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Vestibular Therapy?

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Lyme Disease
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Posted 10/26/2016 2:31 PM (GMT 0)
So I had my phone appointment on Monday. My doctor feels things are going well and that my remaining issues could be resolved with vestibular therapy. Anyone ever do this? I'm scared of any kind of therapy as I've read that it could make things worse. Of course, people generally tend to post the worst things possible online.

He's not fully confident that the imbalance issues lingering are actually from Lyme but if they are he feels they could be damage done by Lyme and/or meds.

I know, posting here instead of listening to my doctor seems foolish but I'm just confused by it all. I'm trying to hold faith that maybe the Lyme and Co's are at bay and this is all I need. Sadly, my luck is generally that when I try to do something right I make things worse.

Just curious is anyone has any experience.
Posted 10/26/2016 4:37 PM (GMT 0)
Jim,

I have done Vestibular Therapy and found it very useful. Though, if I had continued with my exercises it would probably be even better. My LLND has also recommended Vagus nerve therapy which I have not yet started.

By the way, in my opinion you are wise to do your own research and not just blindly follow what the Dr.'s say. There is an awful lot still unknown about this disease and even LLMD's are not aware of everything. This Forum has been a wonderful resource for me.

Good Luck,
Ed
Posted 10/26/2016 5:02 PM (GMT 0)
Thanks Ed

How do you feel now?

Can you drive? Can you go into stores like WalMart and not feel "dizzy"? That kind of stuff is my worst right now.
Posted 10/26/2016 5:42 PM (GMT 0)
unless I am very tired, I am ok in stores and walking around, but not for too long. I also have peripheral neuropathy which can make it painful to walk at times. I have vision problems as well that prevent me from driving on highways
Posted 10/27/2016 12:27 AM (GMT 0)
Thanks again. I'm going to keep looking into it.
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