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Posted 9/19/2016 10:39 PM (GMT 0)
Wondering if there are any in here. Wondering if anyone has been successful in getting disability of sorts. Worried treatment may take longer than 6 months add I've had lyme for decades. Worred I'm going to get too sick to work. Haven't started yet and was just diagnosed so I'm new to everything and don't know what to expect.
Posted 9/19/2016 10:41 PM (GMT 0)
I'm BC, Canadian.

I didn't even bother trying for disability. I didn't test CDC positive even with Igenex. Just Igenex positive.

Your best shot at it is with another diagnosis. Have you been diagnosed with anything? Fibromyalgia...or something else?

Are you doing antibiotic or herbal treatment?
Posted 9/19/2016 11:18 PM (GMT 0)
Not a Canadian - but just want to send you a big jolt of positive energy. If you are working now, and start treatment, my guess is you'll continue to be able to work. Once treatment starts you may feel a bit worse, but then things feel better after a few months. Do you have a LLMD or are you trying to figure this out on your own?
Posted 9/19/2016 11:28 PM (GMT 0)
Jampee78: I'm Canadian. Good luck in getting disability. You can try different diagnoses or emphasize your symptoms that are debilitating. Feel free to email me further if you have any questions.
Posted 9/19/2016 11:40 PM (GMT 0)
I've been diagnosed worth vasculitis but have never been able to get disability even with that.
I'm seeing a naturopath who is lyme literate and an internal medicine specialist who is as well.
I work 3 days a well but struggle so hard to do so. I would do anything to be able to not work. It's rough.
I'll be doing antibiotic treatment soon. What did cdc positive mean? I'm so new and looking at my test results from Igenix looks like another language
Posted 9/19/2016 11:59 PM (GMT 0)
So the top of the Igenex report is an explanation about the testing, and the bands.

Then further down are the results.

You will see

IGENEX IGM RESULT POSITIVE (OR NEGATIVE OR INDETERMINATE - depending on your results
CDC/NYS RESULT POSITIVE (OR NEGATIVE OR INDETERMINATE)

under that is the bands listed with each one either being + - or IND

The same information is on Page 2 for the IGG results


So, if it says CDC with POSITIVE - then you're CDC positive. (Centre for Disease Control)

BUT - since this is a private lab in the U.S. - it may not even be considered when applying for disability.

Did you ever do the Canadian test for Lyme? If so, and it comes back as CDC positive - you could have a chance at disability for lyme.
But, they use the IFA screening...which eliminates a lot of us even getting a WB done.
(My IFA was negative, so they didn't do the WB - part of the 2-tiered testing approach that Canada uses)
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