HealingWell
Search Close Search
☰

Severe Brain Pressure / Brain on Fire

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
1 2 3
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 2/23/2017 2:10 PM (GMT 0)
Well I've only just find out bye my self on ear readying .dotor gave me lamotrigine. It helped .but good they put me on anitdpresents ruined me coz they stopped um after 7 yrs coz fault it was making my head hurt .so I went down I was in bad mess .put in hospital coz dotor keep stoping my anitdpresents. My mind went crazy on top that my burning was so strong day night I got it .bk my skull left side brain and I fill presure .sum times I fill like iiv bin hit my head on concrete it fill soar like my hair being pulled .I can't lay on left side my braine .and and 6moths ago my sleeping bin so bad my head burns
Posted 2/23/2017 2:16 PM (GMT 0)
So, are you taking those antidepressants now? Are you taking any at all now? Or are you off of them all?

By stopping them too quickly, it causes other serious issues. No wonder you are suffering so much.

If we get a little bit more information from you, we may be able to help.

Are you in the US or elsewhere?

Have you had have you had any testing or believe that your symptoms are from Lyme, Bartonella or others?

Have you had any treatment at all for these infections? How did that go?
Posted 2/23/2017 2:19 PM (GMT 0)
But at mo I've ad 4 days fee of burning. It's there but it's paused. Dotor gave me vitamins .I don't no if it that .that's helped but it's nice my head and burning. I can put up wiv the presure and the hitchy head .but I don't no y it's not going.dotors ant done no test on me only fink I'v depression .wen after 6yrs I find out wat got they dint no wat say all I got was never herd of it .so no help yet .I do worry I'm I gonna die coz I'm dealing wiv this 6hrd .I no my brain damage coz of the burning.havein not lot sleep ant helping makes my head so sor.but I'm a fighter.and I'm ust to it but not noing is a killer .thank 4 txtin
Posted 2/23/2017 2:24 PM (GMT 0)
There's always hope. I went 40 years without treatment and had insane symptoms much of the time. But what you need is doctors that understand how to help you.

So, let's start with what country you live in - or we can do emails if you don't want this on the forum for some reason.
Posted 2/24/2017 9:34 AM (GMT 0)
I'm not the best speller as u can see.but to arnser yr questions. Not I'm waiting to see my dotor in 2weks to have blood test 4 Lyme Disease. I live in the UK. 4 5days now I've ad no burning it there bk not burning. Still soar.im on anitdpresents. Yes them stoping um messed my head up more .I aways fault coz I new I ad brakedown that y my head started playing up but 6yrs the pain so bad .lamotrigine I've put my self up to 100mg a day. Was on 200mg but wiv all me other tablets I toke um all in one go and I come over funny .so put me bk down to 50mg lamotrigine. Gave me vitamins last wek is that y I fill bit better .I'm stuff. Wat shall I arst 4 wen I see my jp I right it down thank u very much hope u all OK .candy
Posted 2/24/2017 3:03 PM (GMT 0)
I would suggest that you see a doctor that actually not only understands where to have the testing done, but knows how to read the tests and evaluated you properly - and treat you properly - for these infections - a LLMD.

If you would send me an email, with the area you live in, I have some UK LLMD's listed that I could share with you. To send me an email, you can click on the blue envelop under my name, or click on my screen name to get my email.

As long as we can understand each other is what's most important!! We may have to ask a lot of questions, but if you don't mind - neither do we. smile
Posted 2/24/2017 8:21 PM (GMT 0)
I live in Surrey England be great if you can send me anything nearby
Thanks
Posted 2/24/2017 8:23 PM (GMT 0)
Candy, you will have to email me so I can email you back - you don't have your email listed here.
✚ New Topic ✚ Reply
123