Examples of pulsing

Gunna try 2 week, 1week cyst bust , 1 week off ..jemsek that girlie descibes ...i miss my gut flora ..need to knock back bart ..so idk if this is wise ..also gunna keep up bvt mwf

I'm pulsing now without the time off. And I'm wondering if that is a better approach

Girlie - how many days out of the month are pulsed and not pulsed under Dr J treatments ?

I can also answer the Dr. J question with personal knowledge. It may differ from what others have experienced so take it with a grain of salt.

When you start it appears to depend on the symptoms/severity. I've heard it can be 3 weeks on/1 week off or 2 weeks on/2 weeks off. For DS it was 3 weeks on/1 week off initially. The goal is to eventually get to 3 weeks off/1 week on and have no symptoms either on the off or on weeks. Also, they can mix it up depending on herxing or change the regimen if need be. They also try to confuse/tease out stuff with the breaks initially if I recall things correctly. It's a pretty dynamic process over time depending on how much the patient is improving, if there are set-backs etc. It's about managing herxing while healing. The first 6 months at least tend to be a challenge/painful for most.

DS is now at 2 weeks on/2 weeks off and will be trying 2 on/3 off later in his current cycle.

Hope this helps.

Well, at first it was a struggle and by the end of the week off he was asking when he could start up again! After a few months, that decreased.

At that time based on that and more info from him, his practitioner decided to move him to 2 weeks on/2 weeks off. That went pretty well from what I recall. At one point, he was on 1 abx daily but that caused too much herxing. He dropped back on that and now takes it M,W, F every week - no break. Otherwise everything else is dropped on his no meds weeks.

I'd have to look at my notes but I imagine he made it to 1.5 weeks before he asked if he could go back on abx. Now until mid-June, he was cyclical with day 20 flares, was sick a lot on and off abx etc but we would track daily how he was overall. He improved when he dropped back on that one abx (mino). Starting in late June he had a great rebound and felt the same on/off meds. (See my post under 1000Daisies question about heat/sun and feeling better yesterday). From what I can tell, most of Dr. J's patients have a rough time during the beginning months of treatment - it's just what happens with all the kill-off and each patient and the staff having to figure out what supplements/detoxing works.

We did recently learn that 3 weeks off is too much because he started feeling more tired at 2.5 weeks. He had an LLMD appointment and was at the end of the cycle so we did an extra week of no meds (except the 1 M/W/F one). He said he was fine at the mid-week LLMD appt but right after that got really tired.

Now with the new protocol he seems more tired as well but hard to tell with a teen. He's not Lyme tired, just tired from getting up for practice at 6:30am M-F.

Hope that helps. His reactions and tiredness levels really give us useful info. Now for my soapbox part - I so wish they would start actual research on patients who are pulsing. It is SO obvious that it is helping - slow but steady so far!