Zionsville LLMD Experience

Last night I saw Dr.L in Zionsville, IN. I just wanted to say that I though she was incredible.

She has been treating patients for over 12 years. The great thing about her is that she knew all the info that I have researched on Lyme for the past year while being sick, and was able to give even more insight on the scientific details of everything. She also has tons of knowledge on both natural and prescription treatments. We talked a lot about Cowden, and Buhner and weighed the pros and cons.

She left it up to me whether I wanted to treat naturally, or with prescriptions which I thought was a little strange, but her reasoning is that if someone absolutely did not want to use "drugs" and she forced them to, it would not work as well for them just because psychologically from the start they would be denying the medication.

For me, I chose to go the prescription route for now to see how my body handles it. I have had gut issues in the past so this scares me, but I want to hit it hard and at the same time not spend a ton of money on supplements. I've already been down that path with not too many results.

She wants to put me on azithromycin and doxycycline for the treatment that would last anywhere from 18-36 months. She said she believes that I will start feeling better (or at least a change in symptoms) and if not, then I would have to switch up the antibiotics.

I did not start anything yet because I am having some heart issues and am having a stress test and echocardiogram done next week and apparently azithromycin can affect QT waves. She also ordered test for confections through MDL I believe, or Mercy Labs? Don't quite remember. Anyway, she thought this would help pinpoint which antibiotics to use as well.

Just wanted to share my experience and would love to hear thoughts and/or questions!

Post Edited By Moderator (Girlie) : 4/13/2017 1:13:02 PM (GMT-6)

Girlie said...
NicHostetier - I edited your post only to change the Dr. Name to her initial.

we do that to protect the privacy of our LLMD's. (We do post names of the more 'famous' docs, but not the others)

I'm happy you had a great appointment...and it's wonderful that she also considers herbal protocols.

Also glad to see that she didn't say you'd be well in 6 months...but 18-36 months.

Hopefully it won't take 3 years...though.

Thanks for doing that, I wasn't sure if I should put the full name or not.

And yes she did seem to believe anyone could ever get better in 6 months. She said since I am young (mid twenties) and only have been infected for a year, I may be better in 12-18 months. Is azithromycin commonly used to treat Lyme? I haven't heard too much about it with treating Lyme.

NicHostetler said...

Girlie said...
NicHostetier - I edited your post only to change the Dr. Name to her initial.

we do that to protect the privacy of our LLMD's. (We do post names of the more 'famous' docs, but not the others)

I'm happy you had a great appointment...and it's wonderful that she also considers herbal protocols.

Also glad to see that she didn't say you'd be well in 6 months...but 18-36 months.

Hopefully it won't take 3 years...though.

Thanks for doing that, I wasn't sure if I should put the full name or not.

And yes she did seem to believe anyone could ever get better in 6 months. She said since I am young (mid twenties) and only have been infected for a year, I may be better in 12-18 months. Is azithromycin commonly used to treat Lyme? I haven't heard too much about it with treating Lyme.

Yes, azithromycin is a commonly used antibiotic for lyme treatment.

You're not taking a cyst buster or anything for biofilm?

The xylitol is generally used for biofilms...LLMD's will also add a cyst buster at some point.

1 Tbsp to start is a lot.

It gave me diarrhea at 1/2 tsp. So, I am at 1/8 tsp and going to titrate up to 1 tsp...then 2 tsp.

I am so glad I ran across this website! I have been looking for a good Lyme Literate doctor in Indiana for awhile! I assume when you say Zionsville you mean in Indiana. I have had many symptoms of Lyme Disease for a few years now. I had a couple of different ticks on me 3-4 years ago but didn't think much of it at the time. My doctor said we don't have Lyme Disease in Indiana very often which I don't believe. I insisted on a blood test. The Lyme AB IGG/IGM cam back undetermined. Less than 0.91 is negative and above 1.09 is positive. Mine was 1.02. I'd really like it sent for the Western Blot test but my doctor said it wasn't positive so he won't do anything else. I really want to talk to someone who understands Lyme disease and will listen to me. Any help is GREATLY appreciated!

Tasha1987 said...
I am so glad I ran across this website! I have been looking for a good Lyme Literate doctor in Indiana for awhile! I assume when you say Zionsville you mean in Indiana. I have had many symptoms of Lyme Disease for a few years now. I had a couple of different ticks on me 3-4 years ago but didn't think much of it at the time. My doctor said we don't have Lyme Disease in Indiana very often which I don't believe. I insisted on a blood test. The Lyme AB IGG/IGM cam back undetermined. Less than 0.91 is negative and above 1.09 is positive. Mine was 1.02. I'd really like it sent for the Western Blot test but my doctor said it wasn't positive so he won't do anything else. I really want to talk to someone who understands Lyme disease and will listen to me. Any help is GREATLY appreciated!

Tick bites plus lyme symptoms = lyme disease.

If you still want a test, and don't want to spend a lot of money, you can do the Igenex Lyme WB IgM and IgG for $210.
Call Igenex and they will send you a test kit.

Tasha1987 said...
Hi Girlie, I would love to order the kit! Is it easy to find somewhere to have the blood drawn? I thought I read that a doctor needs to sign off on it or something. My doctor definitely won't because he doesn't believe Lyme Disease is an issue in Indiana. Do I need a doctor's involvement to have the blood drawn?

NicHostetler, I would love to get more information about the doctor you are seeing. Do you mind emailing me?

Any Dr can sign it - including a ND and a Chiroptactor.
If you don't have one willing to sign there is another option :

TrueHealth Lab - you can go through them - I will look it up later and post a link - I'm just using my iphone now and doing a few quick posts.

Tasha, I just realized you and I have been emailing!! This is one of the doctors that I sent you in an email - the top on on the list. Of course, if you wish to have more information about the doctor, I do encourage you to get in touch with Nic.

Traveler said...
Tasha, I just realized you and I have been emailing!! This is one of the doctors that I sent you in an email - the top on on the list. Of course, if you wish to have more information about the doctor, I do encourage you to get in touch with Nic.

You know the Lyme doctor in zionsville too? Did you see her?

I hope your experience with this LLMD continues to go well. I wish I had never started there.

Addy83 said...
I hope your experience with this LLMD continues to go well. I wish I had never started there.

Hey can you send me an email? I’d like to talk to you about your experience. I’ve been treating for over a year now and not much progress.