Update

Hi Kw,
First of all, I'm so sorry. I was stuck in that 'realm' for decades.

Can you not see a LLMD? Do you not wish to use herbs or other alternative means to heal? You wouldn't need much help from the uninformed doctors that way. Just some testing once in a while.

And yes, sun can be nearly painful for some due to different things that can happen with these infections - including if you get warm enough, the extra heat in your body will cause a die off and you will herx.

Let us know what direction you prefer or can afford to go and we will see how we can be of help!

Sorry to hear this, kw


What are they suggesting for you to treat the ulcers and gastritis?

Nothing I don't take meds of any kind anymore I believe that's why I have so many stomach problems I was on pain meds and tons of other crap they prescribed me for close to 3 years. I quit them all about 3 years ago and a year ago is when I started this downward spiral of not digesting food and losing more than half my body weight about 4 months ago is when I went vegan it really helped a ton. But I'd like to know what the hell is causing all of this and they don't know don't care I thought doctors were supposed to help u. This is beyond ridiculous it's been close to a decade. I completely understand why Lyme patient off themselves the pain we live through and the absolute neglect is stupid. I've been diagnosed with Hashimoto's as well, and anemia.

I really need a Lyme test I can pay for it but all the different types of test are overwhelming and idw to get the wrong one

kw661 said...
I really need a Lyme test I can pay for it but all the different types of test are overwhelming and idw to get the wrong one

The best bang for your buck is the Igenex Western blot IgM and IgG - total cost $210

You need a Dr. to sign the lab req.

Call Igenex and order the kit.

kw661 -

Also sounds like you need to focus a little on healing gut. If you have GI problems, this could include damage to the mucosal lining, which will interfere with anything you take orally - regardless of Rx or herbs. Given your weight loss, I'm betting you have some absorption issues.

The damage can also lead to leaky gut, where undigested food, fecal matter and other toxins seep through the lining and into the blood stream, taking this gunk all throughout the body. The immune system comes across it and starts reacting to it as "foreign matter", which causes food allergies and other sensitivities to just about everything you eat. It's horrible.

So while you're trying to find some professional help for Lyme & co you could be making a lot of progress with healing your gut.

There is a lot of great info online about this - better than the summary I'll provide below and I encourage you to start digging.

I, too, had to heal my gut before starting tx. I had a very restrictive diet for a good 4 months (mostly liquid, organic, non-GMO, no roughage - only gentle stuff that is WHOLE FOOD and avoided chemicals as much as possible):

- all veggies
- a little chicken or fish protein
- NO dairy
- NO grains (too many have damaging pesticides and other chemicals - glycophosate, and gluten substitutes can also be damaging - best to avoid altogether)
- NO legumes (others might be ok w/ legumes but they were my major staple so I had major reactions to them)
- NO beef
- NO sugars/fruits
- NO simple carbs (your body treats white rice, white potatoes, white flours, etc. as sugar).
- NO soy or any corn products
- A LOT of bone and veggie broths
- Soothing aloe vera juices.
- Binders every day
- lots of water

This was incredibly restrictive and difficult but very impactful. I stayed on this diet for about a year but eventually started eating limited fruits and other animal proteins. After the first year, I added in very small, infrequent amounts of dairy and grains.

And I was seeing an LLMD gastroenterologist and he gave me some (expensive) food powders (this became essential in order to get enough calories) and other healing powders that I drank with water, or almond/coconut milks.

Taking a binder was also very critical in healing my gut - I had yeast/fungal issues that I needed to treat as well but the binders really helped eliminate the stuff I was killing, kept me more regular and I think helped rebalance my gut. After about 4 mos. I had made enough progress that I was able to start on antimicrobial herbs and other oral support for Lyme & co, detoxing and other body systems support. I ended up starting IV abx about 6 months after starting on the herbs but have continued w/ the herbs.

Hope this is helpful - please let us know if you have any q's. We talk alot about GI healing.

-p

Do the dna connexions test if you can.no blood no doc needed ...i was wasting away and had weird sun reactions . Treating with bee venom therapy is like 15$ a week .your life is surely worth that ? A pcp will prescibe epipen if you say you had a nut allergy.....maybe buy some alinia online for gut bugs .ulcers are caused by h pylori..which decrease stomach acid .act quik sound like the clock is ticking