HealingWell
Search Close Search
☰

My healing story - about 70% better

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 4/23/2017 12:29 AM (GMT 0)
Hi LongJourney -

Thanks so much for posting! Sounds like you've had great progress so far. It is a loooooong journey.

Agree w/ julymorning regarding the B12 - if you don't feel anything after a week, try a hydroxy form (I'm assuming you're on a methyl form, as most people are). If that doesn't work, keep going to a "more broken down" version - cyano B12.

I like your focus on the gut for brain detox -
Try adding in a biofilm buster - biofilms can get out of hand for us but also, antibiotics can make them worse. Start w/ very low doses and be sure to stay on your antimicrobials while you start in case any are released when the biofilm is killed. Slow and steady.

Also, be sure you don't have any yeast/fungal overgrowth from all the meds. The probiotic might not have been enough. Can cause depression.

Make sure you're taking a binder.

And if what you're dealing with is more like disassociation, try more brain detox like anti-inflammatory japanese knotweed, turmeric.

Other brain support is Huperzine (cheap on amazon).

Hope this is helpful -

-p
Posted 4/23/2017 12:31 AM (GMT 0)
abhi -

I'm sorry you aren't doing well. Please create a new thread and share what your symptoms are and what you're doing in your protocol - we can try to help you in a more focused way.

-p
Posted 4/23/2017 1:10 AM (GMT 0)

LongJourney said...
My treatment took 11 months, rotating combinations, no pulsing, no herbs, no detoxing.


Congrats Long journey! I need to hear these success stories. I've wondered how I will feel emotionally when my body is healed of this. I'm afraid I'll have ptsd or something.
about your treatment. Did you have herxheimer reactions?
Kudos,
BJD
Posted 4/24/2017 2:19 PM (GMT 0)
Hi BJD55,

yeah, it could be something like PTSD. I spent 11 months at home watching Netflix. For the first 6 to 7 months, I had severe brain fog. I got lost while driving. Couldn't find the words. Couldn't read or write. All that, having to go to work. Then I got laid off and had to find another job with brain fog.

The fear of not knowing how bad the next day would be caused a lot of anxiety. Not being able to communicate made me withdraw socially.

I don't think I had herx because I felt horrible all the time until my second month on dox. They say herx happens after you change antibiotics. I rotated combinations of antibiotics often. Some were for malaria, since I also had babesia. That's why it took me so long to start on doxy.

I hope you feel better. Don't be discourage if you don't see any improvements right away.

Best of luck
Posted 4/24/2017 8:30 PM (GMT 0)
This post was really encouraging. Great to hear you have seen such improvement in such a short time!
Thank you LongJourney for sharing your story.
Posted 4/24/2017 9:53 PM (GMT 0)
Hi Long journey,
I just want to say thank you for sharing your success story. It gives me and others hope.

Remember we are here for support while you navigate through this phase of remission.

Having such a complex illness changes a lot of things for us. You just accomplished a major feat by battling this for 11 months. Now you are beginning a new chapter in your journey... life after Lyme.

Maybe you could learn or do something totally new that gives you a goal or a purpose. Something that will make you look forward to every day.

Even something little can have a huge impact in our daily outlook. A new hobby, volunteer work, learn something you maybe have always thought of doing but didn't have the time or energy before to do.

Well I wish you the best and smile, take a deep relaxing breath, and say I am healthy, I am important, and I will be happy, I will find joy again. I just know you will.

Take care, Jo

smile
Posted 4/25/2017 2:07 AM (GMT 0)

LongJourney said...
Hi BJD55,

yeah, it could be something like PTSD. I spent 11 months at home watching Netflix. For the first 6 to 7 months, I had severe brain fog. I got lost while driving. Couldn't find the words. Couldn't read or write. All that, having to go to work. Then I got laid off and had to find another job with brain fog.


OMG, you are one tough cookie. I couldn't imagine having to work, much less job hunt and interview in this condition. Cognitively, I' think I'm okay alone or with one person. My scores on lumosity are in the 85th percentile, yet I can't follow conversations with multiple people, have word /name retrieval troubles, i shut down from over stimulation, and today I just came to realize I'm having executive function issues. Today, I was wondering what's taking them so long to send my tax refund. Looked on turbo tax only to discover that I never bothered to file after I completed it. Yikes!

Thanks again for sharing your successful long journey, Long journey. turn
Posted 4/25/2017 2:08 PM (GMT 0)
I think it's good news that my mental capacity returned to normal. I noticed I've been using more complex words lately. I was afraid the damage could be permanent. I was misdiagnosed with migraines for 6 years before starting treatment. My symptoms were mostly neuro.
Posted 4/25/2017 3:50 PM (GMT 0)

LongJourney said...
I think it's good news that my mental capacity returned to normal. I noticed I've been using more complex words lately. I was afraid the damage could be permanent. I was misdiagnosed with migraines for 6 years before starting treatment. My symptoms were mostly neuro.

That is really good news! I have trouble just trying to pronounce more complex words.
✚ New Topic ✚ Reply
12