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Vitamin D and Lyme

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Posted 2/8/2017 4:35 PM (GMT 0)
0) Get Tested
1) Optimal range is 50-60 ng/ml
2) Best way to get there is 20 mins high sun exposure every day (plus multitude of other health benefits)
3) Winter time is 5000 iu/day for _me_. See 0). There are plenty of gene mutations affecting D3 absorption, like SNPs rs7041 and rs4588 and other condition which might affect utilization.
4) D3 is fat soluble - take it with food.
5) Magnesium is used up when D3 is converted into its active hydroxy form. Keep an eye on low magnesium symptoms. Or just supplement as well, it is very hard to overdose due to the laxative nature.
Posted 2/8/2017 6:54 PM (GMT 0)
My doc had me on 10,000 per day (yes 7 days) until I reached 90's. To be honest I felt a little better once my levels went up but now that I'm treating more I can't tell the benefits. But then again, perhaps I would feel way worse if my levels weren't high.

He wants me to scale down to 5x a week, but I do 3. When I check my levels again, I'll see if I need to scale down some more because I also get 5,000 in my multivitamin. Apparently I wasn't absorbing my powder multi at one point.
Posted 2/8/2017 7:13 PM (GMT 0)
My LLMD told me to take 2000 u per day. I haven't notice any difference though. I am not exposed to sun at all, so I think it is a good approach.
Posted 2/8/2017 7:24 PM (GMT 0)
Everyone who is supplementing with a higher amount should get periodic testing done...


Also, those who are low in vitamin D and supplement...should test after a couple months to make sure they are taking the right amount...and adjust accordingly.
Posted 2/8/2017 8:31 PM (GMT 0)

Girlie said...
This is the website I use when looking up vitamin d levels and testing

/www.vitamindcouncil.org

Click on 'about Vitamin D'
Then "Am I getting too much vitamin D"


" Very high levels of 25(OH)D can develop if you:
take more than 10,000 IU/day (but not equal to) everyday for 3 months or more. However, vitamin D toxicity is more likely to develop if you take 40,000 IU/day everyday for 3 months or more.
take more than 300,000 IU in a 24 hour period."

Girlie, did you see this on their website?

/www.vitamindcouncil.org/vitamin-d-hypersensitivity/

"There are some health conditions, however, where you are at risk for hypercalcemia, no matter if you’re getting too much vitamin D, just the right amount of vitamin D or even not enough vitamin D. These conditions are termed “hypersensitive” to vitamin D, or these conditions have “hypersensitivity” to vitamin D. This means that people with these conditions should be careful when supplementing with vitamin D, because they are at greater risk of getting hypercalcemia."

If you scroll down further, youll read...

"Other granulomatous diseases
Hypercalcemia in other granulomatous disorders is rare. These conditions include:
leprosy
coccidioidomycosis
histoplasmosis
cat-scratch disease
paracoccidiodomycosis
granuloma annulare
If you have one of these conditions, ask your doctor about taking vitamin D. While hypercalcemia is rare in these conditions, your doctor may wish to keep a careful eye on your calcium levels and can let you know whether it is safe for you to take vitamin D. This should not discourage you from taking vitamin D, but encourage you to work with your doctor before doing so."


Personally, I think it safe and take 5,000 iu/day.
Posted 2/8/2017 8:43 PM (GMT 0)

trader758 said...

Girlie said...
This is the website I use when looking up vitamin d levels and testing

/www.vitamindcouncil.org

Click on 'about Vitamin D'
Then "Am I getting too much vitamin D"


" Very high levels of 25(OH)D can develop if you:
take more than 10,000 IU/day (but not equal to) everyday for 3 months or more. However, vitamin D toxicity is more likely to develop if you take 40,000 IU/day everyday for 3 months or more.
take more than 300,000 IU in a 24 hour period."

Girlie, did you see this on their website?

/www.vitamindcouncil.org/vitamin-d-hypersensitivity/

"There are some health conditions, however, where you are at risk for hypercalcemia, no matter if you’re getting too much vitamin D, just the right amount of vitamin D or even not enough vitamin D. These conditions are termed “hypersensitive” to vitamin D, or these conditions have “hypersensitivity” to vitamin D. This means that people with these conditions should be careful when supplementing with vitamin D, because they are at greater risk of getting hypercalcemia."

If you scroll down further, youll read...

"Other granulomatous diseases
Hypercalcemia in other granulomatous disorders is rare. These conditions include:
leprosy
coccidioidomycosis
histoplasmosis
cat-scratch disease
paracoccidiodomycosis
granuloma annulare
If you have one of these conditions, ask your doctor about taking vitamin D. While hypercalcemia is rare in these conditions, your doctor may wish to keep a careful eye on your calcium levels and can let you know whether it is safe for you to take vitamin D. This should not discourage you from taking vitamin D, but encourage you to work with your doctor before doing so."


Personally, I think it safe and take 5,000 iu/day.

Absolutely. You definitely have to test often if you are on high amounts. And I would not dose high unless you are working with a doctor. I typically do bloodwork every 4-6 weeks and Vitamins A and D are definitely on it.
Posted 2/8/2017 9:13 PM (GMT 0)

Krimpet 🍔 said...

trader758 said...

Girlie said...
This is the website I use when looking up vitamin d levels and testing

/www.vitamindcouncil.org

Click on 'about Vitamin D'
Then "Am I getting too much vitamin D"


" Very high levels of 25(OH)D can develop if you:
take more than 10,000 IU/day (but not equal to) everyday for 3 months or more. However, vitamin D toxicity is more likely to develop if you take 40,000 IU/day everyday for 3 months or more.
take more than 300,000 IU in a 24 hour period."

Girlie, did you see this on their website?

/www.vitamindcouncil.org/vitamin-d-hypersensitivity/

"There are some health conditions, however, where you are at risk for hypercalcemia, no matter if you’re getting too much vitamin D, just the right amount of vitamin D or even not enough vitamin D. These conditions are termed “hypersensitive” to vitamin D, or these conditions have “hypersensitivity” to vitamin D. This means that people with these conditions should be careful when supplementing with vitamin D, because they are at greater risk of getting hypercalcemia."

If you scroll down further, youll read...

"Other granulomatous diseases
Hypercalcemia in other granulomatous disorders is rare. These conditions include:
leprosy
coccidioidomycosis
histoplasmosis
cat-scratch disease
paracoccidiodomycosis
granuloma annulare
If you have one of these conditions, ask your doctor about taking vitamin D. While hypercalcemia is rare in these conditions, your doctor may wish to keep a careful eye on your calcium levels and can let you know whether it is safe for you to take vitamin D. This should not discourage you from taking vitamin D, but encourage you to work with your doctor before doing so."


Personally, I think it safe and take 5,000 iu/day.

Absolutely. You definitely have to test often if you are on high amounts. And I would not dose high unless you are working with a doctor. I typically do bloodwork every 4-6 weeks and Vitamins A and D are definitely on it.

No, I didn't read that section, thanks for posting! I do have bartonella...so for us - we should be checking our calcium level...

I did have mine checked before lyme diagnosis and treatment...but maybe a good idea to check again.
Posted 2/9/2017 3:32 AM (GMT 0)
All my lab tests that my regular GP has requested have been 100% covered except for vitamin D. I don't know what the deal is with that.
It showed I was deficient - so it was necessary,
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