HealingWell
Search Close Search
☰

I've been posting a lot of these

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 1/22/2017 11:24 PM (GMT 0)
I just had kind of a Eureka moment if I go tomorrow to my Dr and get tested for mold btw he has never tested me what the heck? I've never actually been positive for Lyme, I got tested once and that convinced them I don't have it so they won't retest me. if I test myself for mold will that get things moving towards Lyme because they go hand-in-hand don't they? I'm desperate my doctor's r still trying to admit me to a psychiatric facility because they believe it cannot possibly be Lyme. I have a lot of diagnoses like gastritis and Hashimoto's and anemia and I just recently was told it could be MS but that was a dead end as well, they r currently testing me for fibromyalgia. But I'm having bladder pain and ear pain as well as grinding shoulder neck and back pain. Flapping sound and vibrations in my ear that feel like a bird is flapping right on my ear drum. I see floaters usually all day and I don't get enough sleep bc I feel wide awake even though my body is screaming to rest. Also cold sweats at least 3 times a week. U see my frustrations? Every doctor I see says I'm so young and my tests look healthy this is absolute bs.
Posted 1/22/2017 11:44 PM (GMT 0)
I see your frustrations. I went through it for 33 years and am still going through it, even with a pos. diagnosis of RMSF.

But I tell you, the first time anyone hints at sending me to a psychiatric facility I will walk out and never go back. I'd had a bunch of their silly psychiatric tests during the years of trying to get disability, and the best they could come up with was depression....not a lock up kind of diagnosis.

Man this ruffles my feathers. Have you given any thought to just doing your own treatment? I take it you can't afford, or having something against using an LLMD?

Again, I posted something recently about the connect you bring up. I'm going to see if I can find it.


ETA: Here it is....one man's pov about the connection between mold and Lyme. www.helladelicious.com/diy/2012/06/biofilms-parasites-mold-and-electromagnetic-frequencies/

Post Edited (julymorning) : 1/22/2017 4:49:58 PM (GMT-7)

Posted 1/22/2017 11:56 PM (GMT 0)
"Currently testing for Fibromyagia"? They have developed a lab test for it? Because previously the best they could do was press on various trigger points over your body to check for pain response.

These trigger points will react with Lyme as well. I went to supposedly the best Rheumatology clinic in the State back in '85, and that's the extent of their high tech tests. Fingers.

Well, it was convincing enough for me, for awhile, but inside I had a feeling that wasn't what was wrong with me.

If they have come up with something more definitive, I'd be curious. Probably something relative to nerves or pain neurotransmitters.
Posted 1/23/2017 5:35 AM (GMT 0)
They just said 2 weeks ago that since my hips and joints were sometimes sore to the touch it could be fibro and their going to do tests lol. That's it I only got words no tests yet. They were convinced it was lupus before then convinced it was MS. Idc what it is I want it gone and to be my cleanfreak nerotic self again, this is a prison that nobody can see so they assume u made it up bc u don't want to work or u want attention. Excuse me but does anyone reading this like the ATTENTION they get? I hate it!!! Just saying
Posted 1/23/2017 5:35 AM (GMT 0)
They just said 2 weeks ago that since my hips and joints were sometimes sore to the touch it could be fibro and their going to do tests lol. That's it I only got words no tests yet. They were convinced it was lupus before then convinced it was MS. Idc what it is I want it gone and to be my cleanfreak nerotic self again, this is a prison that nobody can see so they assume u made it up bc u don't want to work or u want attention. Excuse me but does anyone reading this like the ATTENTION they get? I hate it!!! Just saying
Posted 1/23/2017 9:13 AM (GMT 0)
Kw661have you done the dna connexions test ?...i cried out of relief when i saw the spirochete under the microscope at a friends house ...after 33 doc same bs with regular docs ..

so lets they say its ms ...di you know why charles mraz had such results with bee venom therapy ..because venom kill spirochetes and ms is lhme in the nerves ..

if you have hashimotos you have to ask what pathogen is in there that your immune sx wants out?.if its not lyme its bart or cpn or hpv mycoplasma but its something dont let them tell you otherwise ...they can and will commit you it happened to ally hilfiger ...i took their script for antidepressants and never went back ...

try some andrographis or houttynia and see if you herx see some with a good microscope
They told this guy he had ms ...clearly he has a infectious etiology
https://www.youtube.com/watch?v=fJBBHZSCdb8&feature=youtu.be
Posted 1/23/2017 2:17 PM (GMT 0)
kw661 whatever track you're going down with these doctors it sounds like a waste of time and quite a typical journey in the 'clueless about tick infections' route.

to me sure sounds like you have something bug related going on. sure mold can produce some of those symptoms but it sure sounds like there's too many to attribute to mold.

i think you have a few options.

find yourself an LLMD or a doctor that will send your bloodwork to Igenex. they are pretty good with spotting Lyme via their PCR test. i was able to find someone in network so that helped.

i just did the DNA Connexions you don't need a doctor just $500 (yeah like its chump change ;). My test came back positive for lyme they also test for bartonella, babesia, anaplasma and enrichlia.

right now you could start on some herbs. a good one to hit lyme and fungus simultaneously is Nutramedix Cumanda. maybe pick some up and try it out if you get a strong reaction well that would nail it for me.
Posted 1/23/2017 2:35 PM (GMT 0)
No, Lyme and mold do not go hand in hand. I have had Lyme for over 45 years, and live in northern Arkansas (where even the cars will grow mold on them!) and have never had any mold issues. It's more up to how the body handles mold, not just if you have been exposed to it when you have these infections.

I would encourage you to NOT have a blood test done for Fibro - as it will NOT rule out Lyme, but will likely convince any doctor that's what you have. They didn't have a blood test when I was diagnosed with Fibro, and it's still a hard diagnosis to shake.

The new test for Fibro:
"Recent data highlight the role of the immune system in FM. Aberrant expressions of immune mediators, such as cytokines, have been linked to the pathogenesis and traits of FM. We therefore determined whether cytokine production by immune cells is altered in FM patients by comparing the cellular responses to mitogenic activators of stimulated blood mononuclear cells of a large number of patients with FM to those of healthy matched individuals."
bmcclinpathol.biomedcentral.com/articles/10.1186/1472-6890-12-25

As if Fibro patients just randomly have high cytokines.....

I would agree with the other members saying to just find your other options - don't rely on these docs that you are seeing to get you into a good treatment for Lyme, much less be able to diagnose you properly.
Posted 1/24/2017 2:03 AM (GMT 0)
Traveler, that link of Klinghardt article I linked had a lot to say about mold and Lyme, and the other trappings that seem to be connected issues. This: "Parasites bring bacteria, viruses, and fungi with them."

Lots of people here are claiming we have parasites to deal with as well as Lyme. So I was seeing an avenue into us probably causing one mold issue.

Then he goes on to say all of this: "When two mold cultures were separated in a research experiment and one was exposed to EMF while the other was not, the one exposed to EMF had 600 times more toxic biotoxins and its growth rate was dozens of times faster.
It may be the case that EMF itself may not harm our body’s cells, but it may impact the microbes within us which results in more biotoxins.
Molds create biotoxins (mycotoxins) to defend themselves...................


The intelligence of normal bacteria to that of mold is like that of a cabbage to an elephant. Molds are far more critical than bacteria. Parasites are elephants squared.
Molds incorporate heavy metals to protect themselves from white blood cells. The white blood cells are killed by mercury, but the molds are not.

MSH is a hypothalamic peptide which is involved in cytokine release. Low levels are associated to mold, MARCoNS (staph), EMF, and Lyme.............."



Differing views sure get confusing.

But I do agree it's how the body handles mold, if it indeed handles it. Yours did a good job!
Posted 1/24/2017 2:22 AM (GMT 0)
July,

That is fascinating. The holistic practitioner that I see who does body scanning said my biggest culprit is 'harmful energies' wonder if that is from EMFs. This was what she wrote: Harmful Energies (80) Ultraviolet Rays

Symptoms that can occur from harmful energies include: sleep disorders, nightmares, feeling worn-out

in the morning, chronic fatigue, fibromyalgia, autonomic disorders, migraines, tension headaches,

muscle cramps, no progress despite ‘proper’ treatment, hormonal disorders, ADD, and difficulties to

learn or concentrate.

KW661, I also have Hashimoto's and was told I had fibromyalgia, after being sent from doctor to doctor. It was Lyme the entire time. Stay on this board - these experts know more than most LLMD's. The mods on here will heal you. Sending you hugs!
Posted 1/24/2017 2:32 AM (GMT 0)
Huddie, the EMF's in my bedroom must be astronomical. I'm not sure which would have to go first, between my desk top computer, the tv, a fan, space heater, electrical circuit box, oxygen concentrator or my wris***ch.
My cell phone is always turned off in here. Yea me, lol.

No wonder I'm vibrating half the time. You gave me a huge reminder....I've been in denial.
Posted 1/24/2017 2:44 AM (GMT 0)
July,

I just laughed so hard! Ok you need an exorcist on your EMFs! Like in Poltergeist "This room is cleared!"

I don't have anything blinkng/electric in my room other than an air purifier but it has no light. If one light is on I can't sleep.

Are EMF's anything with an electrical cord? Meaning even if they are not plugged in they can bother you?

Wow - no wonder our entire nation has collective ADD/sleep disorders.
Posted 1/24/2017 3:00 AM (GMT 0)

julymorning said...
...

ETA: Here it is....one man's pov about the connection between mold and Lyme. www.helladelicious.com/diy/2012/06/biofilms-parasites-mold-and-electromagnetic-frequencies/

Interesting article. I have xylotol in the cupboard and am going to add it to the daily supplements.

Post Edited (ChickenArise) : 1/24/2017 10:59:08 AM (GMT-7)

Posted 1/24/2017 5:20 PM (GMT 0)
My daughter is also having pains and horrible migraine not to mention when I wake up in the middle of the night she's wide awake bc she has insomnia a lot, has been going on for about a year she's 11 started around the time she hit puberty. everyone says they're growing pains and her just being overly sensitive and I can't help but roll my eyes each time bc it doesn't happen everyday but when it does she acts like something is nawing at her she gets embarrassed when she cries which makes her angry so everyone says she's depressed which she does act that way, and she's just lazy which also she is quite seditary craps slot isn't motivated to do really anything. I had a foster mother who overlooked all of that bc she didn't want to be bothered around 16 when I think I got bit so idw to make the same mistake. But it's a sensitive subject bc most everyone thinks I'm lying! then she started saying she hurt. Idk if she's lying, I'd be hurt bc nobody should lie about this but my gut says she's really suffering and her dad wants nothing to hear about it says I'm projecting my illness on her but it's easy to connect the dots, he says they're invisible dots. I wanted her to be sick!! I just want to wake up and be rid of all of this I'm tired of ppl telling me it's in my head and I'm a hypochondriac that's mlwhy I'm so desperate for a positive test not just for me but for my daughter.
Posted 1/24/2017 5:27 PM (GMT 0)
She's also had an ablasion on her heart for a piece of flapping muscle that was causing her heart to beat irregular, that was 2 years ago this last year she's been having chest pain the doctor put her on a heart monitor for 3 months said she was fine. Heart pain still happened tho and is still continuing and they don't know why she has it so no answer except anxiety.
Posted 1/24/2017 5:37 PM (GMT 0)

kw661 said...
My daughter is also having pains and horrible migraine not to mention when I wake up in the middle of the night she's wide awake bc she has insomnia a lot, has been going on for about a year she's 11 started around the time she hit puberty. everyone says they're growing pains and her just being overly sensitive and I can't help but roll my eyes each time bc it doesn't happen everyday but when it does she acts like something is nawing at her she gets embarrassed when she cries which makes her angry so everyone says she's depressed which she does act that way, and she's just lazy which also she is quite seditary craps slot isn't motivated to do really anything. I had a foster mother who overlooked all of that bc she didn't want to be bothered around 16 when I think I got bit so idw to make the same mistake. But it's a sensitive subject bc most everyone thinks I'm lying! then she started saying she hurt. Idk if she's lying, I'd be hurt bc nobody should lie about this but my gut says she's really suffering and her dad wants nothing to hear about it says I'm projecting my illness on her but it's easy to connect the dots, he says they're invisible dots. I wanted her to be sick!! I just want to wake up and be rid of all of this I'm tired of ppl telling me it's in my head and I'm a hypochondriac that's mlwhy I'm so desperate for a positive test not just for me but for my daughter.

While I don't have the heart issues you mentioned in your second post - you did just describe my childhood!!! I was infected at the age of 7 and went undiagnosed until the age of 44. Please don't ignore these signs.
Posted 1/24/2017 5:43 PM (GMT 0)
I posted this on my phone so sorry there r a few weird errors in my posts that's just my phone being lame auto correcting me sorry.
Posted 1/25/2017 12:48 AM (GMT 0)
This post is awesome...its reaaffirming my previous belief that my Lyme are not the main culprit to my current symtpoms. My most recent labs revealed undetected MSH(melanocyte stimulating hormone), AND i did the nasal culture that revealed MARcons. AND, i have had I.V. chelation for heavy metals toxicity(back in 2014)!

Dna connexions came back negative on the Lyme OSPa AND OSPb (outer surface proteins), which according to my ND, who is a molecular biologist=no current infection of the spirochetes!!!

M.S.I.D.'s, is a MULTIPLE systemic infectious dis-ease scenario, with Spirochetes being JUST ONE of the many, right?
Posted 1/25/2017 5:09 AM (GMT 0)
I was told I had fibromyalgia and a severe anxiety disorder pre-lyme diagnosis. I was even worried for a while about my husband trying to get me committed. I also had a neurologist say "just go have a glass of wine, you're fine." All of my anxiety is gone since treatment. Had to believe Lyme caused it but it did.

I would run, not walk to a LLMD.

My treatment included lots of mold stuff, like LDI shots and cholestyamine.
Posted 1/25/2017 4:53 PM (GMT 0)

kw661 said...
I just had kind of a Eureka moment if I go tomorrow to my Dr and get tested for mold btw he has never tested me what the heck? I've never actually been positive for Lyme, I got tested once and that convinced them I don't have it so they won't retest me. if I test myself for mold will that get things moving towards Lyme because they go hand-in-hand don't they? I'm desperate my doctor's r still trying to admit me to a psychiatric facility because they believe it cannot possibly be Lyme. I have a lot of diagnoses like gastritis and Hashimoto's and anemia and I just recently was told it could be MS but that was a dead end as well, they r currently testing me for fibromyalgia. But I'm having bladder pain and ear pain as well as grinding shoulder neck and back pain. Flapping sound and vibrations in my ear that feel like a bird is flapping right on my ear drum. I see floaters usually all day and I don't get enough sleep bc I feel wide awake even though my body is screaming to rest. Also cold sweats at least 3 times a week. U see my frustrations? Every doctor I see says I'm so young and my tests look healthy this is absolute bs.

Possibly candida as far as the floaters go but I would imagine you would have high pitched tinnitus. Do you have dental implants? Root canals?

I think mold is a stressor event that reduces the immune system which will allow Lyme bacteria to get out of hand.

When you become fungal you also attract a decent amount of insect bites. Some of the Lyme bacteria has a direct relationship with some of the nematodes which follow the insect bites.

I wish we could nail them all down to something solid.

Post Edited (ChickenArise) : 1/25/2017 10:05:25 AM (GMT-7)

✚ New Topic ✚ Reply