Posted 10/3/2016 11:23 AM (GMT 0)
Sam12
I am so sorry to hear this!! Please keep fighting! Don't let those stupid bacteria win.
We are all here for you!!! ;)
This forum is my only support. Friends and family don't get it and don't care. Probably most of us have been there too.
I have often heard that ending it all is the most selfish thing you can do. But in my very dark days and months, I thought it was actually pretty selfless. That way I wouldn't be spending all my husbands hard earned money on treatment, tests, Drs, etc. My husband won't have to be my care taker anymore, chauffeur, grocery shopper, nurse. He can live a life that he TOO envisioned for himself, not this one. I want that SO bad for him. Lyme has taken everything from us. My ability to have children, our finances, our vacations, my ability to work, function, and so on. Having to cancel plans 90% of the time. I so often struggle with my purpose in life. Like how can I be making a difference sitting on the couch all day with my dog? But he told me that this has made him appreciate life so much more and not to worry about the frivolous, small stuff. It is so hard on those we love too. It just doesn't seem fair to them and that makes us feel guilty too on top of everything else! We all here understand that! But when good days come, and they do!, they mean so much more and have a vibrancy to them that I don't think others who haven't been through this can truly grasp.
I don't know if you are religious or spiritual, but I believe that there is a purpose in our suffering. We may never know what it is. And that is the hard part. But it's ok too. Maybe it is to show others grace and empathy in trials, or how to suffer "well", or to keep us humble and grateful for the small blessings and steadfast friends and people in our life. Or to be an example of strength, bravery, courage, optimism, or endurance to others. Or to help others who are going through hard times. Instead of empty words, we KNOW what they need. There is a deepness in our ability to understand others hardships because we have been there. And I think that is a pretty cool thing!
But like others have said, this our new normal for now. Not forever! And it stinks because it's not so visible as say an obvious disability, so that makes us feel more isolated too. I was crying in my LLMD's office, lamenting the life I used to have. He is nice but not a great bedside manner. He said, "Stop analyzing everything. Just live." And I said, "Well this isn't living! " He said, "Would you say that about someone in a wheelchair? That they aren't living? You are doing all you need to be doing, and just try to enjoy new things with a different perspective ." I was so angry at him for reprimanding me, but after I thought about for a couple days, I realized he was right. And am thankful for that.
This is the hand we've been dealt for now. And there are big huge bumps in the road. But we have to stay the course! And just think how awesome it will be to be on the other side of it! We will surely have an appreciation for life that most of the world will never get. Like a gift. :) I think any chronically ill person can understand that, not just Lymies.
Praying for you and giving you a big hug right now.
Go, fight, win!!!