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Posted 4/1/2017 9:46 PM (GMT 0)
I get pretty disoriented and spacey when I go out in public and drive. It's been like this for a while, I can't really tell if it's because I'm used to being home a lot or what but it's really annoying. I'll be at a store and all the sudden forget where I am then snap back into it. Basically a feeling of disorientation and depersonalization. I had some testing done a month or so ago to rule out seizures.
Not sure if it's part of the healing process and the antibiotics I'm taking are causing this but it's very upsetting and I hate the feeling.

I have some sleep testing coming up to see if I have sleep issues causing my brain fog.
Posted 4/1/2017 10:11 PM (GMT 0)
This is a common symptom of lyme and one many here, including myself have experienced. Disorientation, depersonalisation, derealisation and confusion which often go hand in hand with anxiety.

It could be made worse by herxing too. You're right, it is very unpleasant!! Which abx are you taking? Is there any extra detoxing you could do to see if this reduces this problem?

The good news is it will pass as you heal smile
Posted 4/1/2017 10:13 PM (GMT 0)
Minocycline and Zithromax
Posted 4/1/2017 10:17 PM (GMT 0)
I'll second that and I'm sure you'll get a third and fourth.

I drove to the local post office yesterday and my driving scared myself! I couldn't wait to get home to the safety of my couch...
Posted 4/1/2017 10:21 PM (GMT 0)
Hi Tick41,
I have heard others with Lyme say they have these symptoms. I haven't forgotten where I am, but have gotten spacey sometimes when driving. Not a good feeling at all.
So I'm sorry your having to experience this.

I wondered do you notice it more after a change or increase in ABX, like if you were herxing?
If you don't mind me asking, are you only on ABX or herbals too?

I only ask cause Buhner suggests some things for help with those symptoms.

jo
Posted 4/1/2017 10:25 PM (GMT 0)
Sorry, my bad, I just noticed that in your signature! Durr!!

I have heard from someone that they felt slightly dizzy after mino but couldn't be certain if it was a side effect or herx - and I guess either way that it wouldn't help that disorientated feeling - if that is occuring. Others with first hand experience will no doubt chime in and let you know if that was one of their side effects.

I would hazard it is a lyme symptom exacerbated by herxing. Up that detox if you can.
Posted 4/1/2017 10:45 PM (GMT 0)
Will up the detox smile
And Goshawk, I'm only on abx treatment just Zithromax and Mino. Interested in your suggestions from Buhner!

Post Edited (Tick41) : 4/1/2017 4:50:15 PM (GMT-6)

Posted 4/1/2017 10:56 PM (GMT 0)
That sort of thing escalated enough to frighten the heck out of me after I started abx for the infections.
I was/am convinced the 3 months of Doxy mono treatment drove the nasty organisms into my brain. It didn't start until well after I was finished treating.

But I realize this may have also happened to those that didn't treat with abx, so I'm still left wondering.
It coincided with some very stressful episodes with me but that alone doesn't add up.

Like for instance being able to deal with the sudden death of my Mother and then orchestrating her entire funeral, a handful of legalities all by myself, and whizzed through that like a pro. I did happen to be in my last remission at the time though too, thank goodness.

In all of my cases I wasn't taking anything to herx on.
Posted 4/1/2017 11:07 PM (GMT 0)
Ok, Buhner suggests on pg 219 of "Healing Lyme": For memory,cognitive dysfunction,trouble finding words, brain fog add:

Phosphatidyl-serine:100mg 3x daily and/or..

Ginkgo biloba,standardized:150 mg 2X daily, and/or...

Centella asiatica(gotu kola):500 mg 2X daily, or tincture 1/4 tsp. 2 X daily(may cause headaches) and/or...

Taurine: 125 mg, 3X daily.

He lists a bunch of others that also may be of help but those above are the main ones.

I'm not a medical person and I haven't had to take any of these, so make sure you do your own research on these.

You could also re post a new question asking"what helps with depersonalization/disorientation".

Others might see that and offer some more help.

I wish you the best and I hope you are able to resolve these symptoms very soon. Take care, Jo
Posted 4/1/2017 11:30 PM (GMT 0)
I used to have this (rather severely- and I also had seizures) when I was first in treatment with Mino, but it stuck with me when I stopped the Mino. It was simply too much for my body. I was herxing seriously and my doc didn't understand, so it went too far.

But it does happen to me on herbs too, although not as severe, but it's usually only when I"m herxing.

Kudzu root helped lower the brain inflammation, and Gingko Bilboa have been a great help to me on the dizziness and disorientation, overall brain function as well as brain pressure.
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