LLMD booked for months, need advice meanwhile

Hi Olesver!
Welcome to our community! I'm so glad you found us!

You're right! We are not doctors, but have walked this same road as you are now on, so we can sure share our own experiences and what we have learned!! It's up to you to make sure that you are using safe protocols and amounts.

If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more. And this is another good list of possible detoxing routines: www.tiredoflyme.com/detox-methods.html

As for your test results, here is the site that I use to help interpret them:www.oocities.org/hotsprings/oasis/6455/western-blot.txt You can go there to find supporting Pubmed articles showing what these bands represent.

An IgM result means that you have an active infection. It once was thought to mean an 'early' infection, but has since been revised. IgG means that the infection is at a later stage.

The more +'s you have beside a number, the stronger the reaction.

IND means indeterminate - not negative, but not quite strong enough to be "fully positive". But it means that you reacted on those bands and should be considered, especially when they are Lyme specific bands.

A "Lyme specific band" means specific for Borrelia Burgdorferi, sensu stricto - Lyme disease in the strictest sense. There are only two on the over 300 known strains of Lyme that is considered Bb, ss. Borrelia burgdorferi and Borrelia mayonii. Nothing else will turn a Lyme specific band positive other than Lyme disease - - even though there are over 100 different strains of Borrelia in the US that cause human illness.

Bands 18 & 41 (whether in IgM or IgG) are indicative of the tail of the bacteria, which can cross react with other Spirochetal bacteria such as Relapsing Fever, Pintas and Yaws, and Syphilis.

Olesver,

Sorry you have lyme. You have come to the right place. This board has helped so much.

Trav, you are so impressive in your knowledge of Lyme.

Traveler said...
Hi Olesver!
If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections

Thanks! Thats where I've started a month ago when I've started to suspect the infection. You and this forum are the well/th of information!

Traveler said...
As for your test results, here is the site that I use to help interpret them:www.oocities.org/hotsprings/oasis/6455/western-blot.txt You can go there to find supporting Pubmed articles showing what these bands represent.

Wow, that's really involved. Need to wait for a clear day to absorb all the info.

Traveler said...

So you can see that you have reacted on several Lyme specific bands - that can't happen if you don't have Lyme disease.

I wonder why IGeneX marked me as Negative on the Blot, from what I've read they are quite aggressive.

Traveler said...

But don't forget detoxing!! It's a vital part of our healing!!

My approach to detoxing is a lot of water, sweating during daily exercise/sauna and Epsom salt baths. (very similar to what you do when fasting by the way) plus a lot of home fermented fiber and kombucha.

Looks like what I need to add is a scale to precisely measure the herbs and start journaling the journey.

Igenex, I'm sure in order to continue not being harassed, follows the "accepted" bands to indicate when a person has Lyme and when they don't. It's only because of those that are willing to go outside these guidelines and look at hard scientific studies that we know any different.

Manga of us find we need to do more detoxing than what you have planned. I would encourage you to take a look at the resources I posted previously to find some easy ones (like dry skin brushing and other things) to add in to your detoxing routines.

Hopefully, I'm not repeating information that you already know. As the bacteria die from Lyme and from Bartonella and Candida, release toxins that our bodies will store in our tissues, if our body can't process them out quickly enough. When our tissues are either too ful, or too many toxins are "released" from the tissues all at once, our blood stream becomes too full of these toxins and we experience herxing. There are gene mutations that some have that can also really make detoxing effectively very difficult.

You want to avoid severe herxing, as this can lead to a life threatening situation due to massive inflammation/cytokine cascade that can happen.

Ha ha ha, artermix! You can go to that same link I posted and learn what I did too!! That's the beauty of this, it's just information that I dug up and then verified with the links that were already provided on that site!

But Buhner also emphases that abx alone will not help us heal. I don't believe that's true for every person, as some do heal with abx alone, but I believe that their infections are caught early enough to not have a lot of complicating issues arise either.

There are those that have healed long standing chronic tick-borne infections with abx alone, but they are in the minority. Most need to use supportive therapies as well.