another update

so I Am pretty sure I have babesia. I have been all over the place trying to diagnose what is causing these symptoms:
heavy chest, tight chest, hard to breathe, feels kind of like a chest infection but mostly dry.

I went to a regular MD and they said nothing is wrong, oxygen levels fine. I went to a naturopath and he said same thing. I went to a Chinese med doctor and he said my lungs are very tight and weak and some kind of infection. But he didn't have a great solution. I tried the tiger balm rub and it helped a bit but it is back now.

If I can afford it I would love to go back to Hansa. I have spent so much money already though and don't know if I can :(
I am starting the protocol from my Hansa dr for it-- I mean I have been on it a couple of days: lymogen and antitox with a babs a bart and some othe tthings mixed in, plus curcumin and coQ10. I am also on my own taking extra lymogen, borellogen and microbogen ( hansa center formulas).

My Chinese dr said no saunas ( he has this thin about hot baths and saunas getting the body warm and then too cold) so I Am not sure if I can do my saunas right now. He also has me on a strict diet, but he does not seem so sure he can help.
Today I had such a bad breathing attack I actually got an asthma inhaler to try to help- thinking maybe I had asthma, but it didn't help and I don't think it is asthma.
I had been feeling so good for over a year and then this darn thing just popped back up. My hansa dr says it is just the substance ( basically the body environment) in which the microbes are living that causes them to jus flare up like that. I guess babesia is some sort of parasite in the blood.
I Am not doing the antibiotics route. I hope the at home hansa meds will treat it. I am feeling afraid at the moment. I wish I could go back to hansa for a week but perhaps he would just put me back on the same protpcol I am on so I have to just give it time.
Not being able to breathe is just terrible . And going to doctor after doctor and getting no answers is not fun.
I had been done with this whole mess, over the lyme. I don't think the lyme itself is flaring, and I am not 100% sure it is babesia but nothing else makes sense for it to be this extreme. I thought it was damage from antibitoics but that was years ago and it would be weird to pop up like this now.
So this is me aright now= I have not had any tick borne things come up for a long time now so this is a bummer.

Hi Kate! I wanted to get a reminder of where you are at with your healing path, because much of what you say hear sounded familiar.

This is from your previous thread update:
"The biggest regret I have on this journey of lyme which started three years ago for me, was taking those 9 months of minocycline, malarone and rifampin. In hindsight, they did not help me at all.
The borellogen and antitox natural medicines from the hansa center is what got the lyme under control.

I had thought at the time that my body would heal up easily from the antibiotics. I thought at the time that my LLMD knew his stuff and it was the only way to get rid of lyme.
But I did not know that 2 years after stopping I would still be dealing with so many issues. The antibioitcs are so strong and dangerous if overused.And they damaged my lungs and my liver. It is so sad that I am struggling with my breathing this far after being off of them.
I do not wish to argue if anyone agrees or disagrees with me that this is the cause, I know ti is, and my Chinese md who is the only one who may be able to help, also knows it is.
I just want to put it out there to share my experience and to share that I seriously regret those long term antibiotics, and that they damaged me way more and way longer than I thought they would. :(

I hope with following my strict diet and so forth and doing the cleansing herbs from my Chinese doctor that I will be able to report some good updates here at some point. At least the lyme is not flaring rightnow. thanks to hansa. But the breathing is a huge challenge and disability. I look forward to healing this once and for all and getting back to optimum health."

Have you made the adjustments to the Chinese md's suggestions that you wanted to yet?

Are they not working out for you the way you hoped?

basically, in the recent threads I was trying to figure out the cause of this terrible breathing. First I thought babesia, then I thought after effect of abx, then I wasn't sure. NOw, after going to a few drs and talking to quite a few others who have had babesia, it is pretty clear to me that this is babesia.

Yes, I had lyme and some co infections three years ago. got it under control aobut 1 and a half year ago. I do know that the bacteria stay in my body and can flare up. I never had this type of terrible breathing babesia symptom though. This is new and horrible.
I am going to treat it with the hansa remedies and hope for the best.
After thinking over my Chinese MD's advice, IA m thinking he is not well versed in lyme co infections and so may have not been able to figure this one out. I will still do his herbs teas and diet, but I am thinking, based on talking to others who have had the exact same thing, that this is a babesia flare up. And it is awful!

bluelyme did you mean goldenseal?

I hope this works for you, and you're feeling better soon, Katebirch! Yes, do the detoxing...that will certainly help.


Once in remission, many people never look back...it's not a given that they keep coming up indefinitely.


Please keep us posted, okay?

Katebirch - My son had something similar - i think. He had a vaccine and few weeks later started having episodes where he felt like he couldn't breathe. A lot of times they were at night and of course the doctors think panic attacks. He's not that kind of kid and never had any issue before this. One night it was so bad I took him to the ER at 3 am because he could not sleep because of it. They took x ray of lungs and gave a breathing treatment and said everything was fine. The treatment really didn't help. He had these off and off for a few months and then started having some coughing and weird swallowing issues too. He felt like he was going to choke and started avoiding certain foods. His coloring looked off too (yellowish) and he had dark circles under his eyes. I did have him tested for Lyme & Bartonella through IGeneX but the lyme was negative (had an IND on specific band though) and also tested through Armin Labs (elispot) which was negative. He was positive for CPN (chlamydia pneum), so may be something you want to look into, like bluelyme suggested as well.

We did some antibiotics and buhner's CPN protocol. He still coughs a bit and it has been a year! I am thinking of taking him back to doctor to consider some type of fungal infection and possibly try herbs to kick it. Otherwise, he seems to be healthy.