Will my CNS ever calm down?

I can literally feel my nerves jumping around in my body. I am pretty sure that is what it is. It is a very uncomfortable feeling. Anyone have this and did it go away with treatment? Anything I can do to calm it down. Have been detoxing like crazy. I have only been on abx for 1 month.

Anyone the L-theanine with good results? How much did you tKe and how often.

Bvt , iv magnesium and chinese cats claw has helped ...royal jelly ,higj dose efa biotin and wahls to repair nerves

after how long time it wet away Girlie? Are you still in therapy? I see your sig says all the atbs you were on

Girlie said...
By jumping around ..... do you mean fasciculations? (Muscle twitches)

I tried L- theanine, magnesium, GABA, and others (would have to check my notes).

I don't know if it is the same thing. It isn't noticeable on the outside, but I can feel this jumping around on the inside.

I hope it goes away with more and more treatment. I go to the doctor on Thursday to discuss the next steps.

Girlie said...
Some of the twitches could not be seen - it felt like popcorn under the skin

 

That is an interesting way to put it. I have to keep telling myself it is the darn critters fighting and not anxiety. Unfortunately I was told I had anxiety long before the dx and now I am retraining my brain to not accept that it is anxiety, but a true physical manifestations. My thoughts are not anxious, my body just thinks it is. Does that make sense??

Traveler said...
It makes a lot of sense to me! My body responded with serious anxiety attacks for a while - it always started in my body long before it got to my brain.

 

Traveler, Are you now past all the anxiety? Was it a matter of waiting for the treatment to kill off enough of the bacteria?

 

I kept telling doctors that I wasn't anxious, but my body was responding in a odd way. They thought I was just in anxiety denial! UGH! Now I am in the process of tapering off Xanax, which never did much for me.

Traveler said...
I am now past the worst of my anxiety. It hit an all time high back in late 2007, when I was doing abx without detoxing (no one understood the importance of this back then). Xanax didn't touch my anxiety, and I was using a fairly large dose for my body size.

And you're right, it was effective treatment and good detoxing that got me past it. I can now control my anxiety easily with Avena sativa twice daily.

I would encourage you to keep trying to find ways to help you with the anxiety your body feels, as it will help you feel more like yourself while you are waiting for the treatments to get to a point where they are helping with this.

How did you get off the Xanax? Did you just do a slow taper? Did you take any supplements to help with getting off of it? I started at 2.5 mg at one time and I am almost to .625 mg. I also tapered off various anti-depressants during the time I have have been decreasing the Xanax. I HATE being on the drug, but I also don't want to cause more damage to my brain and body by decreasing it too quickly.

I love how doctor's are quick with the prescription pad for these drugs, but have no idea how to get you off of them. UGH! I know for some, they are a life saver, but they have not done much for me but cause more anxiety because of the feeling of being a slave to them. UGH!! Sorry for the vent!

Traveler said...
I was on 0.5 mgs three times a day, so Xanax was not horribly addictive for me, so a slow taper worked well for me. If you can taper down as far as you can, then you can start something that will help with your anxiety as you continue to taper down the Xanax, it might work out well for you.

I was heavily addicted to Trazodone though (for sleep), and that was a bear to get off of for me. I had to do a very slow tapering dose down from 900 mgs and managed to get to about 12 - 15 mgs on my own, but had to go to Ambein for a few weeks, then I was able to taper that down and replace it with tryptophan - and it's working well for me now.

I am hoping I don't need anything for anxiety as I taper down from the Xanax. I am experimenting with L-theanine during the taper. I also have Kavinance if I need it. I rarely have needed to take it though.

I was on 50 mg of Trazodone and slowly tapered off of it. I didn't have any problems with it. It never helped me sleep, but that was long before I had a Lyme dx.

I have not tried tryptophan.

I have read that some people really do much better the lower they get on a benzo because the therapeutic level is now longer there and coming off isn't to bad. I hope I am in that camp!!

Sissy63, my LLMD has me on L-theanine 200mg 3X per day for depression and anxiety. I'm also on other stuff and something has seemed to help a but it's hard to say exactly what. Couldn't hurt to try it.

dacarte3 said...
With treatment and time my muscle twitching has greatly reduced (90-95%), my anxiety and insomnia went away, my tremors went away, the body buzzing/zap feeling thingy (don't know what you call that) went away.

So yes you can get your CNS back in order and healed, it doesn't have to be a permanent thing.

This is encouraging! I never had anxiety until all of the sudden one day it was there and has been dipilitating at times.

Sissy63 said...

dacarte3 said...
With treatment and time my muscle twitching has greatly reduced (90-95%), my anxiety and insomnia went away, my tremors went away, the body buzzing/zap feeling thingy (don't know what you call that) went away.

So yes you can get your CNS back in order and healed, it doesn't have to be a permanent thing.

This is encouraging! I never had anxiety until all of the sudden one day it was there and has been dipilitating at times.

Yes. You are fine one minute and then all of sudden a rush of anxiety, heavy breathing. When that happened I would just lie down, listen to some meditation, and breath and let it pass.

I had tremors, too, astroman. That symptom came on at the same time as the leg weakness.

I stopped driving for awhile...I was sitting in my car at a red light...and my leg was starting to shake - I got worried that I wouldn't be able to keep the brake pedal depressed long enough for the light to turn green.

I also had tremors in my hands - mostly my left hand. That was when I thought maybe I had Parkinson's disease...

At one point or another I thought I had Parkinson's disease, MS, or ALS. Those are horrible memories.

After diagnosis, a friend of mine gave me the Michael J.Fox book to read...and I couldn't even look at it without crying. There was no way I wanted to read it... she thought it might be inspirational...but ...nope.