pirouette (she is a Moderator here), has a great thread about
overgrowth of Candida in the "New to Lyme?... Start Here!" thread at the top of this forum. It is located on page 2.
Have you thought about
viruses? Here is a link:
www.healingwell.com/community/default.aspx?f=30&m=3618192Have you thought about
parasites? Here is a link:
www.healingwell.com/community/default.aspx?f=30&m=3675849 Here is another website that talks about
a person with Lyme disease and didn't heal until he got rid of the parasites. I can't make this a hyperlink. So you will have to copy and paste.
www.publichealthalert
.org/parasites-and-worms-the-new-lyme-disease-co-infection.html
All and any the things mentioned above can have a great impact on how we heal. A ticks saliva is very dirty. No one knows what animals it was attached to before it bit you.
I hope that you will please look more into the things that I mentioned above. Lyme disease is a giant puzzle.
Best Wishes!