Symptoms all Neurological - Eyesight so bad!! Eyes hurt!

BeatingThisBeast,
Hey there, sorry your having a rough time. I know it's scary, I have been there so I understand. Glad you reached out to us.

I believe you have been treating for about 3 weeks or so correct ?

Are these symptoms increasing since beginning treatment? Because it could be herxing. Are you familiar with activated charcoal.

If your herxing, it might help by binding the toxins. You have to take it 2 hrs away from any meds., herbals, supplements. with lots of water.

Could you take an Epsom bath maybe that could help relax you.

When I had eye symptoms and was scared I had to try to stay calm and I kept telling myself this will pass.

I figured if I stayed to upset it would cause worse symptoms.

I hope you get some relief soon and these symptoms pass for you too.

Take care, Jo

When my neuro symptoms were the worst, the only way i could even get relaxed enough to go to bed was after an Epsom bath. I dreaded every night because of the symptoms in my head and neck.

I am glad to hear you are going to try herbals, I use the Buhner protocols and have had good improvement at targeting specific symptoms with the tinctures.
(I am also still on Abx too)

I just want you know there is hope to get better, it does take time but once you have improvements of the worse symptoms you will have better quality of life and it will be a bit easier to deal with all of this.

Take care, Jo

Oh hang in there I know its tough. Do your eye symptoms come and go or are they pretty much constant?

Its normal to be scared, Lyme and co cause some pretty weird symptoms.Does your llmd know about your eye issues? Maybe they can offer some ideas for helping with that.

((Hugs))

Hang in there. I've always believed Lyme makes us stronger!

My symptoms are all neurological as well (currently treating babesia and bartonella) - base of skull pain, head pressure at the temples, eyes, forehead, jaw stiffness. I've had these headaches on and off for five years and most recently they started again two months ago and are constant at varying intensities.

Visited my LLMD last Friday and she took me off of Zithromax, Malarone and Minocycline after using them for one month. I'm now on Cefdinir and Rifampin and also taking the following supps:
Supplements:
Vitamin C 500mg
Calcium 630mg
Artemisinin 2 weeks on/2 weeks off
LB Core Protocol (Japanese Knotweed, Cats Claw, Adrographis herb, Sarsaparilla root, Dandelion herb)
Magnesium
Multi vitamin
Probiotic
Cryptoplus 40 drops two times/day (two weeks on/off; swap with Sida Acuta)
Sarsaparilla 30 drops two times/day
Sida Acuta 30 drops three times/day (two weeks on/off; swap with Sida Crypto)
HPA Axis 2 pills/day (Siberian Rhodiola root, Holy basil leaf, Oats milky seed, Schisandra berry, Ashwagandha root)
Activated charcoal
Houttuynia 15 drops 2x/day
Teasel root 5 drops 2x/day
Milk Thistle 500 mg/day
ECGC one/day

Every time these headaches come back I think I have a brain tumor. Last major event was in March of 2016 in which I went to the ER for chest pain and headaches. MRI was negative. I have a request in my my PCP for a referral to a neurologist as I again, want to rule out tumors or other conditions as these headaches are unrelenting.

I wish all the best in the suffering that comes with Lyme. It sucks, and hopefully when things get better, we are all stronger having lived through the worst of times.

Post Edited (swimman) : 7/27/2017 8:02:35 AM (GMT-6)

BeatingThisBeast - are you seeing a LLMD? If so, I would discuss these issues with him/her.

I suggest that you increase your detoxing...a.s.a.p.

Did you notice the symptoms got worse after the increase in doxy dose? I'm thinking maybe you should go back down to the previous dose of 100 mg twice daily...that plus detox.