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Minocycline for Lyme?

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Posted 5/23/2013 4:20 PM (GMT 0)
I have seen several drug sites that say Minocycline is used to treat Lyme, but I don't see much about it on Lyme websites.  Have any of you been treated with Minocycline and, if so, what dose?
Posted 5/23/2013 5:26 PM (GMT 0)
Minocycline has about double the CNS penetration as Doxy so it is used for Lyme but Lyme docs don't like to prescribe it because it can be harder to tolerate mainly because of dizziness. 200mg. of Mino is generally prescribed for Lyme as that would be equivalent to 400mg. of Doxy.

I'm currently on Doxy and don't know how anyone can take 400mg. as it makes me very nauseous though 300mg. does not at all.
Posted 5/23/2013 6:48 PM (GMT 0)

Thanks so much for the info, ToddPaul. 400mg of Doxy did not bother me if I took it with food. My doc will not continue me on Doxy (I've been on it for 4 1/2 weeks). However, I have some Mino that he had prescribed for me a few months ago for a different issue that I did not take. I may take it now to get me at least 6 weeks worth of Abx.

Posted 5/23/2013 8:27 PM (GMT 0)
I've read all that but the problem for me is I can't take any blood thinners or I'll bleed from my right nostril and Samento made me bleed second day on it. Most herbs thin the blood so it's a problem for me. Doxy or Mino should be taken with a cyst-buster like GSE or Tinidazole or Flagyl to kill the cyst form.
Posted 5/23/2013 9:15 PM (GMT 0)
Thanks but I don't have a clotting issue or I would have black and blues all over. The problem is with the nostril. The ENT thinks it's an open vein or capillary as I get nose bleeds fairly often. I could just imagine what serrapeptase or nattokinase would do.
Posted 5/23/2013 10:45 PM (GMT 0)
The ENT cauterized it but it didn't seem to help. Thanks for trying magoo.
Posted 5/24/2013 1:29 AM (GMT 0)
Yes, I had read the articles re Samento and Banderol. Just to be sure, I would like to hit it with Abx AND herbs, expecially since I am doing this on my own for right now.
Posted 5/24/2013 1:42 AM (GMT 0)
Yes, I'm on 200mg/day of it. Like someone else said, it's the equivalent of 400mg of doxy and has better brain penetration. It also causes less of the issues of sun sensitivity that doxy does and for me, was easier on my GI system than doxy. The only thing is that it can cause dizziness. That's a know side-effect, but I didn't have that.
Posted 5/24/2013 2:10 AM (GMT 0)
Can it cause the dizzyness as soon as you start it?  I have taken only 2 doses but this afternoon I turned so dizzy and nauseous that my husband had to help me to a chair.  I took a nap and since then I have been fine.  Not sure is I want to take any more or not.
Posted 5/23/2017 5:18 PM (GMT 0)
Yep. started it today. Took 50mg and didn't feel it so I took the other 50mg and a got a little light headed so be careful getting up after taking and be ready to sit back down if you do. Also feeling flushed. Wife said I was hot to the touch.

I am fine and just glad I am tolerating this well.

For me day 1 is always the hardest and this isn't too bad. Doxy was rougher when I first started. We will see how the next few days are.

I am actually happier when I can feel it do something. With Tini and or Alinia other than a day 1 herx on the former, I don't feel it doing anything.

The evening dose is up in the air for today. We will play it by ear.
Posted 5/23/2017 6:02 PM (GMT 0)
I think it is mentioned a lot on this Lyme forum. It's a popular, often prescribed med for lyme.

It does have several possible side effects (so does doxy)

The head issues are thought to be because of the good penetration through blood/brain barrier.
I was a bit dizzy when I first went on it.
My LLND had me start with 100 mg once daily...for a week (I can't remember maybe it was two weeks?)

It also can cause some staining on the teeth - a grayish color. The dental cleaning doesn't get rid of it...it's not on the surface of the tooth.
Maybe over time it will fade. (I have noticed my teeth do have a grayish tinge on the lower 1/3 of the front teeth)

So the dose is 100 mg twice daily.
Posted 5/24/2017 4:55 AM (GMT 0)
Apparently using magnesium to bind Mino would be a BAD idea.

Drugs.com reports this only with injection of Mino, but that should indicate that it is a possibility with oral.

"Magnesium intoxication (including flushing, sweating, hypotension, depressed reflexes, flaccid paralysis, hypothermia, circulatory collapse, cardiac and CNS depression, respiratory paralysis)"
Posted 5/24/2017 1:41 PM (GMT 0)
I have been on Minocycline for 3 years now, 100mg twice a day and experience dizziness sporadically. I am not sure if it's the antibiotic or the disease. You should take a probiotic nightly as well.
Posted 5/24/2017 5:02 PM (GMT 0)
iLyme - what are you taking with the mino?

Have you not switched it up? Tried something other than mino?


Are you making good progress?
Posted 5/24/2017 6:04 PM (GMT 0)
When I was initially diagnosed with MS first then Lyme, I was put on Zithromax, Rifampin, and Minocycline. It was about a year on all 3 and then I discontinued Z/R. I am staying on Minocycline because they (doctors) treat both Lyme and MS (apparently) with it and it has great anti-inflammation benefits.

I have no need to switch up treatment at this point, since I am technically battling two diagnosis's both of which are treated with Minocycline; like I mentioned. I do follow the MCT Keto diet and also the FMD diet.

As for progress: the first 2 years were good, less symptoms and lesions healing. I weaned off Mino for a bit as a test and sure enough I had symptoms and new lesions.

I also take daily supplements like D3, B-complex, resveratrol, NAC and ALA, etc...

The best success is using LDN, I swear by that stuff.
Posted 5/24/2017 6:16 PM (GMT 0)
That's great that the lesions are healing! Too bad the majority of people diagnosed with MS don't look into Lyme disease as a possibility.


So, are you close to symptom free now?



Also good to hear that the LDN is working for you.
Posted 5/24/2017 7:05 PM (GMT 0)
It is a shame about alternative diagnoses, like RA, ALS, or Fibro. The patient really has to be their own advocate, took me over a year of fighting. Here's an article from last week close to where I'm from, look near the bottom paragraphs about mimicking. Maybe, just maybe more mainstream doctors are recognizing that the human body just doesn't attack itself, but something caused an internal attack.

http://www.mcall.com/health/mc-be-prepared-for-bad-tick-season-in-the-valley-20170514-story.html

Symptoms vary daily, but a lot more subtle especially heat sensitivity.

Post Edited (iLyme) : 5/24/2017 1:22:53 PM (GMT-6)

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