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Posted 12/27/2016 10:23 PM (GMT 0)
I'm about a month into Zith and Rif.

Every time I go to bed, even a nap, I have to go through this horrible freaking brain falling sensation. Surges. I know lots of people have felt it. But what makes it go away!

I had it right before I started treating Lyme four years ago. Came back out of nowhere two months ago. Lately it's unbearable. I think I'm going to just die some nights. It's like the gates of hell I have to pass through to go from wakefulness to sleep.
Posted 12/27/2016 10:27 PM (GMT 0)
So sorry tickcheckguy! So, it feels like something inside your head is dropping?

I had that very early on in my symptoms....and it happened just as I was falling off to sleep...it would jolt me awake every time. I started taking Valerian right before bedtime...and it did help somewhat.
Mine were happening prior to diagnosis and treatment...

Then, it just went away after a few months.

These horrible symptoms - no one gets what we go through...and it's not like we have one...or two...or even three freakish symptoms...it's a whole list of them...

We deserve medals for surviving this.
Posted 12/27/2016 10:35 PM (GMT 0)
Exactly. I had it before I was diagnosed and treated. One of the first things to go.

But now even with so many antibiotics it's back.

It's some sort of parasympathetic CNS issue I think.

This is as bad as it has ever been.

I'll take brain fog. But this is lethal feeling. Such strong jolts.

Post Edited (tickcheckguy) : 12/27/2016 3:40:52 PM (GMT-7)

Posted 12/27/2016 10:47 PM (GMT 0)
I'm not sure if I've had this. You obviously aren't referring to the feeling of falling out of a chair, or rug jerked out from under you just as you dose off. And it doesn't sound like the de-realization thing I go through falling asleep-especially if there is noise around me- where you are half way into a dream state that makes no sense, and the awake state where you're listening to something but losing your grip on it.

This sounds miserable. I bed you've gotten where you dread bedtime. I wish I could suggest something that would help you.

Post Edited (julymorning) : 12/27/2016 3:51:57 PM (GMT-7)

Posted 12/27/2016 10:50 PM (GMT 0)
I have the jerking rug dance too. But this is really brain centric. Often it comes with a rush of energy down my arms and legs.

Brutal man. I dread taking naps. I woke up this AM and went back to sleep and still had to go through it.
Posted 12/28/2016 1:49 AM (GMT 0)
TCG,

I'm so sorry. I wish I had some words of comfort for you

My son is going through all types of night panics and terrors so I get the 'dread of bedtime' - I haven't been on much this week but glad you're back, sorry it's for this.

I'm giving my son Yogi bedtime tea with Valerian tincture and epsom foot soak with epsom salts for sleep.

Would you be opposed to asking your doctor for something to help you sleep? I normally don't even take Advil but I will take a very low dosage of valium on bad insomnia nights.

Prayers and hugs to you. I hope tonight is a better night.
Posted 12/28/2016 2:54 AM (GMT 0)
I sleep, I just have to go through the gates of hell to do it.
Posted 12/28/2016 3:02 AM (GMT 0)
TCG,

Oh good. I'm glad you can finally sleep.

Did it just begin with traveling? Some times change of time zone, altitude, air pressure - can bring on symptoms.

Wishing you sweet dreams and that you don't visit hell tonight nono
Posted 12/28/2016 6:26 AM (GMT 0)
Yeah. But it is getting worse not better.
Posted 12/28/2016 12:32 PM (GMT 0)
Hello everyone. Checked myself into the ER with extreme light headed feeling and palpitations.

I've been waiting for 30 minutes. They checked me in with a "headache"
Posted 12/28/2016 1:48 PM (GMT 0)
Oh no! I'm so sorry. Please update us when you can. I hope you managed to get some sleep and that the ER offers some comfort.

Really sorry you are going through this. Neuro stuff is not fun.

Cyber hugs, prayers headed your way.
Posted 12/28/2016 3:17 PM (GMT 0)
Sending thoughts of healing and sleep your way.

I hope you can get some relief.

xo
Posted 12/28/2016 3:33 PM (GMT 0)
Tickchecksguy I hope you will feel better soon!!
Posted 12/28/2016 5:09 PM (GMT 0)
Feel better soon!!!
Posted 12/28/2016 6:06 PM (GMT 0)
Watching and waiting to hear back from you, hoping they are open minded and can correctly identify the cause and it's nothing very serious.
Posted 12/28/2016 6:10 PM (GMT 0)
All my tests were normal. Of course. They always are. I don't even know why I go to the ER anymore.

I was told I have anxiety and that I'm a hypochondriac.

I was given fluids and told that anxiety can cause these kind of brain feelings.

I'm home now. With more anxiety. Lol
Posted 12/28/2016 6:38 PM (GMT 0)
Good to hear you are home.
I hope you will feel better soon!
Posted 12/28/2016 8:34 PM (GMT 0)

tickcheckguy said...
All my tests were normal. Of course. They always are. I don't even know why I go to the ER anymore.

I was told I have anxiety and that I'm a hypochondriac.

I was given fluids and told that anxiety can cause these kind of brain feelings.

I'm home now. With more anxiety. Lol


Sigh. And they take your money for that.

But you know, as irritating as that is, (and we know you aren't a hypchondriac), you can be grateful they didn't find any organ malfunction, like you having a stroke or something.

What have you tried organically, to end these events, if these are herxes or reactions from internal toxins?
Posted 12/28/2016 8:38 PM (GMT 0)
Nothing seems to be palliative except time. It just has to pass. I can dry brush and bind and go to sleep feeling okay and wake up in the middle of the night feeling screwed
Posted 12/28/2016 9:38 PM (GMT 0)
TCG,

Again, I'm so sorry. I hope you managed to get some sleep.

I agree with July that at least they didn't find something wrong.

Not sure if this is something you would be into but guided meditation helps me so much with anxiety. I know they have them specifically for sleep. I'm sure you can stream them.

Have you started anything new that is clearing neuro stuff?

I hope it passes/heals soon and that sleep becomes a trusted friend once again.

Hang in there - we're here for you and we know you have a great brain and you are not a hypochondriac. I wish that word didn't exist.
Posted 12/28/2016 9:53 PM (GMT 0)
Nothing new. I'm stopping everything but Chlorella and some basic support. Need to see if it was herx.
Posted 12/28/2016 10:23 PM (GMT 0)
Sounds like a good idea.
Posted 12/28/2016 10:42 PM (GMT 0)
Sounds like a good plan. Let us know if that does it.

Have you tried Pinella? That may be helpful for neuro/nerve herxes now.
Posted 12/28/2016 11:33 PM (GMT 0)
Yep, take it often.
Posted 12/28/2016 11:53 PM (GMT 0)
tickcheck-You mentioned that this happened to you before but went away when you started treating. You are treating again now- how are you treating differently this time?

Can you do a form of an elimination diet with your abx's and supplements? Go back to what worked to eliminate this the first time and then build from there?
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