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Normal healing process for lyme?

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Posted 9/6/2016 3:23 PM (GMT 0)
I am feeling abnormally tired. I did get up very early this morning for the first day of school stuff. I feel like I'm in a fog with this blah feeling. Also tired and unmotivated. It's also gray and cloudy out. Just wondering if this is normal healing process or if I now have CFS/EBV or something. Getting updated blood test results soon so should know more. Thanks.
Posted 9/6/2016 3:35 PM (GMT 0)
Huddie, I can't speak for everyone of course, but for me this is a pretty common occurence. It has gotten better with treatment but I still have 1 or 2 days a week like that.

I would suggest some extra detoxing.
idea
Posted 9/6/2016 3:38 PM (GMT 0)
Denikeef,

Thanks. I will up the detox this week and I'm also starting new herbs since I couldn't tolerate the last one. I didn't do as much detox over the weekend so that may have a lot to do with it, hadn't connected the two. Thanks. Glad to know it may be my new normal. I'm grateful because I'm so much better than two months ago but I was hoping for a lot more. Guess it is a long process. Thank you.
Posted 9/6/2016 3:52 PM (GMT 0)
I honestly think there were a couple of months where all I did was sleep. I would get up and see hubby off to work. I would eat, herbs, potty and lay down. I would fall back to sleep. Lunch was quick and more herbs and back to sleep. Hubby would get home and there I would be asleep again. Dinner, herbs and off to bed.

I never got rid of sleep marks on my skin because all I did was sleep.

I know my body and sleep is my number one recoup thing. I heal best when I sleep. It is like all the rest of me needs to be shut off so I can heal. I have been this way for years pre-lyme.

I just go with it and do what my body says to do.... Lay down and sleep.
Posted 9/6/2016 3:55 PM (GMT 0)
Peteza,

Hi. How long did it take you to heal? I don't nap and I don't even try to sleep. I try to do stuff that needs to be done but feel exhausted. I may try and nap and see how I do. I have never been a napper as they usually then keep me from falling asleep at night. Thanks!
Posted 9/6/2016 3:59 PM (GMT 0)
Okay, PeteZa, now you've got me jealous!! LOL! I WISH I could sleep when I need it, but these darned adrenals have a mind of their own.

I do agree with PeteZa and Denikeef though. Try a nap - and even if the first one doesn't go so well, pick another day and try again. Even resting for 20 minutes in a dark room with my eyes shut and my mind being still will help me get through the day.

Unless I'm seriously sleep deprived though, only one hour of sleep in the day or I feel a lot worse, so do watch for that as well. Some have it happen and some don't.
Posted 9/6/2016 4:08 PM (GMT 0)
Thanks Trav,

I just checked the allergy forecast and it's a high pollen day in NYC so that is definitely adding to the fatigue. Whew. I will shower, do the paperwork I need to get done and close my eyes for an hour. Thanks.
Posted 9/6/2016 4:21 PM (GMT 0)
Ugh, same here - very high for weed allergies! Good thing I'm inside with the AC on today!!

Best of luck with your rest, Huddie!!! I hope it helps. I'll likely be doing the same thing in just a little bit!
Posted 9/7/2016 12:29 AM (GMT 0)
Have your doctor check your ferritin levels too. I'm a year into treatment now (lyme, bart, and babesia) and my fatigue has been getting worse instead of better. My doctor checked my ferritin on my latest labs and found that it was super low. I'm hoping with iron supplements, my energy will improve.

It is so frustrating because when I was first diagnosed, I had no symptoms other than a rash (it took 3 doctors, 6 weeks, and luckily a positive CDC test to diagnose lyme). I actually felt fine at the time of my diagnosis. We started treatment and I just feel like I've been getting worse ever since. I'm hopeful that it will all turn around soon.

Post Edited (kcarlile) : 9/6/2016 10:48:09 PM (GMT-6)

Posted 9/7/2016 1:11 AM (GMT 0)
Listening and caring... I too wonder how long the fatigue goes on. Good feedback y'all.
Posted 9/7/2016 3:43 AM (GMT 0)
That's a good point. With Iron testing you need ferritin, serum iron, % saturation, and TIBC. High serum iron and low ferritin can point to MTHR.

My ferritin is super low, and we're saying it's probably because of Babesia, heavy metals, or combination of both. I understand the constant, intense fatigue.
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