What happened to me

I was relatively stable, even if I was sick. I was moderately functioning.

Everyday I feel like I get worse now. I can't make it across the room without feeling like my heart is pounding and I'm going to pass out. I've been to the cardiologists twice and ER once.

I started Singulair to try and break the inflammation cycle. I'm moving from house to house trying to get to a place I can guarantee is mold free.

Even stressful situations spur intensification.

I feel toxic, brain fog, everything. The doctor doesn't want to go do more killing until this settles. I couldn't tolerate binders of any type.

Most of the day I think I'm going to die. I know I won't, but sometimes I'm not even sure anymore.

It's insane. This illness is insane.

I'm on zero Amolyse. Im carb free. I take meriva, high dose fish oils, and I've started praying for this to pass.

Going to bed is the worst, I have to go through the gates of hell in my brain and anxiety and body and brain sensations before I eventually pass out from exhaustion.

I do a new Adrenal cream. I was taking dedicated Adrenal from standard process before.

I agree on bone broth. I don't get nearly enough food right now because I am trying zero Amolyse and I don't eat meat except fish.

Lots of almonds here. Lots of almonds.

Thanks July

I am new to this, but when that happens to me, I attribute it to bacteria/parasite overload. Or when they come out to the blood stream, or get agitated.

I don't know how it works, but I've been taking a small amount of cortisone daily with the antibiotics. Things got much better after the babesia was gone, so hang in there.

Do you have a confirmed mold issue?

There is definitely something else going on, and I would encourage you and your doctor to do some investigative work to determine what it is.

I would also encourage you to continue working to detox your body, as your doc is right - until this is pinned down, you shouldn't try to do any more 'killling' - but do be sure to keep up the supportive therapies.

I'm so very sorry this is so hard on you!

Have you had any chemical sensitivities testing done? Just a thought.

This sounds like what I have. Stressful situations make things dramatically worse. Even if it's minor.

Ask your doc if you can try rocephin shots. Most docs won't approve it, but you can make an argument about the study they conducted for encephalitis. That's what I did. I had major brain swelling. I still do. And rocephin intramuscular shots have been studied and proven to reduce the encephalitis. There's a report out somewhere about it. You can google around for it.

Once you get the rocephin, you'll need syringes, alcohol wipes, and a lighter to burn the needle.

You can inject and then do a sauna. I did this last night and I think it does help to absorb the abx past the bbb. Not too bad of a herx today. A little spacey, but not bad.

Tickcheckguy,

My heart goes out to you most of us (if not all) have been where you are some longer than others. I have a few things to share so here goes:

Adrenals:
- I'm sure they're playing a part in your exhaustion. Best advice is to eat every 1.5-2 hours to keep your blood sugar stable. If this varies too much it puts stress on your adrenals making you more tired.

- Some good staples in your diet for adrenals are celery, dates and apples. It provides the right amount of potassium and good sugar to keep the adrenals going

- You must get as much rest/sleep as you can. The adrenals best heal themselves at night when you're sleeping.

- Try to control stress as much as you can this is another big negative impact on your adrenals

Binders:
Have you tried Cholestyramine or Welchol even 1 a day? I would definitely push your doc to try this they're relatively benign and I've heard only a few stories of it causing some GI discomfort. It's definitely working for me.

Anti-Inflammatory:
Mileage varies here because it depends on your body, how it handles inflammation, what you take, etc. Maybe try a Curcumin/Tumeric based supplement apparently these work very well for inflammation.

Killing:
If you are too toxic/not feeling well you have to back off on the killing. This is a journey not a sprint I was sprinting for the first 18 months saying I'll get through this and feel like death to get it over quicker. Doesn't work out in practice!

I am sorry to hear that you feel unwell. Have you tried Epsom salt bath to relax and get rid of toxins?