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Posted 11/15/2016 4:35 PM (GMT 0)
Hi all,

So, in my life, I have (now) had 3 very odd moments. The past 2 times, I went to the hospital with my symptoms because it felt like I was having a stroke. This time, It was the same symptoms and - since they never found anything at the hospital - I stayed home.

Here is what is happening:
* Extreme dizziness out of no where.
* Feeling of cold liquid/ pins and needles on the top of my head and top of my shoulders
* Extreme fatigue
* Dead legs/arms. Feeling of heavy weights.
* After the above symptoms subside/more dizziness/headache and nausea.

I can function... it's just uncomfortable and scary as it's happening. Does anyone else have these kind of symptoms?
Posted 11/15/2016 5:20 PM (GMT 0)
I have the "dead arms" pretty much constantly--it's my only symptom that never fully goes away, but does fluctuate and switch between arms and sometimes legs.
Posted 11/15/2016 7:59 PM (GMT 0)
Can you tell us a little bit about what's going on when these things happen? What kinds of things were you doing at the time, or just before it. Did you notice anything else happening that you might not have thought was tied in?
Posted 11/15/2016 9:03 PM (GMT 0)
I had just woken up. This time. In the past, I've been at my computer at work both other times I had the issue.

This time, I woke up and got up to use the rest room and was so dizzy I almost fell down. I walked around a little and that is when I felt the cold feeling on my head/arms and the dead leg/arms.

I still have a headache and I'm still really tired and weak but, the dizziness has subsided.
Posted 11/15/2016 9:09 PM (GMT 0)
If you are seeing a LLMD, I would encourage you to call them about this. It may be something as simple as POTS issues, or it could be more complicated. It sounds neurological, but maybe not.
Posted 11/15/2016 10:20 PM (GMT 0)
What your bp when it happens ..yes . I have these hypoglycemic episodes ...spirulina has helped ...for pots ..chewing licorice has helped low bp ...its like aldosterone ...there is a sythetic you can tet out of hong kong ..but real licorice sticks are cheaper ...high salt helps too..its the hpa axis or nitric oxide thing idk
Posted 11/15/2016 11:17 PM (GMT 0)
Yes I have experienced the dead arms. It it feels just like you described, like you just got done lifting weights and you have no energy left in them. I remember once when I was taking a shower and trying to lather myself and I just had to stop and rest my arm. It felt like I just got done doing 100 push ups. I had to just dangle my arms because there was just no energy left.

Dizziness, headache, nausea, and fatigue are pretty standard text book symptoms that all lymies have experienced. Pins, needles, and prick feeling on skin is also pretty standard. Coconut oil on skin worked well for me for these symptoms.

Now the water drop feeling is an odd one. I don't know how many lymies actually experience this one but it's common enough. I really feels like a drip of water quickly run down the skin. It normally happens on my back.

I swear if non-lymies would read some of these symptom threads they would put us all in a padded room lol.
Posted 11/16/2016 1:18 AM (GMT 0)
Hi, I as well have had a strange cold liquid/tingling feeling but on the tops of my hands. It has gone away but it was weird. Almost an icy,brisk, tingling feeling. Sometimes just going outside and being exposed to the air triggered it or when I got my hands wet.
Previously when my symptoms were very severe, I had the dead, heavy feeling in my arms also. Although I was fortunate not to have any weakness.

On another note:
I heard some good news today from a co worker. She told me someone in the East has donated 50 Million to Lyme research. I hope its true, we need all the help we can get to figure this disease out and find answers that will help everyone.

Please try to have a good night. Sincerely, Jo
Posted 11/16/2016 1:25 AM (GMT 0)
LymeTrez

I have experienced very heavy legs and arms. Also tingling in the top of my head. That is one of my biggest complaints.
I also went through a spell of lightheadedness.

Are you being treated for Lyme?
Posted 11/16/2016 3:21 PM (GMT 0)
I was "diagnosed" by a Nurse Practicioner. She put me on one month of Doxy and that was it. She said she doesn't know enough to go further with my treatment but, I'm unable to find a Lyme Literate doctor in my area so, I am currently only taking Cannibis oil, Biotine, B12, K and D3. Still searching for a Lyme Literate Doctor.
Posted 11/16/2016 3:34 PM (GMT 0)
LymeTrez,
I had the extreme fatigue, dizziness, headaches, nausea - a part of the lyme picture for me. It can take awhile to find a lyme literate Dr. Many people on the boards here have benefited from an herbal approach. I'd highly recommend Stephen Buhner's books, which you may be able to get at your public library. I am getting close to being back to my old self 11 months into treatment without a lyme literate Dr. I used what a friend calls "Dr. Google" and the awesome support here. My quick list:
1. nutrition to support the healing journey - create an environment that the bacteria doesn't like
2. detox, detox, detox
3. integrate nutrition/supplements that will help support and build up what the lyme attacks
4. integrate anti-bacterial, anti-viral herbs
5. if things don't improve, consider what else and switch up your protocol
6. consider other possibilities:fungus, heavy metals, etc.
7. vent when needed
8. give support, receive support
9. journal symptoms and what you are taking
10. integrate things slowly
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