I thought I had gotten rid of an early Lyme infection, but....

In 2010, I had a bull's eye rash, learned that it's pathognomic for borellia (meaning nothing else causes it except a misdiagnosis of ringworm). I happened to be where I could easily get antibiotics, and self treated with doxycycline 400mg/day for six weeks. Then felt fine until this year-- something was off in April, mostly fatigue and air hunger. I could have been re-exposed, so I did the same doxycycline treatment, and felt okay, especially a few days after I finished the doxy. That was late May. Then, a little over a week ago, I got right side face pain that I think was trigeminal neuralgia. Started out pretty severe, mostly in upper and lower teeth at the same time. Sudden pain like that doesn't sound like a dental problem, particularly since in May I had seen a dentist and was annoying him by saying I still had pain when he had fixed everything he could find. Waxed and waned, needed strong meds in order to sleep for a few days, but has decreased to tolerable although I still can't chew on that side. Although TN is not exclusive to Lyme, (what is?) it can be connected.

I would say it's a sure thing I've been exposed to Lyme, and that's about all the diagnosis I'm going to do because 1) I live in India, although I grew up in the US, 2) I'm poor enough that I couldn't live in the US even without going to doctors, and of course no health insurance, and 3) I trained in a four year program in Traditional Chinese Medicine, and I tend to trust myself (with appropriate research) more than most Western docs.

But wait, there's another twist. When I was an adolescent, I had an enlarged lymph node that they never found an explanation for, although they did an incision and drainage on it. Not long after, I was diagnosed with mononucleosis typical symptoms of fatigue, vague sore throat, and spleen enlargement. And when I was 18-23, I was getting recurrent sore throats, roughly every six weeks. All of these sound suspiciously like Bartonella.......add in the fact that one of my sisters, just a year older than me, has chronic Lyme that she thinks she contracted in childhood.

So, all you who have been looking into this a whole lot longer than I have, does this make sense to you? Maybe I've had Lyme and Bartonella for decades, and was recently re-infected? Or I had Bartonella in childhood, and was recently infected with one or both diseases? Or some other explanation? And most important, does it make a difference in how I treat it now?

I am definitely inclined to treat with herbs, not least because the fact that I'm not highly symptomatic says I have more or less been doing things right. The two rounds of doxy are pretty unusual for me--I don't take antibiotics unless it's really urgent. The Buhner protocol makes the most sense to me from what I've found so far, maybe some modifications needed for things hard to get in India. Several of the herbs are used in Chinese medicine, so I think they're understood fairly well. The fact that he's not selling some cookie cutter protocol that he's making a lot of money on helps to soothe my cynical soul.

I may also use Ayurvedic or Tibetan medicine, IF I am convinced that the practitioner has some understanding of the specifics of Lyme disease. and is not just throwing general "herbal antibiotics" at me.

Finally, the reason I am in India, aside from it being cheap to live, is that I'm immersed pretty deeply in Tibetan Buddhism, and I intend to use its tools as well to be calm and take this chronic disease as a learning experience instead of a disaster.

Am I making sense, or is just a figment of Lyme dementia running amok?

Hi, I love your screenname, Lotuslight.

I guess you are not a true beginner in lyme, as I read what you wrote.

I fully back your search on treating yourself without drugs. I'm also not for drugs, because my body cannot tolerate them well, and because I think plants and frequency remedies work sooo much better, in more intelligent and deep ways that there is barely any ground for comparison (in my personal opinion).

And because you are practicing meditation, drugs will not be good either.

There is a blog from a guy that someone posted here, and I think he's got many good tips. Not all are inexpensive, but most are.

http://www.stickerbowandtherose.com/2014/10/my-success-story-lyme-naturals-and-rife.html

Do you practice energy testing?

If your body and mental field are clean, energy testing will probably work well for you.

Energy testing was the best thing that happened to me, due to lyme disease! I mean, I had to learn it, or I could not swim around hundreds of possible herbs and treatments...

I posted here about it, one whole video how to learn and practice it, with explanations.

It's in my thread about Treatment alternatives for those with low budget.

If you don't find it, I'll pull it up for you.

I would treat Bart with nosodes, before I go into herbs. I did herbal treatment of bart (also in my thread above), but it is waaay too complex.

That time I don't think there were Bart nosodes (10 years ++ ago).

Now there are, and I heard many good results with it.

India has a very good reputation for homeopathy, so you may find them there.

Very inexpensive, and sometimes nosodes reach very deep (healing-wise, if this word exists.... )

Homeopathic borrelia nosodes was what healed my lyme disease for good. Daughter and I were always relapsing, or got bitten again, anyway.

Bb nosodes through photons stopped that. We did that at home, with the PE1 (photonic energetics).
We've been 8 years + lyme free, despite new tick bites.


If you are already there in India, if I were you, I would try the Suddarshan Kriya from Sri Ravi Shankar.

Only a weekend seminar, and the benefits I got from that were so deeply grounded...

I think it was the fastest way to get rid of some mental / psycho blockades that can affect health and the immune system.

I did a few types of meditation, Taichichuan, Chiqong, yoga... then breathing techniques in yoga...

But nothing compared to Suddharshan Kriya, in terms of speed and depth.

One weekend!!? I would never believe it. It works like a charm for addictive thoughts, addictive feelings.

Hi lotuslight - welcome to our community.

When you treated with doxy in 2010 and more recently - did you treat until sign/symptom free plus several more weeks? If you had any symptoms...including the bullseye rash when you stopped - then it was too short of treatment...which means you could have relapsed.

You could also have bartonella - which would involve different set of abx to treat it (not just doxy)

I also wonder the same...had bartonella for a very long time (lots of cats in my life - with lots of cat bites and scratches...and a history of raised bilirubin) and then got lyme (at a time when my life was VERY stressful) - which brought out the bart symptoms as well.



Yes you're making sense.

Girlie, in 2010 no real symptoms except for the rash. This year, I felt a little better after a few weeks, but still low energy. A few days after stopping the doxy, my energy returned, as if the doxy was making me tired, or maybe I was herxing. But then felt fine (May 24th-July 11th) until the jaw pain started.

I also have a rash that started a few days after the jaw pain (not ER or babesia type, just small itchy bumps that I've seen before with an antibiotic I'm allergic to) that I've chalked up to the Tramadol I took for the jaw pain. I think it's slowly getting better.

Not doing any treatment now except Tibetan herbs that I got from a Tibetan doctor I went to last week, while waiting for arrival of the Buhner protocol herbs.

If this year's manifestation is a relapse rather than a new exposure, I wouldn't really expect the doxy to work.