Posted 5/4/2017 7:13 PM (GMT 0)
I'm currently being Treated with Clarithromycin/Bactrim/Malarone/Nystatin and pulsed doses of Rifampin.
My arrival at Lyme has been frustrating. I became aggressively sick at the end of 2015, and my entire autonomic nervous system became derailed--Trouble breathing, burning/freezing hands&feet, neuropathy, shortess of breath, trouble swallowing, ED, GI issues, disturbed sleep, rapid heart beat, etc. As months progressed other bizarre ailments occurred--hair loss, wrinkled fingertips, penile changes, and most disturbing--2 months of terrible nerve pain in hands with some wasting throughout my entire body. I lost 7,8 pounds over just 2 days and everything from standing on hard floors to siting on a chair hurt. My lean athletic toned body became skinny and flabby. I became incredibly weak and fatigued.
Seeing that I spend almost every weekend of the summer in upstate NY (hiking/biking/etc), Lyme was originally suspected by myself and family. However, after trying Doxycyline for 1 month early on, and then 6 months later Amoxicillin, with no great progress, I gave up on treatment. Throughout this time I saw 20+ doctors as everything was affected. No doctor could come up with a diagnosis as my blood results looked clear for auto immune diseases. I've since linked up with a different lyme doctor and he believes strongly that I have Lyme. My IGENEX test only provided 3 intermediate bands, but 2 were lime specific bands. My Western Blot, similiarly, only 2 bands but again one was lyme specific.
I've been on treatment for 3 months, and my neuropathy seems to be dying down which gives me hope I'm on the right path. I've also noticed a very slight improvement in bowel movement and very light sweating under my arms (had not happened for 6+ months).
Traveler-your post of this article- www.ncbi.nlm.nih.gov/pmc/articles/PMC3751012/
struck a cord with me, as I've been mentioning changes in my penile foreskin, and every urologist has been perplexed. In the above article, changes in the "frenulum" are mentioned (which I wasn't aware that was the name of the area I was trying to get them to pay attention to). This further gives me hope that I'm on the right path.
Lyme is obviously tricky--I have no brain fog or mental ailments, but my body has physically been ravaged the last 2 years.