Things you don't say to sick people

I'm amazed that on multiple occasions people have told me stories about their friends with Lyme and how it was so hard on them and that they never really recovered. REALLY????? Do you really think I want to hear that or give a crap what so ever while I am currently suffering?

Point in case, today - "oh yeah, my roommate had Lyme. It was in his spinal chord. He was told he had one week left before he was going to lose the use of his legs. He treated with five antibiotics straight to the heart. Oh but he got better. But it still flares up and he is basically incapicated for a couple days when it does ".

I mean it's just unreal. Sorry to rant, I just need to vent right now.

If this has taught me anything it's a new appreciation on how to speak with sick/suffering people.

If and when I get over this I wouldn't dare tell the horrible nitty gritty details of my struggle to someone that is currently struggling. Instead maybe say something like "I know your pain, Lyme is definitely difficult, but you will get better".

Till the next interaction with someone that knows someone that had Lyme..............🙏

Anyone else got any good stories?

Oh I'm not talking about on the forum, we all come here expecting to discuss what is going on between us. I am talking about random interactions with acquaintances and strangers.

Honestly sometimes I would much rather hear the gritty horrid details than one response I got to a local supposed 'friend'. when she saw on facebook when I got the call from the health department that I was pos for RMSF.

She posts on my wall, "oh, my husband tested positive for it and he never got sick". As if It was no big deal even though she knows I have been sick with something all the years that she's known me, and also sicker than a dog the last few. Sometimes I was so sick I had to send someone else to their store to get feed for me.

I know her hubby has had some health issues, they're just in denial it's in any way related to ticks.


I don't look healthy anymore. The way I hold my body says volumes, my eyes are often red and teary looking when I've not even been crying. My hair looks very dry, and I often look like I'm going to collapse at any moment. Which I usually am about to.

I look like I've aged 15 years in the past 3, and I feel like it too.

Even young people hold doors for me, lol. Shoot, I've had old ladies hold doors for me.

I hate what it's done to me, to all of us.

Great post Lymepilot,

Sorry for those that weren't given a sensitivity chip. Yes, I have encountered that "X had lyme, then it turned to MS, then ALS."

I'm with Veryluckygirl, I get the same types of responses. I do not talk about lyme and I don't tell acquaintances - only close family/friends. I can talk about it more in relation to my son because I need to educate those that don't understand why he is so sick and needs to be home.

For these reasons and many more, I love this board.