Son's new med protocol does this sound like A LOT?

Hi! I don't have any information on this, but just wanted to say I believe Girlie gets on in the afternoon. Good luck

Daisies,

Thank you! I think of you all the time, especially during my low periods. "If Daisies can do this with three kids, I can do it with one."

Are your kids older/bigger? I know some times the teens can handle it. My son is technically a teen but has delayed puberty (from Lyme) and has bone age/size of 12 year old and is small.

I will start Amox. this morning (he's still asleep) then Mino tonight. Maybe tomorrow I'll give him one in morning and then two at night until it increases.

I hate this!!!!

I hope your clan is doing well and making great strides. Hugs to you.

Tickbite,

Thank you! Wow you were/are really taking a lot. I'm assuming you are full grown though.

This is a kid. Before Lyme he had never even taken abx.

So if I'm correct in understanding you, you are suggesting:

Mino first, Amox 2nd, Septra 3rd -when do I introduce the Tinda? That one is Tuesday/Thursday.

Also what IS tindamax for?

Anyone care to give me a schedule of HOW I ramp up.

Thanks again.

Huddie said...
My son's new protocol from Dr. J. clinic. It sounds like a lot to me.

He is 99 lbs. and sensitive like me.

He begins today and I'm wondering how best to start him (not all at once that's for sure).

Girlie, are you here???

M/W/F 2x a day:
-Mino: 100 mg
-Amoxicillin: 875 mg.
-Septra DS: 800-160 mg. (this is how the dosage reads on bottle - weird.)
-Pharmacist said it was very strong abx. for a child. I think Septra is the one she was referring to.

Tuesday/Thursday: 2x a day
-Tindamax: 500 mg.

[Reads Tindazole on bottle so is this one of the black box warning drugs?]

How would you start? I’m calling J. clinic today but they never call back. I have called every day since Thursday

Hi Huddie!

A couple of things:

I believe that is Augmentin (looking at the dose?) which has Amoxicillin plus Clavulanic acid. The Clavulanic acid is to help stop the bacteria from becoming resistant to the medication.

The Septra DS is a combo of two meds: sulfamethoxazole and trimethoprim.

Remember the dosing is not daily....that helps a lot - it allows for more antibiotics to be used.

When I switched taking the rifampin and minocycline from daily dosing to M/W/F - I did feel like it was easier to tolerate.

Tinidazole (cyst buster) is fine to start later on...it is often prescribed after we've been on antibiotics for awhile.
You could wait until Cycle 2 for this one.

I'm thinking he could just take the Mino and augmentin the first week. Start Mino on Monday, and add Augmentin on Wednesday. Friday he will be on both...but has Saturday and Sunday off.
Bactrim was hard on me.

Maybe Wait till week 2 to add in the bactrim.
Then he will have 1 week off.

And tinidazole on the following cycle....or even wait to Cycle 3.


Edit: Changed the sentence to read: "Then he will have 1 week off" (originally typed "2" weeks)

Tickbite,

Thank you so much for explaining Tinda to me and what to do. I hope you are better now.

LWTC, thank you so much for helping me leave a message, it's the simple things! I appreciate it. How are you liking your care under J Clinic? I know so many take so much but he's small and herxes on everything (like me). Thanks.

Girlie, Thanks for the explanations. I was really hoping you would be on today to help me. I'm so confused how to do this.

So he began today and I gave him Amoxicillin this morning. It says generic for Amoxil. So not sure it is Augmentin.

TONIGHT: Do I give him the 2nd Amox. OR Mino?

TOMORROW: Is supposed to be Tindamax only, but I'm holding off on that so what should I do tomorrow?

If it's not too much trouble - care to help me with a schedule of how I get 2x a day Amox/Mino/Septra into him.

Pretend you are speaking to a five year old...

I SO appreciate you guys -thank you and hugs.

For comparison I started with 1000 mg 3 x daily. I found the amoxi one of the easiest to tolerate of all the meds I've been on.

So him being lighter 875 twice daily isn't too bad.
Hope he does okay on it. I would do the full dose of Amoxy before adding in the mino.

If he's doing well, then on Wednesday, you could add the evening dose of amoxy.

Friday - same as Wednesday (twice daily amoxy)

Then the second week:

If he's herxing badly...don't add.

If not, then add the first dose of mino.

Mon - amoxy 2X day and mino 1X day
Wed - amoxy 2X day and mino 1 x day
Fri - amoxy 2 X day and mino 1 X day

Then it's one week off after the two weeks on?

After the week off:

M - amoxy 2X and mino 1 X day
W - amoxy 2X and mino 1X day
F - amoxy 2x and mino 1 X day

Second week:

M- amoxy 2X and mino 1 X day
W - amoxy 2X and mino 1 X day
F - amoxy 2X and mino 1 X day



After this if he's handling it well, you could add in the second dose of mino.

Let's not get too far ahead...and see how he does on this.

Girlie,

THANK YOU! Again, I'm like a five year old with understanding this stuff.

To clarify:

1. TONIGHT, the first day, what should I do? Second dose of Amox.?

2. TOMORROW, the day that is supposed to be Tindamax - should I give nothing OR give a Mino?

3. Black box warning? I do NOT want to give him anything with a black box warning. Also are they the ones that can turn teeth dark?

Thank you so much!!!!!

The reason for going slow is so he doesn't herx badly.
If that happens - then not only will he be miserable, (and so will you), but it will just set him back if he has to stop meds for several days or longer.

I think it's better to take it slower....and hopefully...with detoxing the herxes won't be quite as bad....and he can just keep slowly ramping up to full doses of all abx.