Glutathione/update on my mom

I haven't had IV glutathione...i tried oral but had to throw it out because I didn't realize it was supposed to be refrigerated.

I haven't read anything about it causing cloudy/mucousy pee.


Question: Is she taking Actigall while on the IV abx?

I've had the IVs as well and don't recall cloudy urine.

Lyme loves the kidneys/adrenals and bartonella the bladder. Llmd said the only thing that clears lyme from kidneys is rocephin a lot of is excreted via that pathway. Make sure she is drinking almost her weight in oz of water . One simple effective diuretic is asparugus ..i believe it detoxes sulfur and one or 2 sticks may help .nutrimedix makes one called sparga for this . It will smell like brimstone and her body is likely holding on to it to protect herself ..glut ,msm and the like have a sulfur component ..when she is better she may want to do a genetic varient analysis to see if she has mthfr and or cbs mutations

Post Edited (bluelyme) : 5/16/2017 7:59:24 PM (GMT-6)

Girlie - Yes, she took actigall right before she got the IV antibiotics.

BeKind - We actually purchased NAC through the center she's getting treated at. It is part of her treatment plan.

She has been drinking AT LEAST 64 oz of water as the doctor suggested...we're always pushing for more though of course. She has her second round of IV antibiotics today....hoping we start to see SOMETHING after a few weeks of it....

-Kari

I'm taking oral glutathione. I hate the taste so have not been good about taking it regularly, but when I do I did not notice anything abnormal.

Do let us know how she dose after this second dose.

I have had a very odd smell to my urine, and I believe it's because I've finally hit a good detox for my kidneys. It's the smell of burning plastic (ICK!!), but as it calms down, it smells more and more like cat urine (heavy ammonia smell). I haven't seen anyone else posting about this type of smell from their urine, so I did what I could to track it down and that's what led me to believe I was finally detoxing out heavy amounts of ammonia - but, I can't be sure as I am without a doctor, so no testing is available to me.

This was all to say that even though we all have similar experiences and symptoms, sometimes odd things do pop up and they aren't all bad.

Best of luck to you and your mom after this dose!!!

My moms second treatment of the IV rocephin was today - she said one thing she has noticed since the first treatment and into today is her left side feels tingly almost like when your hand falls asleep, etc. and now she said her right foot feels the same. Could this mean anything?

So update on that - her feet were tingling and then they stopped...when I touched them we both started crying...her feet feel normal, all except the big toe. She's always had a neuropathy feeling in her feet, said they felt like broken glass. She said they feel normal now. We finally have a good reason for some hope!!

-Kari

Girlie - I know; I actually told my mom that. I told her they might go back to how they were, but that she needs to remember the change. Because that small change is significant. Her feet haven't felt normal in months. I told her this should give her the validation she's been needing that this is Lyme disease.

-Kari

This is good ..so glad is she on the full 2 grams of rocephin? It is lyme ..do the dna connexions test for proof ...and coinfections ...no doc needed ..no blood just cloudy pee 3 weeks /500$...
i am almost certain the results page will light up like a christmas tree.
mycoplasma ,heminith, detox ,and bvt /rife ,healing nerves all need to be researched for later
Yea first step taken ...i am overjoyed ...you will get more time with her at a better quality of life

Post Edited (bluelyme) : 5/17/2017 7:10:13 PM (GMT-6)

That's what we wanted to hear!!! YAY!!!! She's making progress!! Proof that it's these infections and not ALS!!!

Congratulations all the way around!! Give your Mom a HUGE hug from us as we are all so thrilled at her progress, even if we do realize that there will be ups and downs - this little bit of progress shows everyone that she has infections and can heal!!!

Woo hooooooooooooooooooooo!!!!!!

I think it's safe to say we can't wait either!!! Best of luck and don't forget to let us know how things are going, or if you have questions or concerns!!! We are here to help when we can!

Hugs to you too!! You're doing an AWESOME job in a very difficult situation!!!