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How to know if you are getting better?

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Posted 10/4/2016 1:48 AM (GMT 0)
It sounds like a dumb question, "How to know if you are feeling better?" but for those with Lyme I'm sure that question has gone through your minds numerous times.

I have some good days, maybe three in a row if I'm lucky, then I tend to go back to feeling poorly. Does this mean I am making progress with treatment? Or is it just Lyme in its cyclical nature?

I can say that since I have started Herbals, the intensity of my pain has been decreased to a lower number. But I still deal with fatigue in the afternoon, sore muscles, and sometimes joint pain (not as much though which I am thankful for).

Do you think this means I am getting some where?

Thoughts on this would be appreciated, and share your experiences too if you can.

Thanks.

Posted 10/4/2016 2:07 AM (GMT 0)
Eviangel,

I just posted a very similar question. I also want to know this. How long have people been sick. Do they get sicker from the herbals before they get better? How do they know when they are better.

So confusing! I have been feeling better since herbs too but I know I have a lot more herbs to get in me and a lot more healing to do. It's like a prison sentence but no one is telling us how long we're in for. And are we going to end up in solitary or will most of our time be spent in the community room, which is doable?

Feel good!
Posted 10/4/2016 2:13 AM (GMT 0)
good thread and topic Evianangel
My take is that more days of feeling good will overlaps but we should expect the relapses. We are eventually going to develop post traumatic fear syndrome from this yo yo....lol
Posted 10/4/2016 2:36 AM (GMT 0)
If you were feeling poorly every day before treatment...or in the beginning of treatment, and now you're having 3 good days in a row...that sounds like improvement...getting better...to me.


For me there are a few ways to signify I'm getting better:
1) symptoms going away (losing symptoms on my symptom list)

2) more good days than before.

3) when I have bad days...the flares subside sooner than they did before.
Posted 10/4/2016 2:50 AM (GMT 0)
For me it was exactly like Girlie says. Symptoms dropped off my journal slow and very sneakily. Sometimes I did not notice that they were gone.

I would have more good days in a row.

Then it was I was having a whole week!!! Then it was a month and I held my breath.

And here I am almost 7 months and I still have a little shell shock. Anything close to a lyme symptom and I stop dead in my tracks and really try to feel it. It certainly is post traumatic stress but I am getting better and not thinking of lyme all day and night.
Posted 10/4/2016 2:54 AM (GMT 0)
It is crazy. I would have thought I was not making any progress at all after being on abx for a while but due to the fact that people on here insisted that I keep track of symptoms I looked back one day and said hmmm my shoulder hasnt hurt in a while. I then went back to look and there were a number of things that I was not experiencing any more but because I was still feeling poorly I never would have noticed that things were slowly disappearing on me.
So keep close track of what has been your symptoms because progress to me is symptoms leaving however small it may seem. This isn't your normal bug and a couple of weeks on abx will not take it all away as much as we may wish.

Hang in there.
Nick
Posted 10/4/2016 3:18 AM (GMT 0)
Same here. Symptoms dropped off slowly but surely over the last two years. I still walk like a drunken sailor at times so my cane remains my friend. I wasn't always aware of why my symptoms were abating. But I always knew why they flared. (Sugar especially.) My main protocol is nutrition based at the moment. I'm off antibiotics and using up my supplements and not replacing them. My main focus is my microbiome health. I am trying to equip my body with the tools to hopefully round up, zap and mop up any lingering bacteria. I am trying to learn as much as possible about biofilm busters. When I have a bad day, I refer to it as a healing crisis. When I lie in bed at night I imagine Pac Man searching out and gobbling up Pete the Spirochete. Whatever works.
Posted 10/4/2016 3:26 AM (GMT 0)
I know I am getting better when I find myself dancing in the house to a song I really like (you know-like break it down really quick lol ;-). Really though...thats one of the things my "old self" used to do and thats how you know your on your way to seeing the light at the end of the tunnel. Its when you start seeing small glimpses here and there of your old self come back.

Unfortunately, it does get worse before it gets better like everyone always says. In fact, it can be a downright body going nutso emotional rollercoaster that other non-lyme people could never understand....but the bottom line is, our lives are worth fighting for and thankfully there is hope for getting our lives back through self perseverance and treatment.

Btw, I am not healed yet and I dont like to 'jinx' things...but I have faith that it will be coming. The Lord has never let me down before and he's not gonna start now.


-Courtney
Posted 10/4/2016 12:24 PM (GMT 0)
Orchid love that you dance around the house. I do that too and feel 'normal', Peteza, good points - we all hope to end up like you - swimming and biking. Artemix -lol on post traumatic fear!
Posted 10/4/2016 12:31 PM (GMT 0)
I think that the best way to judge if you feel better or not is to look at your symptoms - if some of them is gone, or is less severe, or less time after a flare
Posted 10/4/2016 12:57 PM (GMT 0)
Daisies,

I'm sorry Fall brings regression for them. I have heard seasonal changes do that. What is CD57 and C4A? I still the Lymsauraus. Whatever they are I'm sorry the numbers aren't moving in the right directions. I know they have the best mom in the entire world for healing this disease. I honestly am in awe of the fact that you and your three kids are all healing lyme. You are a saint.
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