Huge improvement, but not wracked with body pain. Insight?

Hello!

I'd love a little insight, advice or solidarity. I have been seeing slow but steady improvement. I began Abx in January, along with every alternative therapy I could afford, big diet and lifestyle changes, all the good stuff.

(Boy, it's so hard to make this concise!)

Now, after 10 months of improvement, I suddenly find myself wracked in nearly intolerable physical pain. The pain is in my joints- even reaching and tapping an elevator button with my finger will make my elbow scream out in pain- and deep bone/muscle pain as if my whole body were one big bruise. I explain it like this- 'it feels as if I ran a marathon yesterday without a day's training.'

What confuses me, is that even with all my symptoms, up until now I did not have this sort of pain and I could always do some form of exercise. I always did yoga, walked, swam, hiked, did pull-ups even while dreadfully sick with neuro-lyme. It took me much longer to recover but I could still do it, and doing it kept me from going crazy.

Why now? Why when the infection was getting so much better? No other symptoms have returned. Was it because I got overconfident, and went on a one week press trip to Nebraska (I'm a travel writer, I thought I could return to work, I was wrong.) That one week of moderate discomfort (airplane travel, falling off diet, moderate stress) could send me into this acute of a tailspin?

And what in the world can I do to make it better? Exercise anyway ( fight through the pain) or try and remain completely still?? Any supplements, dietary recommendations for this type of symptom? Thank you all so much. I hope everyone has a happy and peaceful week.

I'm wondering if a co-infection is rearing it's head?

Are you doing enough to detox?

For pain, have you tried curcumin and/or boswelia?

Did the pain come when you got to your parents house? If it did is it possible that they have mold and the pain is a mold/fungal reaction?

I don't know if my situation applies to you but the first time I had lyme, it was mostly neuro. I treated for about 5 months and then started to have a kind of torturous bone pain that made me think I was going to pass out.. Thankfully, it went away after a few weeks but it was horrific.

I went to my first appointment with my relapse lyme doc. As he was going over the bloodwork, he asked me three or four times if I had much joint or muscle pain. It was kind of annoying because I answered no each time. It was like he was trying to get me to say yes.

Turns out I had a marker in my inflammation profile that usually shows in lyme when there is a lot of joint or muscle pain (can't remember which). I think that it is the Cd4.. He said well the pain will probably show up after we treat this for a while. Kind of makes me not too excited about what might be down the road.

Don't know if this helps. Its just what he expects......

My naturopath says the joints and muscles are the last place to heal...I'm having excruciating right hip pain all of a sudden and I've been feeling quite normal the past 2 weeks. Really stinks, sorry you are in pain too.

It could have been all of the above - you are having more issues because of all the changes you experienced while being away from home, but the underlying cause is most likely that you have "uncovered" another infection.

Many people will "suddenly" begin to experience symptoms of a different infection as they begin to heal. We usually say it's like pedaling an onion - as one layer of infection is dealt with, the next infection is "revealed". It's believed that this is due to differing bacterial loads in the body, so as you treat the infection with the highest bacterial load, those symptoms reduce until another infection's bacterial load "suddenly" becomes the higher one, and you "suddenly" have those symptoms as prominent symptoms.

And I would agree that it sounds like either Bartonella or Neurological Lyme that you are now dealing with.

I would encourage you to return to your detoxing, dietary and other healing routines, and investigate the possibility of it being a different infection showing it's ugly little head.

Lions mane is supposed to be pretty good for healing the myelin sheath of the nerves.