No bands reactive on last Lyme test... now what?

artermix said...
Girlie, because all those people I know stopped abx based on what their lyme test results after months of treatment. Because this is how many doctors are treating lyme around here. Some LLMD do treat it this way as well. I am not saying is right or wrong I am just saying that is just how these people have been treated for lyme disease.

oh, okay - they stopped abx based on their lyme test results...yikes....

huddie......did I notice a difference? No. except that the spirochete bit me right on on my knee where I have scar tissue so that is how I begun to have weird symptoms --limited to right knee area--. It was never a de-abilitating pain, just light discomfort. I thought it was because I had been doing more sedentary life and less running...lol

The second time I was treated it asap....so you want to assume that infection was removed right?
But there are people treated asap that still have a spreading of the infection. I do not think anybody knows exactly the load of bacteria each tick carry....
It would help tremendously to analyze the ticks and give treatment based on the finding of that tick.....of course prior to analysis still give few rounds of doxy.

Trusting doctors is why I ended up going 37 years before being properly diagnosed and then it took me another 3 years to find a treatment I could tolerate......

I stopped trusting doctors a long time ago, and my health has improved. They are just humans like you and me and have bad days and days where their brain is not "all in" as well. I go to them still occasionally, but always double check their information before I do anything.

Well....my LLMD does. He also takes insurance. The insurance has requirements. As I said many times it is all about the politics of lyme and getting the insurance to pay for it, for that you need the CDC testing.
I am debating if I should even go to my LLMD or not anymore.

And the stress comes from not knowing the truth. So i'm like a pinball bouncing back and forth over here.

Here's a perfect way to describe how I feel:

I'm sitting at my desk, working. I hear a noise. I turn my head to right. I get a sense of pressure in my eyes and head like I'm going to fall over. BUT I DON'T FALL OVER. It's a split second thing but it always happens when I look around.

That's what I was on. Mino, Tindy, and Azith. All 3 boom boom boom... whew lol

Mino made me dizzy and lots of top head pressure.

What I feel now is weird eye pressure

Then again I work on the computer 8+ hours a day. So maybe it's that? lol

You could also check to see if you are just having troubles refocusing your eyes once you look away from the computer screen. Try not turning your head, but looking away from the computer screen and focus on something nearby. I have issues with this from time to time and it makes me feel dizzy and makes my eyes feel sore sometimes.

Well, let me ask you, what do you think may be driving your anxiety? Is it the not knowing, or is it something that is just happening to your body?

That's a hard one to deal with. Try to shut out all that you cannot verify as truths is about all you can do. It lead me to do all kinds of research on my own, which lead to my own healing and my being able to help more people, so it wasn't such a bad thing - but it's miserable to be in the position you are in!

So do I. I discovered I'm prone to anxiety as well, then with Lyme it can really get out of hand if I'm not careful. I used to have to use quite a large dose of Xanax when it was at it's worst, just in order to get through each day.

I would encourage you to talk to your doctor about possible treatment options for you.

Jim remission is determined by three months symptom free on antibiotics. Then many switch to herbs for a while then nothing at all. Any symptoms coming back means you need the antibiotixs longer is all.
Dr. Burrascano says he has often found that if a persons CD-57 is below a certain score with stopping antibiotics that relapse is highly likely. He says once you pass the three yr mark with no relapse remission is likely very long term.

jennydancingfish said...
Jim remission is determined by three months symptom free on antibiotics. Then many switch to herbs for a while then nothing at all. Any symptoms coming back means you need the antibiotixs longer is all.
Dr. Burrascano says he has often found that if a persons CD-57 is below a certain score with stopping antibiotics that relapse is highly likely. He says once you pass the three yr mark with no relapse remission is likely very long term.

You have to be symptom free OFF the antibiotics before you can claim you're in remission.