Kelly Osbourne and lyme disease

/www.aol.com/article/entertainment/2017/04/05/kelly-osbourne-reveals-secret-battle-with-lyme-disease-memoir/22027386/

Sorry if this is a repeated post. I have been super busy and haven't kept up with the forum.

Stem cell therapy!! Wow. But the price tag is out of my range.

And, I don't know about this Stage calling. I wonder who has made the parameters for Stage 1, 2 and 3 and is there a 4? This staging is new to me also.

I've heard very little around town about stages. Maybe it was explained in other ways. If doctors are using this to customize approach that's great otherwise its kinda useless no?

is stem cell therapy something that's growing in terms of a possible cure in the united states or is this just out of the germany clinic?

"stages" of Lyme came from the doctors - and there are several different definitions to each, depending on who you talk to.

As Girlie said, there are 3 'stages' Early acute (bull's eye rash, but no symptoms), early disseminated (a few symptoms) and late/chronic (watch out! The house is on fire!) stage. Any other definitions are based on when symptoms happen or a time frame, and we know we can't trust those things for telling us what our body is actually going through.

Thanks for the info. My doctors did not say anything about stages. It was either "new current infection" or "hand it a long time infection." LOL!!

I have not heard of the stem cell therapy here in the US YET.

But, I love any attention to lyme we can get.

At least she did her part in downplaying and minimizing the illness

PeteZa - with lyme - there aren't any tests that help us determine stages...we just need to go on length of time and presentation of symptoms.

Obviously acute - is when you catch it right away - EM rash...no other symptoms
and disseminated - is when you get the symptoms.

Dr. Burrascano categories: Early localized (only EM rash), Early Disseminated and Late Disseminated


So - obviously catching it early is our best chance as opposed to many months to years.


www.lymenet.org/BurrGuide200810.pdf

I have to say, at first I was very hopeful that she'd bring more awareness...and then she turned it into a to gossip and bad mouth other celebrities instead. So disappointing.

OldSalty said...
I can certainly understand using stem cell therapy to repair the damage, but to treat a bacterial disease seems a bit of a stretch. Where it would be applied to strengthen the immune system is a puzzle.

Those are my thoughts as well...not sure how it would work for treatment.

They first killl the lyme then they boost the immune system then they do the stem cells. I have talked to a few people who have gone to infusio

In Russia and Europe using stem cell therapy very popular to repair the damage but NOT(!!!) to treat a bacterial disease.

PeteZa said...
Thanks Girlie now I know 1 doctor's definition of chronic.

1.Illness present for at least one year (this is approximately when immune breakdown attains clinically significant levels).

2.Have persistent major neurologic involvement (such as encephalitis/encephalopathy, meningitis, etc.) or active arthritic manifestations (active synovitis).

3.Still have active infection with B. burgdorferi (Bb), regardless of prior antibiotic therapy (if any).

ONE year is chronic. Now we know his opinion and I wish it was a standardized assessment. He doesn't address stages.


These lyme doctors need to all get on the same page. That is my whole point.

These are the ILADS Guidelines.

He does talk about treatment categories - Early Disseminated, Late Disseminated,.....etc

Time for an update on the treatment guidelines I think.


But, I guess it really doesn't matter - as long as treatment continues until symptom free plus a couple of months.

Oh my. Patrick Plum on Facebook has a great reaction to the article about Kelly Osbourne.

I hope you can find it and read it. here is part of it ----

Every time a celebrity comes out and says they have Lyme, I usually get asked to weigh in. Usually I don't....who wants to hear a random guy's opinion anyway!? However, this time I want to talk about it. Not because of Kelly Osbourne, but because of the lovely remark by Phillip J Baker who is somehow the executive director of a Lyme disease foundation.

"Most cases can be resolved with 3 weeks of oral antibiotics"

Let's exercise common sense here....if this illness is so easily treatable with 1 doctor visit and probably a $15 co pay for 3 weeks of a single antibiotic, why would someone not try that first? Are we really to believe someone's first reaction is to drop $40,000 and fly halfway around the world to try something that might not work and could be risky on a whim!?
Even if someone is wealthy, do we really think they want to throw money away on an experimental and insanely expensive treatment???

It's a "Non FDA approved treatment!"
Since when is that a valid reason to discount something?

Comedian Jim Gaffigan said it best. "Herbal supplements aren't FDA approved, and just to put that in perspective, the twinky is."

I follow Patrick and have for years in his struggle with lyme. Gosh I follow a lot of people. Kindred spirits, I guess.