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Pulsatile tinnitus - what is it a symptom of?

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Posted 4/19/2017 7:47 PM (GMT 0)
Lyme, Bartonella, Babesia?

I've had a CT scan (normal) and MRA/MRV (normal), so I have to assume it's related to Lyme/coinfections.

It's my one symptom that never goes away (though does get louder/quieter at times)...was curious if anyone knows which one causes it.

Thank you!
Posted 4/19/2017 8:02 PM (GMT 0)
It would either be from Neuro Lyme or Bartonella most likely.

One thing that has helped my tinnitus has been the use of Lion's mane, because it helps rebuild the myelin sheath that protects the nerves. At this point, I still have tinnitus every once in a while, but it's no longer continuous and painful all the time.
Posted 4/19/2017 8:05 PM (GMT 0)
Traveler - Thanks! Did you do the Lion's mane as a tincture or a powder? (Not sure it matters) Also, what dosage did you use take, and how many times a day? I'll be ordering some... Already doing a lot of the Buhner herbs.
Posted 4/19/2017 8:17 PM (GMT 0)
I start most things as a tincture - drops are just easier to start at low doses. I started with 2 drops and have worked my way up to 1/4 tsp twice a day now. That's all I needed to get not only my tinnitus down, but to have a lot of other nerves healing as well in my feet, hands, around my mouth (didn't realize I had it there!) as well as other places around my body. They are not all gone, but greatly reduced.. I know that I will have to get further into treatment to stop the damage from being done before I can rely solely on the lion's mane to work to heal the myelin sheath everywhere.
Posted 4/19/2017 8:21 PM (GMT 0)
One other thing - since it's the pulsatile tinnitus only, you may or may not find this helpful - it may be simply that you are hearing the blood pulsing through your veins. You may have what some call thick blood, or high fibrin. This happens with Lyme, and it's not necessarily the myelin sheath damage that is creating it.

Are nurses or techs complaining because your blood is hard to draw because it's so thick? If so, you should talk to your LLMD about this, as they may wish to test your blood (PT/INR) to see just how long it takes to clot, and may choose to start you on something to thin the blood. There are both pharma and natural things you can take to thin the blood - if it's needed. But this is something that we should not do on our own, as the risk of bleeding too much is a very real threat.
Posted 4/19/2017 8:54 PM (GMT 0)
Traveler - Interesting, thanks! I've actually wondered if it's something like that. The lab techs do not complain but veins are another issue for me, so due to the large and prominent veins, it's fairly easy to draw my blood. Appreciate all of your thoughts on this!
Posted 4/19/2017 9:07 PM (GMT 0)
Hi Anne - I have the pulsatile tinnitus.

I didn't know what it was at first. prelyme diagnosis - I would stand from sitting and my head would pulse...I had hubby test my bp thinking that's what it was...

When I put my ear on the pillow...I would hear/feel it pulsing - in time with my heart beat.

Mine is almost gone. I think bart treatment helped the most. I'm now on babs treatment and we'll see if it completely resolves.

Weird thing is when I'm awoken in the early morning hours...with a bit of sweating and anxiety...the pulsatile tinnitus flares a bit.

I've never had it checked via testing/scanning.
Posted 4/19/2017 9:29 PM (GMT 0)
Hi I also had a heartbeat in my left ear. It was one of my first few symptoms before the neuro Lyme hit hard last Aug/Sept.
It went away with in the first month of treatment when I was on doxy.

However I had a different ear (area/behind ears) symptom weeks later that was like thumping, not a heartbeat though.

That has gone away now also with azithromycin , malarone and buhner protocols.

I hope you all get relief soon from it.Take care, Jo
Posted 4/19/2017 9:30 PM (GMT 0)
I had it. It was a side effect of the doxepin I was taking for sleep. Check your med side effects profile as tinnitus is a side effect of many meds.

Post Edited (BJD55) : 4/19/2017 4:54:40 PM (GMT-6)

Posted 5/9/2017 12:06 AM (GMT 0)
One more comment/question - when I press on my carotid artery (on the right side of my neck), the pulsatile tinnitus goes away (or is greatly minimized at least). Is this typical of pulsatile tinnitus, or might this clue me in to the type or cause?

Thank you!
Posted 5/9/2017 12:32 AM (GMT 0)
often times its a dental cavitation-wisdom tooth space
Posted 5/9/2017 12:41 AM (GMT 0)
Since mine came on with Lyme and co's - I'm thinking it could be a nerve issue.
Mine is on both sides..is yours ?
I can't see how an issue with an artery would happen on both sides.

/www.tinnitusformula.com/library/pulsatile-tinnitus-2/

Read at the bottom of the article about caused by turbulent flow and pressing on neck.
Posted 5/9/2017 1:37 AM (GMT 0)

A_Anne said...
One more comment/question - when I press on my carotid artery (on the right side of my neck), the pulsatile tinnitus goes away (or is greatly minimized at least). Is this typical of pulsatile tinnitus, or might this clue me in to the type or cause?

Thank you!

I commented the exact same thing about my pulsatile T. I was told my artery was close to ear drum. Yet it went away when I was pregnant. Recently have had it again but very mild.
Posted 5/11/2017 11:09 PM (GMT 0)
have you had your ferrtin blood lvl checked (iron?) it can cause this issue, and ferrtin is often lowerd by the body when fighting an infection/virus. (our body does it as many viruses feed on our ferrtin lvl, so its part of its defense. alas lyme doesn't feed of it , so its not a great help for us)
Posted 5/12/2017 12:14 AM (GMT 0)
A Anne, I hope you see this. Please ask your doctor/llmd to order a carotid artery ultrasound just to rule out other possible issues besides Lyme and co. that could cause Pusatile tinnitus.

I say this because you mentioned if you press on your neck it changes. Mine didn't change when doctor did that.
My doctor and hospital did ultrasound to make sure no other issue to be safe.

I had the pusatile tinnitus as one of first symptoms mine turned out to be from Lyme and co. its gone now with treatment.

Take care, Jo
Posted 5/12/2017 1:10 AM (GMT 0)
Goshawk - since mine is in both ears - it's unlikely it's from the carotid artery?
Both arteries wouldn't have an issue/blockage?
Posted 5/12/2017 10:54 AM (GMT 0)
Hi Girlie,
I am not sure about that, but I just know that my MD, cardiologist, and neurologist when I was hospitalized before I knew all these symptoms were Lyme said they wanted to rule out any blockage that could possibly cause the pusatile tinnitus.
Hence the ultrasound.

It was just one more thing to rule out then.

Now I know all my symptoms were Lyme and co but I think its best not to take any risks in case we have any other underlying medical issues.

I hope yours goes away soon and I wish I had more insight for you. Take care, Jo
Posted 5/30/2019 5:44 PM (GMT 0)

A_Anne said...
One more comment/question - when I press on my carotid artery (on the right side of my neck), the pulsatile tinnitus goes away (or is greatly minimized at least). Is this typical of pulsatile tinnitus, or might this clue me in to the type or cause?

Thank you!

A_Anne,
I would have an ultrasound done of your carotid arteries. I also have pulsatile tinnitus. What you described is putting pressure on your carotid artery, and the sound changing. My pulsatile is very loud. I am starting to treat for lyme as I'm pretty sure that is the cause of it. I have ruled out many other things medically already.
Posted 5/30/2019 5:47 PM (GMT 0)
including an ultrasound of the carotid arteries. Mine were fine. I agree very much with goshawk comments.
Posted 5/30/2019 5:55 PM (GMT 0)

Traveler said...
I start most things as a tincture - drops are just easier to start at low doses. I started with 2 drops and have worked my way up to 1/4 tsp twice a day now. That's all I needed to get not only my tinnitus down, but to have a lot of other nerves healing as well in my feet, hands, around my mouth (didn't realize I had it there!) as well as other places around my body. They are not all gone, but greatly reduced.. I know that I will have to get further into treatment to stop the damage from being done before I can rely solely on the lion's mane to work to heal the myelin sheath everywhere.

Traveller, I am interested in the lions main you talked about. I have Pulsatile Tinnitus badly. It's like a loud chorus of crickets, with a high pitched ring that all goes with my heartbeat. Is this also known as "Mane Mushroom (Hericium Erinaceus). I want to make sure I get get the right stuff. Thanks.
Posted 5/30/2019 6:11 PM (GMT 0)
Traveler doesn't post here regularly anymore. But her email is still enabled...and I'm sure she wouldn't mind an email.


I do know that Woodland Essence now carries the Lions Mane.

https://woodlandessence.com/products/lions-mane-liquid-extract?variant=42183435726
Posted 5/30/2019 6:52 PM (GMT 0)
Thanks for the heads up. Are the capsules as effective as the liquid extract?
Posted 5/30/2019 7:15 PM (GMT 0)

bikernut said...
Thanks for the heads up. Are the capsules as effective as the liquid extract?

I would think so.
Posted 5/30/2019 7:16 PM (GMT 0)
OK thanks a lot.
Posted 5/30/2019 9:37 PM (GMT 0)
The advantage of tinctures is you can start very low ie - a few drops and slowly increase
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