I am new here and think I have Lyme disease.

Welcome to our forum francesanne,

So glad that you were able to find us. I am sorry that it is under these circumstances though. I sincerely hope you find support and a path to healing here.

I believe we have other members from Europe on here that post from time to time.

We do encourage all new members to read our"New to Lyme" thread at the top of the page.
You will find that it has very helpful and needed information.

There is info on detoxing, testing, symptoms and so much more.

You can also go to ilads.com for treatment guidelines

If you enable your email you can receive response for finding an llmd.

You can re post asking"need an llmd in your area"

You are not alone anymore, we are here and understand what you are going through.

Other members will be along soon to chime in.

Take care, Sincerely Jo

Hi There is a very good clinic in Germany. I had the pleasure of hearing a LLMD from there speak here in the United States. They are healing and helping people there. and doing research to figure all this out so we can move forward.

We don't post doctors names here to protect them but feel free to email me and I'm hoping others from your area see this and respond.

Unless the doctors are an LLMD they don't usually understand or acknowledge that it could be Lyme and the co infections as being the cause of these symptoms.

You have been suffering for along time but there is hope. I have read of others here who have had success at being healed.

Take care and I wish you the best of healing and soon!!! Jo

Thanks for your recommendation mpost.
I have written to ilads for advice.
francesanne

List of symptoms from francesanne.

I haven't rechecked how many there are.

Back pain.

Sore neck..left side which never really goes away despite fitness and physiotherapy.

Neurological symptoms: ADHD much worse than in the past.(endless talking, depression and anxiety, unable to take stress)

OCD (chaos in my flat and cellar +++ You have to see my back room and cellar… etc) Feel overwhelmed by my chaos.

Forgetfullness

Numb parts of lower part of feet and toes when lying in bed. ( I attributed this originally to my two total knee replacements! )

Tiredness over many years. I have often spent days in bed feeling exhausted.

Cold sores on my lips and in my mouth and gums (all left side) for years which return about every 2 weeks.

Bleeding from under my teeth in different places
when I clean my teeth.

Last week I developed an nasty infected root ( with pus +++) at the bottom of a tooth following a new bridge from dentist. It has responded slowly after nearly two weeks with Amoxicillin.

Rash on my cheek… Left side which was diagnosed and treated with antiviral medication (Valtrex) at the time about 5 years ago…as Gurtelrose/shingles. It got better.

Red lumps all over my upper forehead which when I press them I have nerve pain running up into my scalp.(these come and go)

Red areas on my scalp and red lines running outside on scalp for a long time. My hairdresser actually commented on them.

Painful lymph glands behind both ears.

Lumps under my complete scalp which really hurt when I press them and general tenderness all over my scalp when I press. That have got much worse recently.

Light and sound sensitive.

Hypothyroidism (underactive thyroid) for about 18 years. I never had it earlier in my life.

I have just discovered that I have two nodules on the right part of my thyroid gland. (Apparently people with Lyme disease have also been diagnosed with this problem.)

Hyperactive bladder problems. Often on the toilet every 5 minutes. It limits me terribly and it’s hard to go anyway where there isn’t a toilet. I I don’t have an infection.

Sleep problems. Have had to take sleeping tablets for about the last six years just to get some sleep. That combined with an overactive bladder means that I am always tired.

Have extreme gluten intolerance which first showed up in Bergell in the form of fibromyalgia and years of kidney pain that no doctor could tell me what was causing it. I still have kidney pain nearly every morning when I get out of bed. I get the same pain if I eat the tiniest amount of gluten.

Because I can’t eat any gluten I have to give myself a vitamin B12 injection re. (I'm a registered nurse) When I need an injection get really shaky, feel quite ill it affects my ability to think.

Extreme changes in body temperature. One moment I am sweating excessively in summer and winter (summer much worse) and then start shivering. When I am very cold, as soon as I put on even a light piece of clothing I start to sweat again.

I have become allergic to a lot of new things.

Just wanted to stop by and welcome you.

Sorry you have lyme. Lots of good information on this forum.

Welcome, francesanne!

I'm so sorry you have been suffering for all this time...but am glad that you have found your way here.

We will do all we can to help you. You have been given some great information from our members here.

I have a question - what does not eating gluten have to do with being low in B12?

There are good non-gluten sources of B12: meat, seafood, eggs...etc.

Are you being treated for you hypothyroid condition?

Francesanne,

I also live in Switzerland, in the German speaking part (near Konstanz).

Are you far from me?

My lyme doctor is excellent, he's based in Zug, but he treats hollistically, following dr. K.

He takes insurance, but you have to wait months for being accepted (he only accepts after an interview...). I can explain why, due to life insurances, etc. He's a medical doctor, an homeopathic doctor, and a psychologist, and follows a lot of dr K (from Seattle / Germany).

If you are interested, I can tell you.

I also went to Germany, near Freiburg, for a naturopath who treats also following dr. K. She's not strong on homeopathy, but she is the one that knows everything dr K is doing, as she was her right hand here in Germany.

She uses more herbs, microcurrent, bee products, neural therapy, psycho kinesiology...
She's not expensive, and she also helped me a lot.

Another place that is highly recommended is Paracelsus Klinik, that is also in my area... They treat loads of people that are chronic, and they do treat holistically, with teeth treatments, gut, immune support etc.

But they are pricey. I'm not sure insurance will cover.

It does seem your symptoms point to lyme. I hope you'll find help soon!!

I used to hear the male deer in my lonely Swiss valley bellowing every year ....outside my bedroom window at night ....throughout the mating season .....full of ticks... ! Lovely.

Thnx for your message.
I eat as much meat as possible and have a very healthy diet ,but I still need to the injections at intervals to maintain healthy Vit B levels.
One gets Vit B12 from most often wheat which makes me ill.
The doctor checks the levels regularly.

I'm very allergic to most seafood , especially salmon and sardines....and also can't eat eggs as they make me ill... sadly.
I had my intestinal lining checked and it's OK.
I eat liver whenever possible and enjoy it.
Thanks for your message.

Oh that would be wonderful if you two could meet up. I hope that works out for the two of you.

Yep, I sent you an email!!!

I hope to talk to you soon, Anne!