Anyone else work full time ?

Anyone else pop pills in am, commute to work, work a stressful job for 10 + hrs, commute back home, pop pills, eat dinner and go to bed?

I am gainfully employed but HAVE to keep working to keep income and actually, more importantly, health insurance.

I work fulltime. Unfortunately, working fulltime doesnt mean I work every day. I filed for FMLA and that was a tremendous help in saving my job. It allowed me to schedule doctors appointments and not receive disciplinary action for days where the symptoms were dibilitating. Working a fulltime job continues my insurance and contributions toward my pension, but on the other hand using FMLA, which doesnt pay if you have already exhausted your vacation which I did, guaranteed I wouldnt receive a full paycheck on weeks I used it. Eventually, I had to file bankruptcy. Im not proud of that, and actually beat myself up for even thinking about it. That just prolonged the inevitable and put me in a worse spot than I already was. It took a lot, but I love myself again and my decision to do so.

Ill continue to work fulltime unless a time comes when I can no longer do so. Being in my mid 40s, I hope that time doesnt come due to illness, but my desire to retire.

It's been 25 years since I've been able to hold a job. I only wish I could - even with the struggles I know you all must face. You do have my sympathies.

Yes, i realize I am lucky that I have someone to support me.

But - it's not enough - long story...but we need two incomes now...I was a stay-at-home mom for a good chunk of our married life...

Then a year after I started working (son was in high school) - husband lost his good paying job.

Then I got sick...and now he's working...but not enough money coming in.

We can catch up when I get better...as long as it doesn't go on for another three years...

It's so wrong....we shouldn't be having to deal with this on top of being sick.

I was a Kindergarten teacher but had to leave my job last year. I try to make a little extra by doing embroidery and monogramming. It has really been hard on us going from two incomes to one. I had to sell my vehicle along with other cut backs & we still barely make it. I am thankful that I am not working though. I don't think I could do it anyways. I can barely keep up with the house and our 3 kids.

I don't work :(

pmm73, so glad you posted that. Because I was feeling bad that I was able to still work when all of these people were having to quit their jobs.

But I realized, I don't have a choice. I am with you. Completely understand. I live alone and have to work 2-3 jobs just to survive. Trying to make ends meet. All the expensive medicine, food, etc. It's like a vicious cycle. We can't heal without medicine, but we can't get medicine without money. You can't get money without working, but then you can't heal because you're killing yourself trying to make ends meet. So exhausting!

I'm thankful for understanding bosses, but there comes a point where you just literally don't know how you can keep going. If you ever need to vent about it, email me.

Fronton, thanks for asking the question. It's such a struggle. You're not alone. That's literally my life.

Full time here. Thankfully, I've been there a long time. The hours of starting are flexible, so I can sleep in a little... But then we get home later. I have good days and bad days but somehow get there each day... My working out is negatory these days. I used to be an athlete in college, and I hate myself now. But I don't have any energy and fell crappy when I'm done with a workout... I try to remain positive that eventually I will get it all under control.

I understand what you are going through. I am a father of 4 and my wife stays at home with the kids. When I first got sick I was out for about a month with no pay but as restaurant managers don't make that much and I didn't have any disability insurance it was back to work.
Of course with everything I went through and am still fighting the disease hardcore it actually was a blessing because it allowed me to see what I am supposed to be doing following my love of medicine. Although many have called me crazy as myself and all four children are in treatment for Lyme's, I am back in school for premed to be able to help combat this disease and have changed jobs and am working full-time in a major hospital ER as a technician (although now my insurance covers our llmd😋 oh the little things in life)God has been good to our family.

One piece of advise that I was given was take the bad with the good. "Life is only 10percent what happens and 90percent what we make of it". Although at the time I thought they were crazy and thought to myself they really don't understand what this disease does to people. But I have started to learn albeit slowly that it can always be worse so therefore I am always having a great day! There are so many on here that have helped me get through some bad times I hope you find the same.

I work full-time, with a one-hour commute each way. It's a struggle, but I don't have much of a choice. I usually come home and crash. I can't really afford not to work, but I really do think I'd get better faster if I could stay home for a while. I realize I'm lucky I've been able to manage it, and that I've got understanding bosses and coworkers. Sometimes it's been only a matter of sheer stubbornness.

Yup, it is a vicious cycle. Must work to continue treatment, but work slows treatment progress.

It is very sad we are slaves to labor and money.

How I wish I quit working before I had Lyme and lived my life.

I'm working full time, but when I started treatment in March 2010 I reduced work week to 4 days T W T F
to have Monday off for appointments, labs and chores, or just rest. Normal work day is leave at 6am and get home at 6pm with 45 to min commute.

Normally I popped pills before work, took more at noon, then again at 6pm. Sometime morning nausea was so bad I threw-up on way to work.

Then I was on IV for 16 months and I infused before work and again home at night. Nurse would do dressing changes at my home on Monday. I started to see some improvements and boss noticed a loss in sales without me there every day so back full time, even on on IV. The funny part was the last 3 months I was on IV Doxy with an infusion ball that took an hour. I would hook up and infuse on way in to work.
Nurse would come to my office on Monday to change dressing...

Life was good to be back at 100% pay again.

I work 32 hrs. a week. I also take odd jobs. It isn't enough for my needs - been spending savings. Put my student loans on deferral, and now go to a local agency to get free veggies. It is really humbling, and embarrassing, but either I get the medical attention and don't eat.. or, scrounge for free food. I've always prided myself in doing what I can to take care of myself since I was booted out of the house at 19. Put myself through school... I am very fortunate that my employers are so supportive, and caring of me. I was off 2 months for the brain aneurysm repair, and focused on lyme treatment and rested, rested, rested. your schedule sounds insane!