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Heat and/or sunlight Intolerance NOT SWEATING

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Posted 4/24/2017 8:58 AM (GMT 0)
Hello,

Long time lurker first time poster.

Bit in 2012 symptoms 2013 figured it out 2015 and finally family support to get properly treated March 2017.

Every summer I'd randomly get heat intolerance, usually in the afternoon. It has gotten worse annually and now I can't even get outside to the car until the sun goes down. I stay in my apartment and I can still feel the UV creeping in around the curtains. It's crazy. Heart beat will skyrocket and feels like I'm going to pass out as soon as Im outside 7 seconds.

Low potassium,

TSH 3.34 miu/L
FSH 1.3 iu/L
Free T3 3.6 pmol
Testosterone 8.1 mnol/L

Canadian units.

B12 was low but increasing
Magnesium probably low no test yet
Aldosterone and D levels haven't come back yet.

What else should I have checked?

Post Edited (GTIXJ) : 4/29/2017 7:03:40 PM (GMT-6)

Posted 4/24/2017 9:23 AM (GMT 0)
Ggt
ferritin
iron
cortisol
dhea

but the heat intolerance is common. Ms people have it too .i thinks its the lack if microcirculation doest allow for cooling of the skin via perspiration .when i had bad vasculitis ,and purple like mottling with livedo it was bad ..better this year ..it goes for cold too..
i thought bactrim cause porphyria. .maybe it did

Oh welcome btw..check out lyme lingo ,new to Lyme and microscopy threads
Posted 4/24/2017 10:41 AM (GMT 0)
Thanks BL. Yes. I notice nowhen that I cold intolerance. My hands and legs/feet will often be freezing too. Even if torso and head are flush.

Cortisol normal. Ferritin is elevated. Don't have the others.

Can't believe how slow medical system moves. It's all a bad dream yknow?
Posted 4/24/2017 2:28 PM (GMT 0)
I would guess your vitamin D levels are low if you aren't going outside.

I'm so sorry this is happening to you. I could not tolerate heat. I had to turn down the temperature of my showers quite a bit. I tried to stay in an area where it did not get above 85 degrees outside.

Treatment was the cure for this.

Oh, and when I did get cold.... I was cold to the bone and all bundled up in blankets.

Lyme disease is so weird.
Posted 4/24/2017 2:46 PM (GMT 0)
Hi GTIXJ!
Welcome to our community! I'm so glad you chose to 'officially' join us!!

As Blue said, those are not uncommon symptoms. You can also take this questionnaire, if you have any questions about having these infections - it usually helps clear it up: lymeontario.com/wp-content/uploads/2015/03/Horowitz-Questionnaire.pdf

If you haven't yet, please do read through our "New to Lyme" thread that sits at the top of the forum - it's packed with helpful information.

Are you looking for a doctor to help you, or do you wish to just do treatments at home? We can help you with both - just let us know!
Posted 4/24/2017 5:03 PM (GMT 0)
Hi GTIXJ - welcome.

Can you post the thyroid test ranges? It's difficult to see where you stand with those.

So what area of Canada are you located?

Are you treating herbally...or with antibiotics?
Posted 4/24/2017 6:47 PM (GMT 0)
Thank you. Seeing an LLMD in upstate NY
I am in eastern Ontario.

Current: Azithromycin, Hydroxychloroquine, Probenecid, Cefuroxime, Malarone, Nystatin

Bab2, cognease detox, charcoal, detox 2, and adding buluoke soon

Vitamin D is 23 when it's supposed to be between 75 - 250 - results came in today.
Posted 4/25/2017 12:21 AM (GMT 0)
Supa slow ...see a specialists" see your pcp .i saw 33 doctors in 6 months unwilling to accept their bs . Curcumin iv helped calm the vasculitis .it gets better measure it in months or years but it gets better
Posted 4/25/2017 12:41 AM (GMT 0)
I'm hoping Testosterone, vitamin d, magnesium, or something thyroid will resolve it.

Seeing specialists and PCP has gotten me nowhere, symptoms got so bad in January that my family finally came around to my state of thinking. I just wish they hadn't waited as long as they did because now it's really hard.

3.75 years of trying to put a name to my problem in Canada and I haven't gotten a single thing except doctors scratching their heads and ordering the same VERY basic blood tests. And when you ask them to order anything they can't understand why you'd want it ordered.
Posted 4/29/2017 12:32 AM (GMT 0)
GTIXJ. You are not alone. I have this same symptom!!! I can't get in a hot car or even stand in the window when I am inside (in the A/C) and the sun is shining through the window. My heart immediately starts pounding I feel like I am going to pass out or my head will explode.

It's just starting to get hot here and I am terrified. My kids have a few important outdoor activities soon and I think I won't be able to go sad

I have had my thyroid, heart and hormones tested. Nothing out of range. Everyone says treat longer so I am trying to do that but it's frustrating and isolating being alone in the house while everyone else is enjoying outside. I even have crazy theoughts like what would happen if my car broke down and I had to be outside for more than 5min.

Anyone out there. What was the "magic" treatment that finally made this symptom disappear? Did it suddenly go away or fade away slowly?
Posted 4/29/2017 1:02 AM (GMT 0)
Bee venom is my majik ..it faded slowly as circulation got better ...also look into iv magnesium and a herb called chanca piedra..it breaks calcium deposits in biofilm but have a antimicrobial on board if you attempt
Posted 4/29/2017 3:21 AM (GMT 0)
Welcome, GTIXJ. Well, today I found out for sure that I CANNOT handle the heat or sun. I was trying to do some outside work (albeit on my hands and knees) and my heart started racing and pounding and I thought I was going to faint. The heat really revved up my symptoms BIG time. This is literally crazy. I looked forward to the warmer weather so I could get some fresh air after being cooped up all winter but I have a stinking feeling I will be in the air conditioning house most of the summer.....at least until sundown or cloudy days.

Patty
Posted 4/29/2017 4:10 AM (GMT 0)
It is rather unpleasant. It takes a long time to find posts on the Internet of people complaining of the same symptoms as this. And it seems like they just never post what resolved it. One person cites it "resolved after treatment"

The closest thing I'very found were many people talking about severe adrenal fatigue. But when you look that up on the Internet there is no detailed solution, just pages telling you all about the he symptoms and how it happens and to resolve it with diet change.

I had my thyroid tested and things are in range. TSH high end normal and FSH low end normal. Alderestrone is high end normal. Testosterone is extremely low so they are putting me on androgel starting Monday or Tuesday and I hope I see results because this is currently hell and I can't find a single person who's having the exact same problem.

So my advice. Have -every- thyroid thing checked. Have all hormone levels checked. I'm doing one of those mail away saliva things too but I'm only mailing it out Monday.

I'll try to remember to post here if I get free of this problem. It seems like others just abandon their thread. Hopefully that means they returned to regular life.
Posted 4/29/2017 8:45 AM (GMT 0)

summer16 said...
Welcome, GTIXJ. Well, today I found out for sure that I CANNOT handle the heat or sun. I was trying to do some outside work (albeit on my hands and knees) and my heart started racing and pounding and I thought I was going to faint. The heat really revved up my symptoms BIG time. This is literally crazy. I looked forward to the warmer weather so I could get some fresh air after being cooped up all winter but I have a stinking feeling I will be in the air conditioning house most of the summer.....at least until sundown or cloudy days.

Patty

Patty, did you sweat? I mean really think about it. You got hot and maybe your arm pits /feet did bUT did your arms torso at all?

I am realizing I do not sweat and I'm finding more pages on the net about lymies not sweating thus not cooling their body off etc.

Some say thyroid, others say babesia, same thing people talk about it and the thread dies.
Posted 4/29/2017 11:09 AM (GMT 0)
No, I did not sweat. I just felt really overheated. It does get discouraging when not being able to find answers.
Posted 4/29/2017 10:52 PM (GMT 0)
My expensive and high end LLMD says FAR INFRARED SAUNA sessions will help with getting you to begin sweating again. There is a "prep" you have to do before going which she hasn't outlined. And you have to start low and quick sessions, it will take time but I guess it will help.

Other factors online are low iodine for thyroid function. That's just stuff I've found online. Can't find much else.
Posted 4/30/2017 7:46 AM (GMT 0)

summer16 said...
No, I did not sweat. I just felt really overheated. It does get discouraging when not being able to find answers.

Summer,

What if you're in your air conditioned home, and youre cool and someone brings over various spicy foods and maybe a shot or two of Jack Daniel's.

Make sure you're well hydrated beforehand.

And have a cool bath already on standby.

If just your hairline sweats eat a little more, also could adjust room temperature to increase a bit more heat. Bath srays ready.

I'm curious.
Posted 5/1/2017 7:04 PM (GMT 0)
True heat intolerance points to damage of the autonomic ganglia.
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