Low VIP and VEGF, finally starting IVIG

My new LLMD North of Boston ran a bank of labs that had not been run before.

"Some of your test results are back. Most significant is the nasal/sinus culture. You are positive for MARCoNS, resistant bacteria that create a biofilm. This bacteria, based on your individual report, is resistant to 8 different antibiotics. Only way to clear it (which is difficult) is a compounded combination with gentamicin, EDTA and mupirocin. Some of the labs are abnormal as well with low VIP and low VEGF."

I had not specifically been diagnosed with MARCoNS but it was assumed as I had been tested for mold toxicity. Still trying to understand VIP and VEGF; new terms for me. From the little bit I have researched so far, it seems these may have contributed to my stroke in December.

On a positive note, I am finally starting IVIG tomorrow. Someone had asked which Dx my Dr. used for approval. All, I know at the moment was Small Fiber Neuropathy and Polyneuropathy.

I will keep the forum posted on progress with the IVIG. If anyone has any insight on the VIP or VEGF I would appreciate your thoughts.

Thanks,
Ed

ShutterGy - Congrats on getting approved for the IVIG.

Are you currently treating with anitiboitcs? Can you be on them while doing the IVIG?

That is horrible that you had internal bleeding and stroke! I hope the IVIG helps. Please let us know how it goes.